hypospadius

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hi, i have just read the articles left about hypospadius as my second son has this and has just had his consulttion. We new from birth that the chances of him having to have surgery to correct it was definate and i have been dreading the day ever since. After his consultation i am still petrifide. He is 7 months now and they said surgery will be around 15 months and i am just trying to put it to the back of my mind. I didin't realise that it was going to be such a long op 2 1/2 hours but i know that this is the best thing for him. if anyone has been through this with their child please let me know how it went as i don't really know anyone who's been there. :? :?

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  • Posted

    hi mandy, my son is 16 months old and he is having the op on the 23rd of october .We were told the op would last about an hour although my son s is very mild, is your sons quite severe? I will keep you informed on how we get on and what to expect.
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  • Posted

    Hi, my son was born with this condition. The opening came out where the foreskin should have joined underneath. It took 2 operations to put it right, the second one only being minor correction. He is nearly 13 now and everthything seems fine. It's upsetting at the time as any operation would be but it's something you have to do. It's unfortunate that people don't like to talk about this subject because it's 'embarrasing' It's actually a very common condition. Don't worry, everything will be fine. smile
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  • Posted

    My son who is 2½ is having surgery tomorrow for a chordee. At his six week check up after birth the GP reckonised he may have a problem and that he would need to be monitored. At his nine month check up the health Visitor referred him back to our GP who in turn referred him to a paeditrician.

    He was initially diagnosed with a peno-scrotal web which was operated on a week before his second birthday.

    At the six month check up following this op the paed. realised that he had evidence of a chordee. He was referred to a urologist and this has subsequently resulted in the surgery tomorrow.

    Everyone we have spoken to says it is so much better for the 'boys' to have this operation done as young as possible. As for tomorrow - mixed emotions but hopefully this will be our final hospital visit!

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  • Posted

    Firstly, Frazzle - hope your son's op for chordee went well and that you are all back home.

    Mandy, my son (now 28 months) underwent a hypospadias repair and chordee correction at just under 6 months and his lasted 2.5hrs too. Our specialist said he was 8 on the scale of 1 to 10 in terms of difficulty and that some kids take only half an hour to an hour and more complex cases even four hours - it all depends how severe it is.

    He also had fistulae appear after this op so we had a repeat at around 19 months to close the second hole and tidy up the rest of the site a bit more and has just recently passed his check up with flying colours (next one in year's time).

    I won't kid you about it being a simple op - it isn't in my opinion - but it is something that is not life threatening and very fixable, if you know what I mean. To make you laugh (although I time I felt more like crying), my monkey managed to catch the chicken pox during the second op so we that to deal with and to be honest that bothered him more than the actual op.

    Your hospital should do a fam trip before the surgery so that both you and your boy can get a bearing of where you are going to be. If you need any help in terms of what to take, what to do, what to expect, shout and I will try and answer your questions.

    Great Ormond Street Hospital has a good factsheet on their site that relates to the op, and this may help you a bit.

    Best of luck! x

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  • Posted

    [quote:77770fdf00=\"shelly\"]hi mandy, my son is 16 months old and he is having the op on the 23rd of october .We were told the op would last about an hour although my son s is very mild, is your sons quite severe? I will keep you informed on how we get on and what to expect.[/quote:77770fdf00]
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  • Posted

    hi, thanks for sharing your experiences, it's good to know that there are other people going through or who have been through the same thing and can now look back and give reassurance. My sons hypospadius on a scale of 1 - 10 is about a 5 so he's right in the middle. I hope you son's recovering well frazzle and that it wasn't to bad for the both of you. How was he after the op? Shelly - wishing you and your son all the best for october and it would be great to hear how you got on. Does all surgery for hyposapadius end up with a cathatre(?) and how are they when they come round?
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