Hysterectomy for endometriosis and chronic pelvic pain ???
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Hi there everyone I am scheduled to have robotic surgery to remove endometriosis My uterus ,cervix and a bad ovary . The goal is to remove all the endometriosis that is possible. And doing a hysterectomy to stop the bleeding and the constant contracting of my uterus . One of my ovaries is severely damaged Endometriosis and removal of an endometrioma during my first laparoscopy last year . I can’t take her mono therapy or any drugs . There isn’t one pharmaceutical drug that I have ever taken I have not had really bad side effects. I have tried gluten free clean diet . Exercise and pain medication along with Nerve pain medication during my period. I have the laparoscopy last year to remove the Endo and I never felt better for exactly 9 months and then Bam all of my symptoms were back along with a huge Endo Belly. I’m going on 3 1/2 months of these nonstop symptoms . I went to every specialist and had all the testing in the world and everything came back normal between the G.I. doctor , GP And gyno. I’m literally cramping every single day of the month along with pain that comes and goes on my nerves . When my period comes I have five days of labor pains, back pain shooting pains in my legs and nausea fatigue and migraines . After my. I feel good for about 2 to 3 days and then back to all of the pain again . I would just love some input on anyone that has had a successful removal of endometriosis along with hysterectomy And how that is help to you ? I’m scheduled for surgery in three months from now . In the meantime I am doing gluten-free clean diet exercising i’m praying that it will go away . Top of it all I’m still not 100% convinced that I do not have ovarian cancer. They are going to check for that and take samples during surgery
0 likes, 3 replies
aitarg35939 april05305
Posted
Hi April
I had a total hysterectomy at 27, a few weeks after my laparoscopy. Doc planned on leaving the better ovary and was shocked at how bad & large it had become in those few weeks, so she had to take that, also. She warned me before surgery that in a few years we'd have to remove the ovary. Have your docs/surgeons mentioned that to you? Because if they leave one ovary (or any other repro organs), chances are they'll be coming back within 5 yrs to take those things out.
I had excellent results with my hysterectomy after about a year of adjustment. My skin thinned instantly so that now, in my 60s, i have the skin of an 85 year old woman. I took HRT, using conjugated hormones rather than the combined ones. Took them right up until endo returned when i was 54 & i needed a bowel resection.
Have had 10 good years since that surgery. It might be coming back now, or else my adhesions are going nuts.
There are no guarantees with this disease nor with the various treatments. I don't see them on here but i've known women who had everything removed in their 20s but never took any hormones. It's not an easy adjustment but women do it. Buy yourself some cooling sheets, a cool gel pillow, and a cooling bedpad from ikea. Plan to sleep nude. You'll still have nightsweats for a while but sooner or later they'll stop. You might have them even if you keep one ovary.
I hope & pray that your surgery goes even better than mine did.
april05305 aitarg35939
Posted
aitarg35939 april05305
Posted
In a heartbeat! But not everyone has the great results that I've had. Not once ever have i complained about not having all my organs or about having the total hysterectomy. So thankful for the pain-free decades. In my 30s i'd sometimes ealk past boxes of tampons for sale in grocery stores and think how glad i was not to have to buy that stuff any more or have my clothes stained.