Hypothyroid symptoms, vitiligo, low body temp but normal tsh
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Can anyone help? I'm so totally fed up of being ill now. Diagnosed with vitiligo 2 yrs ago, also have lung disease and abnormal heart rhythm. Past few months I've had to have speech therapy for voice hoarseness, have vitamin D deficiency, low ferritin (has come up from 11 to 40 with iron tablets), but the main problem is fatigue, muscle/bone/joint pain that's debilitating. Funnily enough that started the day after taking iron tablets. Skin is very dry and thin. Had a couple of years of severe itching but that's gone now. Have had loads of blood tests and the o key thing that came up was low vit D, ferritin, low folate, less than optimal level of B12. Cortisol levels weren't great but not bad enough to be treated. GP only tested TSH which is 2.52 therefore 'normal'. Body temperature is consistently low - around 35.8. I've read that the body may show 'normal' levels of tsh but may be unable to use it but my GP will not do further tests/look for hashimotos etc. Lupus ANA test was negative. Feel like I'm slowly dying. Before all this I was overactive with tons of energy and motivation - much more so than anyone else I've ever met. GP has finally agreed to refer me to an endocrinologist as he agrees there is definitely something wrong. How can I get the best out of this referral? Does anyone think I could have a thyroid/autoimmine problem? My mother and 2 sisters have underactive thyroid a and there's a strong family history of autoimmine problems.
1 like, 15 replies
jane95340 angela82031
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Sounds par on the course for a thyroid disorder! Sorry to hear that you are feeling this way. Trust me you are not on your own. been there, dne it, worn the T shirt etc,etc.
It is truly horrible.
You may need all your blood works doing again to get a baseline then take it from there.
For example a low ferritin can make you feel pretty ill as can a low magnesium, calcium, phosphate and also a low Vitamin D.
Do you know what you Vit D level was and what it is now? Were you given a optimal target range to aim for at all? I was given a minimum target of at least 75 nnomols?.
I was prescribed cholecalciferol.
NB However TBH I would nottake anything unlessit is prescribed and then monitored under medical supervision.
This is because vitamin D is a prohormone and has to be treated with respect. Taking too much can be very dangerous.
Monitoring involves doing your calcium, phosphate, parathyroid hormone and vuit D level all at the same time. NB This info is direectly coming from my own private endocrinologist who was/is treating me for a vit D deficiency disorder.
Got a headache hence bitty posting.
Thanks
angela82031 jane95340
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barbara98940 angela82031
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angela82031 barbara98940
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barbara98940 angela82031
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Another idea is: I get joint pain when I eat fruit. It's like I've sprained it. It varies which joints are affected. So try cutting out fruit (including dried fruit and tomato) for a week to see if it helps. If it does, re-introduce the fruits back in, one at a time, every 3-4 days.
It might be worth a try to see if you feel better avoiding gluten and soy as both of these can be detrimental to the thyroid. Although I test negative for Coeliac, I test positive for wheat on a RAST test. If I eat wheat my gums split and I get blood blisters on the inside of my cheek. Well done for getting a referral to the endocrinologist. It may be worth asking the endo to test your thyroid antibodies TPOA and TgAb. Ferritin needs to be 70+ to process thyroxine properly, so keep taking iron supplements. All the best.
angela82031 barbara98940
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barbara98940 angela82031
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barbara98940
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I was prescribed ferrous sulphate 200mg tablets. I could tolerate 1 a day (even though I was prescribed 3 a day), it still increased my ferritin level, albeit slower.
barbara98940 angela82031
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look up symptoms of hypothyroidism and tick which ones you've got.
Ask if it's possible for TSH to be in range and still have thyroid problems.
Request tests for T3 and T4.
Ask what else could be causing you to metabolise your food so poorly that you are deficient in so many vitamins and minerals.
jennifer31654 angela82031
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angela82031
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angela82031
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barbara98940 angela82031
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If you can, try and do some exercise (even a short walk helps) as this can help kick start the metabolism, though it's a fine line with the fatigue when to give up and sleep when to move. My magic bullet to feel better is a hot bath. This reaises your body temperature and seems to help the metabolism for several hours.
angela82031 barbara98940
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angela82031
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