Hyperthyroidism and Carbimazole Tablets
Posted , 6 users are following.
My husband has hyperthyroidism and toxic nodular Goitre for about 17 years, which has not given him any trouble until recently. After having a urine test for levels of Iodine, it was shown he was low. Thus he started on a course of Lugol's 2% which he gradually worked up over a period of a few months until having what is recommended by Dr David Brownstein, a wholistic MD from America.
His troubles began when our Herbalist gave us a bottle of Lugol's 15% and after taking the higher dose for three days, palpitations, high heart rate, aching muscles, nervousness and anxiety set in. It seems that the Iodine caused a thyroid storm and he ended up in hospital. He was prescribed Carbimazole 5mg 2x2 daily and a beta block, Propranolol 10mg 2x2 daily. He stopped taking the Iodine immediately believing this caused his trouble which later we found out indeed did. If one has a toxic nodular Goitre they must not take Iodine!
Within a couple of days after taking the Carbimazole he had had a rash all over his abdomen and intense itching. His local GP halved the dose of Carbimazole. Those sensations seemed to go but then aching muscles and painful joints along with a sore back set in! These are obviously more side affects from this drug.
His endo, after finding out he was on Iodine was most upset with him for seeking out alternative measures to help him, after seeing her yesterday.. She was rude, arrogant and obnoxious, causing him even more stress than this thyroid was already causing him. The upshot is, he will not be going back to see her.
Our dilemma is, we are going to Europe in a week and a half for almost 7 weeks, and we are unsure what to do regarding this medication. Whether to go completely off it, or lower the dose to 2.5 mg, as I read others have done in this forum. Does anybody know if it is ok to go off it completely and how long the joint aches and pains take to subside, and is it safe to go off it completely. The local GP doesn't seem to know much about thyroids!
We have tried for months to stabalise my husband large goitre in both sides of his neck, which sometimes swells up and sometimes almost looks quite normal, but it seems that we have only made it worse! We are concerned about him having another thyroid storm when away, especially in flight as it takes 25 hours to reach Rome.
He is on L Carnitine which an Integrative MD we just saw last week told him to add to his vitamin, mineral and herbal supplements. It is just hard to know whether he should stop the endos drugs and wing it, or just cut down and keep taking it. It is not exciting looking forward to aches and pains day in and day out though on our holidays. The wholistic doctor seemed to think that by my husband suffering the rash, itching, and muscle and joint pains, that he should not be taking it, but the endo says he should! Who are we meant to listen to?
If anybody has had any experience with this dilemma and has any suggestions regarding which way to go, we would be most appreciative as we leave very soon, all being well. Thank you.
0 likes, 15 replies
linda187 jennifer94645
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jennifer94645 linda187
Posted
JayValle jennifer94645
Posted
I agree with Linda. Slowly reducing medication was also best for me. I started at 10 mg Methimazole and after a couple of months felt lethargic and achy. I cut to 5 mg and felt better for a couple months then had the same issue, but accompanied by some depression, so I cut to 2.5 mg which I'm still on and feel fine.
Like your husband, I also have thyroid nodules. One became overactive causing me to become hyperactive. I take a lot of supplements including L Carnitine. My TSH finally started to rise, although still below normal. But I feel pretty good.
Good luck. I hope your husband feels better soon.
jennifer94645 JayValle
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madge1979 jennifer94645
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I think the advice from Jay and Linda is excellent .. and you are very aware of your husbands condition .. msybe it's just a kick back from my Graves ... but is it possible that you could cancel or postpone this holiday .. to allow your husband a little more time to settle his recent traumatic health situation .... which must have been terrifying for him .. and you.
Having suffered badly and extremely myself I know I could never have contemplated such a
Journey as I was much to ill to have done so ... maybe after He has planned his Medical regime .. he could then enjoy this wonderful trip with you .. feeling stronger and in NO PAIN
Best of luck to you both ..
