Hysterical once you've hit the wall?

You betcha! At. Thanksgiving, with son's girlfriend's family, son arranged for me to have a guest room to rest in, when everything was too much. Boy! Did I need a break. I thought I'd collapse right at the table.I try never to get too hungry, or tired. Have to monster myself all day long. And when I need my bed, my meds, tea, something to eat, I mean, I really need it.

Sorry that you don't have good pain relief. Shame on your Drs. Tell them just how badly you do feel. I get oxycodone and norco, thank G-d. Couldn't sleep without my Xyrem, (sodium oxybate) either. We are invalids and must carve out our lives to protect our selves. It's never easy. You're not alone. Love, abby

Hello !  God , do I feel like that sometimes. If I push myself, as you say, like hitting a wall often collapse and my wife has to help me to bed via our stairlift. Recently I had a bout of Noravirus and then the pain was totally unbelievable. I tried to take my morphine and codeine  but it made me vomit so for about 12 hours crippling pain all over.  I should have called an ambulance looking back. The only thing I could do was shout out loud, for some reason that helped a bit. I think that it must be against the oath doctors take to allow a human being to suffer like this. I have telephoned for help. but GPs dont seem to care.I was rolled up into a ball all the time and could not move , my wife rang, but unless I could make it to the surgery I would get nothing. I thought doctors had to come out if you are so ill you cant move. I feel all doctors should be put through the same pain as ME sufferers get.

They might just realise it is not a joke or all in the mind as it has been proven to be countless times.Where the hell is compassion with ME. If you say I have MS

then they come running. ME has been shown to be worse than MS and recent surveys by charities put ME along side renal failure and even cancer pain.

And yet we are left sucking our thumbs and screaming inside with vitually no help.

I am sorry for you makeely98825 , but you are not alone. Keep up the fight.

I use herbs to control my moods and they work extremely well!

And recently I've started taking a very low dose of Propranalol, a Beta blocker, on prescription because I've been diagnosed with PTSD. There was research done that found that Propranalol at a low dose helps with ME, although it's not good at a higher dose. I feel so much calmer and with the herbs and the med I'm more stable as it eases the fight or flight response, or helps the parasymathetic nervous system responsible for rest and digest, It calms the heart and I can feel the difference in my heart beat. I used to get palpitations but I haven't had any recently and my heart beat feels more regular.

When we're in that frightful mood swing anxiety type state the sympathetic nervous system is more in control.

The herbs I use for my moods (which used to be extremely unbalanced) are St John's Wort (antidepressant); Damiana (antidepressant and energiser), Vervain (adaptogen or harmoniser for balance) and Kelp is very useful for the thyroid gland. I take Valerian (mild sedative) at night to help me get a good night's sleep.

Of course the herbs all contain other good properties and I'm physically somewhat better than I was and more able to cope all round. I'm nowhere well yet though but with the above help I'm more able to deal with the mental pressures of this illness and wondering if we'll ever get better.

It would be worth while for you to take a close look at your diet because something in it might be causing your wild moods?

The worst "hysteria" I had was one time when I was really exhausted and couldn't find my glasses. I looked everywhere and then my partner picked up my bag the wrong way up and they fell out of one of the pockets that I thought I'd checked. I just cried for a solid 15 minutes after that and spent the rest of the day in bed. I had to call in sick to work as well because I'd hit that wall of utter exhaustion. I've had a couple of equally bad days since but that was the first time I ever had to call in sick due to cfs. Sadly, not the last.

Yes! I believe loosing it due to fatigue is universal, but because we run into it often and seriously we may experience it more often. In my case it shows as anger, unfortunately for my surroundings. I cannot control it, only take myself away, into another room or out.

Keeping emotions at bay cost more energy. It might be an idea to find ways to 1) release them in a safe way. 2) try to pace so you do not find yourself in this situation in the first place.

1) My ways: when can: Scream! Walk. Exercise, on whatever level. sing. Sigh, deeply. Dream. Meditate.

Other suggestions would be welcome also to me.

2) Getting to that point is in my experience for two reasons: one is you just Do now and then, when it is all too much and you just want to be normal again. It passes. Secondly, when not pacing well enough. With good pacing the most severe exhaustion is avoided, and sometimes much more than that.