1. Community
  2. Skin and nails
  3. Psoriasis and Psoriatic Arthritis

Hydroxychloroquine

Posted , 3 users are following.

janet20769
janet20769

hi, I was prescribed the above about two months ago. About two weeks after starting it my cheeks looked red and swollen and I had an itchy rash under my chin. Stopped taking it and it all cleared up in the following two weeks.

the Rheumy nurse has told me to try it again to make sure it was the cause. Thing is, I've had Sjogrens for about 20 years with the usual dryness, but I cope with eye drops and vaginal lubrication and HRT cream. Apart from the odd tummy troubles, I'm thankfully not in pain and lead a pretty normal life.

im not at all sure if taking hydro chloroquine is worth it for me, as I dread it damaging my eyesight. My Specialist seems to think it may help with my poor sense of taste and smell, which would be great as it's depressing. 

Any my advice please as I don't know what to do

 

1 like, 9 replies

9 Replies

  • steve43628
    steve43628 janet20769

    Posted

    Hello Janet.I too was prescribed Hydroxychloroquine,and also after pretty much the same time  as you.2 weeks in. stopped taking it.The side effects were just to much I'm seeing my Rheumatologist  next month,so will show him a little diary I did when taking it.I wont take it again.One thing I am going to investigate is Comfrey.If I can find other things to hopefully help.I'll post them.
    • janet20769
      janet20769 steve43628

      Posted

      Hi Steve,

      thank you you for replying. The specialist told me not to worry about blindness as it's never happened to any of his patients and the 'hydro' means it's watered down. Nevertheless, he said I needed to have regular eye tests. I just don't think I want to risk it so don't think I'll give it another go as don't  want the red swollen cheeks or itchy rash under my chin, never mind the chance of damaging my sight no matter how small the risk.

    • hope4cure
      hope4cure janet20769

      Posted

      After taking it I developed the same symptoms and my doc told me to stop and now on Humira.
  • steve43628
    steve43628 janet20769

    Posted

    Yes.I agree Janet.My eyes started blurring into the second week.I got a rash.Ringing in ears etc.I only wanted it so I could play guitar again as well as I can.Don't fancy being nigh on blind,able to play,but itching all over!! 
  • steve43628
    steve43628 janet20769

    Posted

    I just found this Janet..The high potency of oregano oil's active substances can definitely give relief to those who are suffering from arthritis.

    Arthritis is a painful, chronic, musculoskeletal condition that is accompanied by extreme pain, inflammation and stiffness of joint. The ability of oregano oil to penetrate deeply into the skin and reach the joints can bring relief to those suffering from this disease. The wild oregano plant was used by the ancient Greeks for treating various ailments, ranging from simple skin diseases to digestive and respiratory disorders. They used the wild oregano plant, Origanum vulgare, found in their hilltops. It is not the same as the common oregano, Oreganum marjoram, which is used as food spice.

    • janet20769
      janet20769 steve43628

      Posted

      Hi Steve, thank you for the information. I'm lucky that I don't suffer from arthritis touch wood as my Gran had it from her twenties 
  • steve43628
    steve43628 janet20769

    Posted

    Poor Gran sad Hope it stays away for you Janet.Fing is oregano oil is good for skin too.Have a wonderful weekend!!
    • janet20769
      janet20769 steve43628

      Posted

      Thanks Steve and you too! My skin is very dry with SS so maybe oregano oil us worth a try for that
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.