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hypothyroidism

Posted , 7 users are following.

rachel80330
rachel80330

I take 250 mcg thyroxine daily my last blood test shows no change in levels, very low was even asked by gp registrar if I was taking the tablets as he unable to understand why it's so low

What happens now? What cam I do to increase levels or where do I get referred to next

1 like, 11 replies

11 Replies

  • jean97781
    jean97781 rachel80330

    Posted

    What are your levels? Post with ranges
    • rachel80330
      rachel80330 jean97781

      Posted

      I can't remember, the lowest they've been in 17 years all I can remember is the gp registrar saying was I taking the mess as he'd never seen levels so low in a patient that said they took 250 mcg daily !

  • shellyC19
    shellyC19 rachel80330

    Posted

    Hello Racheal:

    My name is Shelly and I am a nurse in the USA.  I have Hypothyroidism since 1987.

    Please call your doctor's office and ask the medical asst or receptionist for a copy of your lab work.

    By laws in many countries, you can get your lab and other medical records, so all you need to do is ask.

    Some of us on the forum are used to lab reports and can understand the levels.

    Maybe you are not converting T4 into T3.  I had that problem. We really need your labs, so call and some will e-mail it to you or fax it to you.

    250 mcg is a large dose.  So please get your labs so we can figure what is going on.

    Regards,

    Shelly

  • LAHs
    LAHs rachel80330

    Posted

    250mcgs is a colosal dose! Please post your levels with ranges. If your doc is not measuring  T3 he is flying blind. You might want to get reverse T3 in case everything is getting blocked at cell level - although that wouldn't affect your blood serum levels.
  • LAHs
    LAHs rachel80330

    Posted

    Another random thought. Are you sure it is 250 mcg and not 25mcg?
    • rachel80330
      rachel80330 LAHs

      Posted

      Its 250mcg ive been on 250 for over a year, levels go up then 3/28 they're down again but never been as low as this

      Ive email gp reception to see if I can have a copy

      I have never heard of them being as low I also have fibromyalgia and had a y en roux gastric bypass a year ago so don't know if its connected

  • Tutu123
    Tutu123 rachel80330

    Posted

    That sounds like a huge dose! It might be that it isn't converting the T3 hormone properly- you will need to request blood tests to confirm this (my GP doesn't test for thei unless I request it). There is a drug I have recently started taking in conjunction with levothryoxine called liothyronine (it's a T3 drug). This is expensive and may not be giving willingly, but worth a shot if that is the problem. If the doctor is still scratching his head, ask to be referred to an endocrinologist who may be able to shed some more light on it. (I only found out this was an option after eight years of being hypo). In my experience some GPs are really not well informed about thyroid issues and they aren't experts in everything, good luck! 
  • Tutu123
    Tutu123 rachel80330

    Posted

    Also forgot to mention, you may be deficient in certain nutrients that affect the absorption of thyroxine into the body (Thyroid UK website is probably the best place to go for an extensive list). Get these tested too 
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