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I am diagnosed with adhd and aspergers but apart from that have always been healthy, fit and very energetic! That was until last year, September 2016 to be exact! I started taking medication for adhd - methylphenidate (xenidate) and had several side effects which after doubling my dose after one week (as directed by gp and psychiatrist) got a lot worse, some of which included chest pain and breathlessness. I stopped taking it and went to docs and they carried out ecg, blood test, BP, hr (all of which should have been done before starting adhd meDs, but wasn't!) my bloods came back abnormal: tsh >99 t4 6 (range tsh0.5-5.5 t4 12-22) they told me I had underactive thyroid and said because my antibody was over 1500, I would have it for the rest of my life, sent me away with levo 25 and that was that! To say I was furious was an understatement! But I was too ill to argue at this point. Me and my 3 yo had to move in with my sister because I was just a blob, couldn't get up my stairs, lift my arms even. I took the levo 25mg for 4 weeks and in that time my levels had more than halved. I had to stop at this point because I was due a thyroid scan in another 4 weeks and so endo said I had to. I did this reluctantly as was scared levels would rise again. Low and behold my levels continued to decrease without levo and when I had the scan they found my thyroid was completely healthy and working (as I had iodine uptake). I decided to continue off med and by this point had read so much and cut out coffee and started supplements via d, c, fish oil (gp refused to test vit levels and cortisol). Anyway my levels finally got back to within normal range in Feb this year, however I had felt back to normal and started exercising long before this (Nov). In April my tsh had risen to 8 and at the end of April I started to feel some symptoms back. Then May 9th tsh >99 t4 4.6 now feel like I'm struggling again. Asked my endo for an appointment and he refused and told me to wait till after my next blood test in June! Again I am left feeling frustrated and helpless because I don't seem to be getting any answers, they just want to give me a pill and send me on my way. I am on my own with a 3 year old and I work pArt tIme so can't afford to be ill. I am currently back on 25mg levo which I've been taking for almost a week. Can anyone advise please?
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