hyperthyroid flare up
Posted , 3 users are following.
hi guys i am new to this forum but heres a lil background history of how i am affected by hyperthyroidism.
i was dagnosed with subclinical hyperthyroidism a couple of years ago. my TSH has aways been low 0.03 but with normal ranges for T3 and T4. my endo wanted to just monitor me repeat bloods every couple of months etc. i started to feel really bad so endo decided to put me on carbimazole 5mg. after 2 weeks of taking it i was having really bad side effects; excrucuating joint pain where i could barely walk so i had no choice but to stop i actually felt better off the meds! now i am at the point where my TSH is still hardly detectable and my T4 has risen slighly above normal range and i feel awful chronic fatigue, terrible brain fog, heart palpitations, joint pain to name a few. started taking some supplements about 2 weeks ago i notice i have good days and bad days. GP prescribed me popranalol but im too scared to take it plus dont actually think its necessary at this point in time. he also discussed putting me on PTU instead of carbimazole also have doubts about that too. has anyone had any bad experiences taking PTU? or have any good remedies or supplements i can take that will help???
2 likes, 21 replies
linda187 True
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True linda187
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linda187 True
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I was put on 10 mg of Methimazole and took that for two years. My FT3 and FT4 normalized right away but my TSH remained at less than 0.001 for two years until I read the paper and added the Carnitine and was able to lower my Methimazole dosage because the Carnitine helped my TSH to rise. I also took Acetyl-L-Carnitine which really caused my TSH to rise but I would not recommend that for you as it can cause a very quick HYPOthyroidism. It is too sensitive and the research was done with the Regular so that's what I would recommend hyperthyroid patients should start on. I am currently on 2.5 lmg of Methimazole 4 days a week and take one 500 mg capsule of Regular L-Carnitine on my off days along with the other supplements mentioned. I don't take Acetyl-L-Carnitine any more. My labs are all in the normal range right where I want them on the scale.
True linda187
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so glad to hear all your results are in the normal ranges. im at the point i have to do something now. been reading up on the l carnitine cant believe it helped boost your TSH mines been ranging from 0.001-0.003 for years i can actually tell when it drops as i feel rubbish. i definitely think i need that in my life lol thanks for all the great advice much appreciated. Also think i have to admit defeat and finally go on meds tremors have started recently and blood sugar levels aren't stable.
linda187 True
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True linda187
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icecool True
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[b]http://www.diabetes.co.uk/how-to/control-diabetes[b].html
icecool True
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Did the dr check your antibodies at all?
True
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icecool True
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I have not commenced any treatment as crbimazole is contraindicated. I ammstill suffering. Habve twenty nodules on my goitre as well. Cannot tolerate L Carnitine as it made me having lots of small seizures and chest pain resulting in calling the ambulance out.
True icecool
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icecool True
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Borom, sometimes Omega 3.
Having said that he recommended rai treatmnt but nothing has been done about it.
My endo said that L Carnitine has not been proven to be helpful .
True icecool
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linda187 icecool
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linda187 True
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I believe delirious has a medical condition of seizures that makes her condition worse if she takes L-Carnitine. My boss specializes in genetic metabolic diseases and treats some of his patient's diseases with it and told me it wouldn't hurt me and it did not.
True linda187
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icecool True
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I have PM you about the adverse reations to L Carnitine other name is levocarnitine.
NB Apparently according to the experts and the extensive research that I myself have personally carried out in relation to this supplement the adverse reactions can occurr in anyone irrespective of any conditions that person is or may be suffering from.
This is very important especially when the adverse reactions include a fast heart beat, seizures, stomach cramps and a whole lot more nasties.
SInce my experience with this supplement I never take anything unless I thoroughly research it and check with a pharmacist and doctors.
Take care.x
icecool linda187
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I have enclosed my reply to clarify the situation to True.
I can also scan the ecgs done by paramedics as a result of taking a very small dose of L Carnitine.
Take care.
True
I have PM you about the adverse reations to L Carnitine other name is levocarnitine.
NB Apparently according to the experts and the extensive research that I myself have personally carried out in relation to this supplement the adverse reactions can occurr in anyone irrespective of any conditions that person is or may be suffering from.
This is very important especially when the adverse reactions include a fast heart beat, seizures, stomach cramps and a whole lot more nasties.
SInce my experience with this supplement I never take anything unless I thoroughly research it and check with a pharmacist and doctors.
Take care.x
icecool True
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I was simpy answering your question as to whether I takemany supplements etc. I do but under medical supervision including blood profiles for anaemia, Vit D deficiency, electrolyte deficiencies, .
I would strongly advise you to get a comprehensive blood screenng profile done to establish baselines and if any supplementation is required.
You really need a comprehensiv blood panel into the issue of Vitamin B12 and B6.
Have you heard of the ernicious anaemia association?
I would advise getting your GP to do a full blood profile.
True icecool
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i have not heard of the EAA but will look into it. i definitely think im going to get my GP to do a full blood profile ive been meaning to actually do this to be honest. thank you for all your great advice
icecool True
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Sorry it is the Pernicious Anaemia Association. xx