Hydatid cyst

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I have my results from my MRI scan and my cyst in the liver is a hydatid cyst and needs further testing.  I have done some 'googling' and is related to a parasite - has anyone else had this and what happens next?

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16 Replies

  • Posted

    Hi Carina, I haven't had this but I too have been Googling and wondered whether you have found the following

    https://patient.info/doctor/hydatid-disease-pro

    https://www.britishlivertrust.org.uk/

    The British Liver Trust has an information line and another line, so they might be able to help you.

    Hope all goes well for you

     

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    • Posted

      Thanks for the links. I was reading up about it last night and I must admit it sounds pretty scary but I am eager to get on with the treatment now. It also says it's very rare which makes it worse :-(
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    • Posted

      I wish you well, as my Consultant said about the condition I have, it is rare but not unheard of!  Will you have far to travel to hospital?

       

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    • Posted

      May I ask what condition you have? Hospital not too far away, half an hour drive. I am seeing Consultant on Fri and hope to find out more information on my condition. I suppose one positive thing about it is its been detected - no idea how long I've had it.
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    • Posted

      I have an auto immune skin condition called Mucous Memrane Pemphigoid.  I also have a rare form of uveitis.  The MMP can also occur in the eye but fortunately, I don't have it in my eye, just mainly in my mouth and on my head and neck.

      At least you are guaranteed to see the Consultant, which makes life easier.  I will be interested to hear how you get on.

       

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    • Posted

      Thanks.  I spoke with my GP this morning and she doesn't think it is all 'doom and gloom' as it appears on the internet - they always have worst case scenario!   I do hope i will feel a lot more reassured once i speak with the consultant.
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  • Posted

    Hello All, thought i would send an update.  I saw the Consultant this AM and basically i had a blood test done there which is to see for a sign of any infection.  If there is an infection then i will be put on a course of antibiotics.  He wants to see me in a month's time and then will have a follow up scan 3 - 4 months later.  He showed me on his computer the images from the MRI scan and the liver looks fine, the cyst is not in an obstructive area (ie the bile ducts) and he said worse case scenario, it would be operable rather than inoperable but basically left it at that - he is not too concerned about it all and it is NOT cancerous, which i guess is the best news possible.  After weeks of worry, i am starting to feel a bit more like my normal self.
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    • Posted

      Thanks.  I feel very relieved but i now will probably become a bit obsessive with it and will want to keep an eye on it regularly.  Out of interest he said that if he scanned half the population, a large proportion would have cysts inside their body which they would never have known.  Maybe a future prevention could be scans for everyone but i can't see that with the way the NHS is with the funding of it all.
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    • Posted

      I suppose it is the same with a lot of things, it only needs to have a rogue cell to trigger something in one person and not another.

      It all sounds positive for you and I wish you well.

       

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  • Posted

    For those of you who have taken the trouble to read my posts, i am relieved to update and say that i do NOT have a hydatid cyst :-) i received my consultant's letter on Friday and all he wants to do is keep an eye on the cyst with a follow up scan in 3 - 4 months time to see if it remains stable.  I do have fatty liver though which was picked up in my original ultrasound scan so will chat to my GP about this to see what i need to do now but after months of waiting and worrying, this news is a huge relief to say the least.
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