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Hypertrofic cardiomyopathy

Posted , 2 users are following.

ScottHCM
ScottHCM

I am a healthy 13 year old girl, I carry the gene for hypertrofic cardiomyopathy. I travel to London twice a year for a check up in GOSH. I show no symptoms yet but 11 years ago my dad died from it with no symptoms. I have a very strong family tree for this and what to know will it happen to me? I have also been experiencing shortness of breath when doing small amounts of exercise. 

0 likes, 4 replies

4 Replies

  • dambudzo
    dambudzo ScottHCM

    Posted

    Hi Hannah

    You are asking a very valid question.

    I think that there should be someone at GOSH who is able to answer your queries. Or maybe they know of a support group where you can get more information.

    It might help if you write down the things that you want to talk to the doctor about, before you go, so that you don't forget what you want to say.

    Wishing you all the very best.

  • ScottHCM
    ScottHCM

    Posted

    Thank u for your advice, I have a list of questions wrote out for my doctor! 
  • ScottHCM
    ScottHCM

    Posted

    Thank you for your advice, I have a list of questions wrote out for my doctor in 2 weeks! ☺️
    • dambudzo
      dambudzo ScottHCM

      Posted

      well, good luck and let us know how you get on!

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