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Hyperthyroidism caused by a hot nodule

Posted , 5 users are following.

sophieannejune
sophieannejune

Hi..I was tested as having hyperthyroidism.  This week I took an uptake test as i've had nodules for a a few years and it was found i have a hot nodule.  My doctor wants me to take the radioactive pills.  The thought scares me.  Has anyone else had this and how did you deal with it??? Thanks.

0 likes, 47 replies

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  • JayValle
    JayValle sophieannejune

    Posted

    It's day to day, good days and not so good. Your reaction to Methamizole is on the list. (muscle, joint, nerve pain) I have heard many people get itchiness and/or rash.

    headache, drowsiness, dizziness;

    mild nausea, vomiting, or stomach upset;

    itching, minor skin rash;

    muscle, joint, or nerve pain;

    swelling; or.

    hair loss.

  • JayValle
    JayValle sophieannejune

    Posted

    I had to dig to find info on Methimazole causing depression. It's listed under Overdose on a link to Tapazole. I had the unusual tiredness (really exhausted) and depression like I never knew before. Different from grief. I lowered the dose and was fine.

    From NCBI:  Effect of long-term continuous methimazole treatment of hyperthyroidism: comparison with radioiodine.

     CONCLUSION:Long-term continuous treatment of hyperthyroidism with MMI is safe. The complications and the expense of the treatment do not exceed those of radioactive iodine therapy.

      

    • sophieannejune
      sophieannejune JayValle

      Posted

      Thanks for the info.  I was happy to read about long-term use.  Just wish I hadn't reacted.  Hopefully you won't be on it forever!  Are you on the eclipse path??? We're close to Oregon so counting down!

  • JayValle
    JayValle sophieannejune

    Posted

    No, we're off the path. Had about 69% but I didn't have the glasses so I watched on TV. It did get darker out, like dusk. Did you see it? 

    If you choose not to have surgery or RAI right now, you might speak to your doc about trying a very low dose Methimazole to see if it helps your symptoms and give you more time to decide. 

    • sophieannejune
      sophieannejune JayValle

      Posted

      Hi.  Wasn't on the direct route but fairly close.  It got darker but not totally.  My dogs and I watched it on t.v also.   A very low dose sounds like a good idea, however after the first reaction probably not a good idea.

  • JayValle
    JayValle sophieannejune

    Posted

    Hi Sophie

    You have to do what you feel comfortable with. Please keep us posted.  :-)  

    Good luck with whatever you decide to do.

    hugs 

    Jaye xo

  • Mike61308
    Mike61308 sophieannejune

    Posted

    Hi, I am a new member and like to share my opinion after doing a lengthy research on thyroid disorder caused by autoimmune issue. Although hot nodule problem is not exactly a GD, it does share the hyper symptom... in short, my 5c opinion states that I prefer short/long term convential medication plus supplements and herbs treatment (including autoimmune diet protocol) over RAI or surgery -- this is based on my research and my personal experience. (My endo does not agree with me and my pcp has no object on my idea.) Thanks 
  • Butterflyhope
    Butterflyhope sophieannejune

    Posted

    Hello - seeing if anyone made a decision to treat the hot nodules with RAI or surgery. I was doing better but now the hyper symptoms are coming back. I feel like treatment is inevitable but I’m scared. But I’m also afraid to not treat the hyper. Would love to hear if anyone chose a certain path. Thanks!
    • sophieannejune
      sophieannejune Butterflyhope

      Posted

      Hi Butterflyhope,

      Sorry the symptoms are back.  I made the decision to have the surgery about 2 months ago.  I really researched and thought it through and decided this was best for me.  Because the hot nodules were not due to an autoimmune disease the chance of them going back to normal ever were next to none. The surgeon and I agreed to a TT as he said he consistently saw one side removed and then not long after the second second side went bad. Doing this is something people avoid but I have to be honest, it was a great decision for  me.  I was shocked by the number of symptoms that left immediately after surgery including symptoms I didn't even know were related.  One of the biggest was the stress and fear that I felt prior to surgery that left after.   I told my husband that I've always been afraid of roller coasters but I swear if I went somewhere with one right now I'ld be first in line.  I realize now the overstress I felt with my job and people were actually a symptom of being hyper.  Right now I'm happy I did the surgery.  It's been taking a few adjustments to get the replacement med perfect but it's wonderful to be able to sleep, not have the stress and have my life back.  I know there are many who wouldn't agree but I thought it was a great decision.  The one thing that helped me with my decision was to stay away from the negative online comments and make my decision based on research.  Good luck with your decision.  Please let me know if you want any info or questions answered.  And please don't say you wouldn't treat.  I think that could be more harmful than you think.

    • Butterflyhope
      Butterflyhope sophieannejune

      Posted

      Thank you so much for your kind response. I think that is so great it worked out for you!  I definitely know I need to treat.  Like you, my nodules are toxic and also not caused by autoimmune.  My biggest fear of surgery is being hypo afterwards and being on a pill forever.  My endo was pushing for RAI at my visit in August.  I know I have to deal with this but I am just afraid.  It’s an unfortunate situation to say the least. I appreciate you taking the time to respond to me. I wish you continued healing! 
    • sophieannejune
      sophieannejune Butterflyhope

      Posted

      Hi again.  I just wanted to share comments on your note. Whether you were to do RAI or surgery, you would end up being on medication.  I couldn't take methamazole, it caused me a lot of grief.  The med I'm on now is Synthroid.  Just remember the med is a replacement for the hormone  your body produces naturally. It's not a med like methamazole  that is used to keep hyperthyroidism under control it is the same thing your body produces naturally, it just in place of what your body will no longer produce.  The drug is used to keep your body in a normal state (not hyper or hypo). My first blood test showed i was a little hyper and the med was  adjusted.  The second test showed my tsh was at the correct level.  Did you read the post that came out today about RAI. It doesn't always work the first time and has to be given a second time.  I didn't want that, I wanted to know what I chose would work the first time..surgery does that.  My endo was pushing RAI but I asked to meet with a surgeon first so I could make my own decision.  There is risk either way so you have to decide what you are comfortable doing.  I understand being afraid totally, i was too.  Talk to a surgeon and make your own choice.  There was no way I could wait six months to see if RAI worked or not.  Not trying to push any choice on you, just want to stress you do your own homework and make any decision that you're comfortable with, not your endo.  You'll do what's best for you!

    • Butterflyhope
      Butterflyhope sophieannejune

      Posted

      Thank you for that. I believe everything you said. It is nice to read positive stories. So much negative out there. I too am leaning toward surgery over the RAI. I just don’t like the idea of RAI. I am going to schedule an appointment with a surgeon. I had been doing better but last few days the heart rate /palpitations are crazy bad. I wonder if the hot nodule can fluctuate or something. I just hate this feeling of being afraid and worrying about the future. I am fairly young (45) so I want to do the right thing for my family. I have kids and need to be there for them. The surgery just seems like the more decisive choice. Get the thyroid out and be done with it. Thank you for listening Sophie. I appreciate your advice. 
  • Mike61308
    Mike61308 sophieannejune

    Posted

    As a GD patient, may I point out this: no matter for GD, hot thyroid nodule, hyperthyroidism, or any thyroid disorders, the recovery journey is very long whether you take ATM, RAI, surgery, or alternative or naturopathy treatment (there is no exception). So we all patients must be patient all the way to the recovery we aim. My hope is: we are to be patient enough to make a decisive choice at a point that sets out our recovery journey. Thank you for reading.
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