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I am 55 and have had RLS for at least 20 years. As is p...

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I am 55 and have had RLS for at least 20 years. As is predicted, it has got worse with age to the extent that I am now awake till about 4a.m. Then typically the symptoms wear off and I can usually sleep till about 8a.m. I may then go back to bed later now I am not at work.

I've tried various things over the years, such as exercise, massage, giving up caffeine and alcohol. Some things worked for a while, but thwe symptoms always came back after a while. I found Valium helped when I was prescribed it for something else, but my doctor wouldn't prescribe it for RLS.

At the moment I'm trying Codeine but it's early days yet, so can't tell whether it will work or not. Gentle massage always works, but you can't get to sleep while you are massaging and if you stop the symptoms come back!!

Some day hopefully there will be a cure.

[i:2563a1df35]This message was automatically imported from the original Patient Experience[/i:2563a1df35]

0 likes, 2 replies

2 Replies

  • Cleopatra_222
    Cleopatra_222 Guest

    Posted

    Hi

    Have you tried drinking tonic water before you go to bed, it works wonders for me

    Hope it works

    Michelle

  • kathy00483
    kathy00483 Guest

    Posted

    2 most effective things for me, soaking in a hot bath and using a bean bag as follows:  I make my bean bags with flannel and the cover with fleece.  8 inches by 20 inches, fill with approximately 6 cups of winter red hard wheat berries (so when laying flat about 1 inch high).  Heat in microwave for 2-3 minutes, take out and move around to mix wheat berries, and heat another 2-3 minutes.  Lie in bed face down with rear end up (looking cute:-), and bag at back of knees, between both legs, touching thighs and calfs.  Instant relief.  The wheat berries will stay warm for up to 30 minutes. Adjust legs to what is comfortable over time. 
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