Hypothyroidism

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Hi I've been diagnosed with an underactive thyroid for about 2 years now. I've been prescribed levothyroxine but only a low dose of 25 micro grams. Over the last year I've started having difficulty breathing through my nose and now over the last 7 months I have a Cronic cough and a tight chest. I still have the odd mood swing and I'm feeling tired. I also have aches and pains through my body. Do you think this has anything to do with the Levo thyroxine I'm taking? I was wondering if I should be taking T3 instead and what dose should I be taking and where should I be getting them from please? 

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  • Posted

    Do you have your latest blood test results? Get them to test your T3 levels that's the only way you will know if they are low. But some of the symptoms like tiredness, aches, mood swings etc ate reflective of underactive thyroid and possibly your levels are too low. Some people don't do well on levothyroxine (even at the higher doses) I know I didn't. Not sure if you're in the UK or not but most GPs have stopped prescribing t3 due to cost but I buy NDT online from America which is natural thyroid hormone from cows so contains a combination of t1, t2, t3 and T4. I felt much better on that. If you have your blood results it's much easier for people on this forum to give advice. Have you seen an endocrinologist yet? In my experience GPs aren't that knowledgeable about thyroid conditions (but if you have found one that is then hang on to them!!) smile

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  • Posted

    Interesting I have all of the above symptoms Michelle and wondered myself is it the Levothyroxine or the hypothyroidism ? I get it worse when my meds are increased to the point I struggle to breathe and have chest pains, I think the fatigue and aches with mood swings is certainly the hypothyroidism - however are you still hypo or is your TSH within tolerance now ?
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    • Posted

      Hi I'm only on a low dose myself. 25 micro grams. It's never been increased since I started taking them. I've been reading up that Levi thyroxine doesn't really do anything for u but not really that convinced yet. 

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  • Posted

    YES! Hello Michelle, there are literally thousands of posts here on the side effects of levothyroxin. This medication results in a myriad of side effects from flue like symptoms to cancer. Please check our discussions posted on side effects of levothyroxin. You should be able to find many other peoples' experiences that are similar. 

    In addition, please read the insert that comes with your medication for a full list of side effects, or go to the manufacturer's website to view a list of side effects.

    Many people experience side effects worse than the disease from the medication and eventually find other ways to treat thyroid disease that does not require the use of synthetic thyroxin.

    Thyroid disease is arguably always autoimmune disease. Synthetic levothyroxin is known to worsen thyroid disease, cause fibromiagya, and arthritis, cause liver lesions, as well as liver, thyroid and other cancers... the list of side effects continues with anxiety, heart disease... 

    Case studies show that this drug even on a low dose of 25mcg can cause liver lesions after as little as one month's use.

     

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    • Posted

      Oh that's worrying then. I'm only on a low dose. I used to get flu like symptoms but I just feel tired now and get the aches around my body and pains under my ribs. Should I be taking. Is it better to take T3s? My husband has been reading up on this and seems to think that levo thyroxine is no good for u. 

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  • Posted

    Yes.. levothyroxine does not work for everyone.  For myself it did.  That took about a year and getting my TSH levels down to around 1.00, which is where my endo said that patients should have there TSH on thyroid treatment in order to feel good/normal.  If your TSH level is around 1.00 and being you have been on your dose for 2 years now, if you don't feel better by now, then you should look for an alternative treatment.  Before I asked my doctor to be referred to an endocrinologist, who specialize in thyroid disorders, my doctor would tell me that my TSH level was great and did not need a higher dose, as long as my TSH was in range, even at the higher end of the range, well.. it wasn't.  I felt awful and hence the referral to an endo.  That's when the endo mentioned that my TSH should be around 1.00.  Since then, I finally feel great.  But like I mentioned, if your TSH is around 1.00 already and you still feel bad, then it is now time to look for another treatment option.

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