Posted , 4 users are following.
My little one was normal till 9 months after birth (july 2018), He was very active and than we noticed one bad morning he was not able to do activity , he was looking drowsy and in sleep in the morning . First we thought he is not well after we fed him breakfast cereal he was ok . He seems to very hungry at the period of time . One day in sleep he started giving jerks and crying in sleep we took him to hospital they checked brain test to check for fits cause all came normal. Then doctor asked to run blood sugar test regularly in the morning or when ever we see him dull. We checked first time he was dull and sleeping with out any reason so it came as 35 where as normal range is 70. we again run to hospital where he was admitted for 3 days . Since than we are in bad time . My little one condition went from bad to worst . every week we need to admit him hospital for next two months . doctor told us it is symptoms of hyperglycemia regular feeding will help. he run lot of test metabolic genetic and so many blood test all came normal. charged us heaps of money our family is not insured bcoz i dont earn much to buy insurance . we are low middle class family. now from last 7 months we guided to different doctors and even admitted to hospitals. We are now consulting a endocrinologist who guided us for diazoxide we couldnt find it in india - i tried to take help from my frinds who are in UK,Candada and USA but none could send me single tablet. in meanwhile my son was horriable condition he lost his ability to walk his sugar level was not crossing 50 and IV glucose or Dextrose was also not able to help. on a point we thought he wont make it long we have lost hope also seeing his condition . most of the time he was in unconscious stage.for a week we were running and just paying bills huge bills. we discharged him and met another endocrinologist who guided us for octreotide injection. it helped a lot we give him three times in day now. it being two months now since we have started it and he is recovering . please help me with treatment and if you can find diazoxide tablets. i can share reports and everything on email and YouTube videos of my son , any one know the treatment please contact me or any one can help with any thing please help . we have seen lot and going through a lot . i work in night shift and my wife is after my kid . giving injections and keep checking his sugar levels. he need attention lot of attention. my wife could not able to do any house stuff many times . when sugar level drops he go very cranky and irritated .
0 likes, 5 replies