Hypo symptoms on Levo with normal labs
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I had goiters that were so large j didn't have a choice but to have my thyroid completely removed. I wasn't hypo or hyper and when they biopsied it they didn't find cancer. My TT was on 1/4/16. I've been on 150 mcg of Levo since the surgery. For the first 7-10 after I felt great. But then not so great ever since. Sweating on and off, occasional joint pain, muscle aches, a few times burning muscles, tired no matter how much sleep I get, light headedness, etc. I get bouts of energy but they're short lived and I always pay the price at the end. I had to leave a family function because I could no longer stand. My knees started to buckle. If I don't get 10 hours of sleep I almost can't function that day. I can't make it through the grocery store so I can only do small shopping trips. I haven't been able to go back to work.
I can't find a doctor willing to look into this. One told me to get a sleep apnea test, then he ordered a TSH, free T3, and free T4 test by they were all in the normal range so he said he wouldn't do anything. Then I started gaining weight to the tune of 1 lb a day so he said he'd decrease the dose to 100 mcg which I said no to. Fortunately the weight gain stopped. I went to another doctor who told me TSH I as the only number that counted and it was normal so she said I was fine and just to give it more time. She couldn't believe I wasn't back at work.
I went back to the first doctor to see if he would order addition al tests specifically a Reverse T3 and they don't know what a Reverse T3 test is. My primary care doctor referred me to get another doctor but again he only cares about the TSH. I don't know what to do. Is it the Levo? Should I try something else? How do I find a doctor willing to test further, possibly prescribe Cyromel to see if that alleviates the symptoms. I suspect I'm not converting T3 correctly. I have a history of liver damage although after being on meds my last liver function test showed it was fine. Can anyone help me?!?
3 likes, 90 replies
Jen111979
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MtViewCatherine Jen111979
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Theres a a simple way to get a feel of whether you are truly hyperthyroid. Hyperthyroidism causes tissue behind the eyes to build up, resulting in the eyes pushing forward over a prolonged time period. People with prolonged hypothyroid generally have sunken eyes.
Also, hypothyroidism can cause the adrenals to overwork, in an effort to "make up" for the low thyroxin levels. You'll still need to treat the adrenals. There are a lot of good herbs for adrenal treatment, and this can be resolved in a few months. But to avoid repeat adrenal exhaustion, the hypothyroidism needs to be treated. To be honest, I haven't heard of how hyperthyroidism affects adrenal function.
Hope that helps.
Jen111979 MtViewCatherine
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xxkittykattyxx Jen111979
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Jen111979 xxkittykattyxx
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LAHs xxkittykattyxx
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Before you consider removing or killing your thyroid, try carbimzole or methimazole - or some other med in that family.
Perhaps this is a stretch since I don't know your situation or your doctor but I would also look for another doctor since the one you have has made a terrible error. At least get a second oppinion with an Endocrinologist (and even they aren't very good at thyroid issues).
Jen111979 LAHs
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LAHs Jen111979
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Jen111979 LAHs
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Jen111979
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Keep everyone posted.
MtViewCatherine Jen111979
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I'll try to add something new to the siscussion,beased on my experience, as it is a lot of work to care for hypothyroidism.
The t hings I've found super helpful:
acupuncture
liver cleansing
colon cleansing
boron/borax supplementation
Chiropractic
OTC organic thyroid glandular medication
gluten-free diet
I've found liver cleansing to be a lifesaver, and feel like it has really helped mediate the effects of the hypothyroidism. If the thyroid is low, metabolism is low, and the liver becomes sluggish, resulting in toxin stores. You can seehow this would reduce your T4 to T3 conversion. Since T4 to T3 conversion happens largely in the intestine and liver, its important to keep these systems healthy. Cleansing and clean organic, grain-free diet help.
I have a cyst, it had been a compound cyst with calcification and soft mass. After years of trial and error without success, I was able to get rid of the calcified portion using boron supplementation in combination with non-local acupuncture treatment.
Extensive acupuncture has indicated treatment of the intestin and heart are the most effective in treating the thyroid. Needles diectly into the thyroid were the least effective method. The point being that although your thyroid has been completely removed, the problems in the rest of the body that caused the growth, likely still exist. For example, with a car, if you have too much oil your gaskets will blow, too little and your engine block will crack. You can remove and replace the enginbe block and head gaskets but until you get the oil regulated, proper input and working oil pump, it doesn't matter how many times you fix the engine block or head gasket, the car won't work properly. So you'll need to take a holistic approach and troubleshoot the whole body.
For myself, I found acupunctuire to be the best maintenance treatment, so that while I'm trying to get the meds right, my body is supported. I still have my thyroid, and the meds have never been right on any medication for me. The best I've found is a non prescription organic glandular.
After some research, I found that it is likely that the iregular cells in the thyroid may have a higher number of insulin receptor sites, which means that thyroid function can be influenced and controlled by insulin. You can see how this would really mess with the bloodwork and your TSH levels would not show up as particulalry unusual, because the TSH isn't the only thing stimulating thyroxin productioin. This may give you an idea of what was going on with your thyoid prior to your surgery and why your bloodwork does not make sense with how you feel.
So its moot to try and use your TSH as an indicator, since it was never a good indicator for you, and now it doesn't have any effect on thyroid production.
The other thing to look at is neck and head health. If you have been in car accidents or have had head injuries, the neck and cranium positioning can hinder brain signals, incuding those from the pituitary gland, such as TSH and other endocrine system signals. You'll typically get migrain headaches if this is the case, due to the old injuries and the buildup of signals as the brain keeps producing chemicals that can't properly get throuigh a misaligned spine.
I mention this because I recently had a treatment where the chirorpractor adjusted my cranium and it felt ike a miracle, as the migraines disappeared and my body started functing better.
Lastly, I have a sort of go-to herbal remedy (frankinsence) that I use as a general support, along with vitamin and mineral supplements. I take coblimated B vitamin because not everyone can process the regular ones- this seems to be genetic, and has been linked to thyroid disease and celiac's.
Lastly, if you've had head and neck injuries, or your thyroid function has been compromised for any perios of time, you'll need to support your adrenals with acupuncture and herbs.
I will be honest with you that even with the best practitioners, the western approach for this disease has been ineffective and inadequate, allowing the problem to persist and result in whole body melt-down.
Jen111979 MtViewCatherine
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MtViewCatherine Jen111979
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Jen111979 MtViewCatherine
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Rosiebranston Jen111979
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