Hypertrofic cardiomyopathy

Posted , 2 users are following.

I am a healthy 13 year old girl, I carry the gene for hypertrofic cardiomyopathy. I travel to London twice a year for a check up in GOSH. I show no symptoms yet but 11 years ago my dad died from it with no symptoms. I have a very strong family tree for this and what to know will it happen to me? I have also been experiencing shortness of breath when doing small amounts of exercise. 

0 likes, 4 replies

Report / Delete

4 Replies

  • Posted

    Hi Hannah

    You are asking a very valid question.

    I think that there should be someone at GOSH who is able to answer your queries. Or maybe they know of a support group where you can get more information.

    It might help if you write down the things that you want to talk to the doctor about, before you go, so that you don't forget what you want to say.

    Wishing you all the very best.

    Report / Delete Reply
  • Posted

    Thank u for your advice, I have a list of questions wrote out for my doctor! 
    Report / Delete Reply
  • Posted

    Thank you for your advice, I have a list of questions wrote out for my doctor in 2 weeks! ☺️
    Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up