LUV MX🌹
jennifer94645 madge1979
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Guest jennifer94645
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Hi jennifer94645, while it is never an option to be rude, and I fully understand that your husband does not want to see her again, I think that the endocrinologist was rightly upset and probably shocked that a patient of hers got himself into a very critical situation (not to forget the active role your herbalist played.)
Our daily requirement of Iodine is 150 micrograms or 0.15 milligrams.
Lugol's 2% solution contains 0.84 milligrams Iodine per drop which is approximately 5.6 times the recommended daily allowance. Lugol's 15% contains 6.63 milligrams Iodine per drop which is approximately 44 times the daily allowance of Iodine.
It is a much safer option to use sea salt or lightly iodised salt. Since UK is an iodine deficient region I personally do use iodised salt containing 20 micrograms Iodine per gram of salt. (It is always best to check because other brands of salt may contain up to 70 micrograms per gram of salt.)
I have been on a holiday shortly after being diagnosed with thyrotoxicosis due to Graves'. It was no pleasure trip. I just went since the flights were already booked. My advice would be to take a printout of your prescription and also of your latest blood test with you. That and also enough Carbimazole and Propranolol for the whole trip.
Good luck and hopefully your husband will recover before your holiday.
madge1979 jennifer94645
Posted
Bugleweed
Motherwort and
Lemon Balm
Were three of the things that certainly helped me so very much !
I bought them in liquid tincture form ....And mixed them in equal proportions and filled a brown glass bottle with the mix of three ingredients .. ( Amazon online )
Anytime I felt anxious or High ... I would take 2.....3 teaspoonsful Or a little more even .. if I felt so bad . ... and often through the day ....the feeling of relief was very quick .
It's a shame the timing of the holiday is so bad for your husbands condition .. I do hope he feels better ... very soon
Mx🌹
jennifer94645 madge1979
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Great information! Thank you so much Madge. We will certainly look into it. Can you take the potion many times a day, if needed? Are there any contrainindications with them? There may not be time to get them from Amazon, but we will enquire at the Health Shop as they have a Herbalist there. Thank you for your well wishes. 💞
madge1979 jennifer94645
Posted
Amazon will do next day delivery
Herbalists in health shop may not be acquainted with this mixture ... and so won't be of much help !
Google natural solutions for Graves .. where many educated people in the subject will verify the success of using the treatment
Mx🌹
jennifer94645 madge1979
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madge1979 jennifer94645
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Jennifer
Due to Dawns comments I will now leave this discussion..
I hope your husband remains well and that he can enjoy his holiday but would strongly suggest he sees his Doctor as soon as he can before leaving
Best of Luck
Mx🌹
jennifer94645 madge1979
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Thank you for your help, Madge. We are great believers in the natural healing ability of herbs. I will let you know when we get back how he goes! 🌺
dawn31341 jennifer94645
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I'm not an endocrinologist But before taking different people's advice on this forum, though well meaning, could land your husband back in A&E with another Toxic Storm. Taking Carbimazol and Propranolol is a preferred prescription and can take many months to stabilise, don't be rash love picking up someone's advice which suits your trip to Europe. Wishing you both a lovely vacation, and best of luck to your hubby thyroid problems.
jennifer94645 dawn31341
Posted
Dawn, I do appreciate your concern. We weigh everything up before making decisions and very much so even more after the Iodine incident. Yes, everybody is well meaning and we truly appreciate that, but the bottom line stops with what my husband decides to do. He has listened to the endo's who give him no joy whatsoever as they only want his thyroid out. That is to be expected as that is their training. It is up to him to choose what he should do with his body. The itching and the painful muscles and joints has subsided after three days off the meds and my husband feels much better and even out nailing down the floor of the new deck he is building. We monitor his blood pressure and heart rate and it is perfect all three days, so he goes on now as he feels his body is telling him. He will begin the herbal formulae next week which is especially for hyperthyroidism. We have heard quite a few good reports about these herbs in treating hyper naturally. Of course we have other supplements as well which we will be taking with us. Thank you for your well wishes. I will let you know how it goes when we come back! 🌺