Hyperparathyroid Bone Pain - Describe Please

Posted , 5 users are following.

I have what I believe is the bone pain (it's certinaly bone and it certainly hurts!), but I don't know if it's 'the' pain or something different.

The pain I get feels like my arm or leg has been hit by a thick and heavy metal bar. It goes into a sort of burning bruising pain and can last from a few minutes to all day, the latter being the longst and is today's joy - my right arm feels almost useless and it's now a major bore, as well as making typing hard.

0 likes, 30 replies

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  • Posted

    Hi

    Although I am now in second week post op my dreadful bone pain has almost disappeared.  Prior to surgery every long bone and my fingers were sore.  Not the joints  -  the pain just came from the bone.  Even laying in bed at night.  Sometimes it developed into a stinging burningsensation just as you describe.  Since op( but it is early days) I just have my old pain across my neck and shoulders as if I have been carrying my rucksac.  The stinging burning pain has gone.

    • Posted

      I'm so glad that your stinging/burning pain has gone. Hopefully what remains is muscle and a good massage or chiro might be able to help?

    • Posted

      I am experiencing very bad bone pain which I'm sure is connected with my parathyroid disease, I cannot find any analgesic which helps, what do you take for relief ? chrissy

    • Posted

      Nothing has worked so far. Its been shortlived to date so I've ignored it.

      What have you tried?

    • Posted

      Hi Christine

      I took Ibubrofen randomly but it did not really help.   For my spine pain I did wall press ups as per the osteoporosis uk exercise fact sheet.  This strengthened the muscle group supporting my spine and did take pain away.  I also used dumb bells to strengthen arms with similar results. 

    • Posted

      I did the same even with the dumb bells as well, sent away to the u.s. for a book written by a physio who specialises in osteoporosis and also a dvd, again from the u.s. but I began to feel too unwell to do the excercises.  I stuck to the golden rule of not bending from the waist down so much that now the muscles are screwed in my back and am having to visit a chiropractor.  I have very little faith in the British Osteoporosis Society as it's mostly "take bisphosphonates" like the Gp's here,  I joined the Osteoporosis Foundation which is in the U.S. there are many Brits there and their knowledge is so superior to ours.  For me though, whether there is an adenoma or not, I am too old for the osteoporosis to be reversed which can be possible for post menopausal women who have hpt which was the actual cause of the OP.  Mine I think is hereditary, been coming on possibly for 10 years but I still dont like the idea of higher than average pth in my blood as evidently it is still leaching calcium out of my bones which is not going to help.  Again, in this wonderful country, one has to break something before having a dexa scan and then it's too late, whereas in the U.S. you have one done post menopause.   Ah, the joys of the NHS!!

  • Posted

    Bone pain in right wrist and moving into right hand is getting really rather unpleasant and harder to ignore sad Anyone experience of a previous break area being extra susceptible to being an extra pain site?

    • Posted

      MrsMozart,

      Are you scheduled for surgery? My bone pain didn't go away until I had surgery. 

    • Posted

      Oh yes, it goes without saying.  As soon as there is a fracture, good old osteoarthritis sets in.  I broke my non dominant forearm wrist two years ago and some days it kills but generally my back pain takes my mind off it.  I have acquired something new on that same arm, really bad pain in the shoulder, not a frozen shoulder thank goodness (had that on the other shoulder many years ago) but this is really awful and goes up into my neck and jaw.  Chiro is hoping it isnt a tear in the rotar cuff but overstretching that has damaged a ligament.  One of the ladies on the FB group has a calciuim deposit post surgery lodged in her shoulder I think it is and is waiting to have it "washed out".

    • Posted

      No. I'm one of the ones who has all the symptoms and the high PTH, but normal calcium. I'm at the start of investigations.

      I'm so glad your pain went. It's horrible sad

       

    • Posted

      Ouch indeed lass! Hope it's an easily fixable thing and not a one of these things. I had the rotator cuff thanks to a pony who decided being lunged meant swinging the human around behind him eekcry

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