I am 57 and have just stopped taking HRT after 7 years a...
Posted , 164 users are following.
I am 57 and have just stopped taking HRT after 7 years and am plagued with hot flushes and pins and needles in the fingers. I can find plenty of guidance on the menopause and why to/ not to use HRT, but nothing offering information on what happens when you stop HRT! Help!
[i:3f4831d826]This message was automatically imported from the original Patient Experience[/i:3f4831d826]
8 likes, 336 replies
yasmina09887 Guest
Posted
clo55015 Guest
Posted
I had the same problem and solved it by purchasing EstraDot patches from Canada. You still need a prescription from your MD. Look on the site for PharmacyChecker to see prices for Vivelle (brand) and Estradot (generic). Both are affordable.
You have to allow 2-4 weeks for delivery.
susan13140 Guest
Posted
I do not know how to start/post a new thread. As a new user I can use all the help I can get. Here's my question. I am 73 years old. I was on Estradiol creme, administered transdermally, for two and a half years to help my memory loss. Last summer my neurologist took me off saying what help I got initially is not long term. My symptoms of withdrawal were low energy, feeling punk, and a UTI that when cleared up still left a "pulsating, grabbing feeling" in the vaginal area------making it overall uncomfortable and specifically hard to sit for any length of time. My urologist put me back on a very low dose of Estradiol creme adminstered vaginally-----which after a month does not seem to help. An RN friend says that perhaps the stenosis I have in my lower back can involve the spinal cord in such a way as to irritate that area.
jennifer_03959 Guest
Posted
I am 72 yars old and have been on HRT since I was 46 years old. I had had major siurgery for peritonitis arriving through crohns disease. My GP in the Uk felt that the research showed that Crohns and hormonal change in female patients were closely linked and Crohns gives a predisposition to loss of bone density. He prescribed HRT ...Estragen has a known anti inflamatory effect/. When I was 60 I asked my GP an elderly male Frenchman if it was time to stop. He replied that he had 80 year olds on HRT and felt it was OK but sent me to a gyno...another Sympathetic 60 year old French man who prescribed more HRT kissed me on the chhek and wished me Bonne chance. 12 Years and two GPs later (one had retired the other commited suicide) I went to my new GP ,a young woman ,who was less than sympathetic and wouldn't give me a prescription saying that the symptoms only lasted 5 or so years.I pointed out that since I was 72 that I would probably be suffering until I dropped down dead of old age. I went to a femal,elderly gyno who said it was risky but agreed with me that my Crohns disease could flare up and I must decide whether the risk of a stroke was better than the risk of an ileostomy.
I signed a paper saying that I had been warned of the risks and went of with my prescription.
The truth is we are the first generation to be taking HRT into our old age .No one knows the facts and the research has not been done. We are guinea pigs for the next generastion of women. The only advice would be to follow your own judgement and avoid youn women doctors. You weigh the risks. It is YOUR body.
loretta63638 jennifer_03959
Posted
I am 60 years young, and right with you.... Hrt has giving me a better quality of life, everything is a risk. Including taking a walk, crossing the street, etc..... My doctor agrees with that theory and I thank God!
I found the right dose for my body and will continue until whenever the good Lord calls me home ! Prayers and peace, enjoy this life while your here. And just incase I hope my family dresses my body in HRT patches in my grave. 😉
Mars777 loretta63638
Posted
vanessa02778 jennifer_03959
Posted
Hi Lady's ,
i wrote a while back I am now 64 came of biodentical estrogen only ( no uterus )
was told to stop age 60,now after seeing to my Gino to talk about going back on the meds ( the one that took me off it)
Also after a seeing on her recommendation a female cardiologist who told me,I will increase my risk of a stroke if I go back on the HRT,but if I want I can give them a try for a max of 3 years.
The Gino just phoned me to say she will write me a proscription for the hormone.
Now I just don't know what to do stepping in again after 4 years no meds ...if I should take the risk or not?
Are there any more Lady's out there in a simulair situation it would be great to here from you.
Wishing you all well Vanessa.
ps sorry I do not know how to open a new discussion.
itasara vanessa02778
Posted
Hi Venessa, don't know what to say.. I was only off 4 months and am trying again every other day as I was quite miserable being off it. I also don't know what the latest info is about risk of stroke. I thought it was generally lower than what was reported years ago but could depend on your medical history. There isn't enough research far as I can tell especially with older women such as we are. I'll be 70 in March. If you feel good off of it, that is something to weigh into the decision. If you go on it and feel better, that too is something you'll need to decide. Do you have other factors that could lead to a stroke like high BP or high HDL cholesterol or poor circulation? Can some one scan your carotid arteries to see if there is good blood flow?
vanessa02778 itasara
Posted
Hi Itasara ,
Thanks for your response.
I still do not know what to do...
my HDL( good cholesterol ) is high which is good however my LDL cholesterol is a bit too high..not so good.
I do not smoke and am not over weight my circulation is not so good.
my blood pressure is ok.
when the Gino phoned me we spoke for about 25 min she was very nice and understanding.
I asked her if I was your sister what advise would you then give me,she said if you can do without it don't go back on it.
The dr is 55 and at the moment take HRT herself the female professor cardio is 62 and dose not use it.
I have never heard of a carotid scan may be worth checking out.
Best Wishe
Vanessa.
itasara vanessa02778
Posted
Vanessa, you wrote, "my HDL( good cholesterol ) is high which is good however my LDL cholesterol is a bit too high..not so good." That is pretty my situation and my doctors have said not to worry about it. I think it was an inherited level. No doc wants to give me cholesterol medication. I also am not overweight. My BP is usually fine although sometimes it jumps up when I am at the doctor's office, but that is not too unusual, and I never smoked, and other than MS and one bout of A-Fib three years ago and a D*C for polyps, I am basically in good shape. My circulation could be better if I exercised which I did for years, but have no desire to push myself further. Maybe you can ask your doctor what harm will come for you going back on it and then coming off if it becomes a problem. On the other hand if you go back on and come off it again could you then have a recurrence of hot flashes, etc? So I guess it comes down to Why do you want to go back on HRT? Also I don't think if it fair for anyone to tell you how long you can stay on it if you go on it and then like it and then 3 years later have to come off it. Rationally speaking, a lot depends on ongoing assessment and not just algorithms which is how medicine seems to be going these days, at least around here.
christine01730 Guest
Posted
itasara christine01730
Posted
elsie23713 christine01730
Posted
I wonder how you are now? Did you come off HRT?
I am 67, came off mine last April and thank goodness am feeling ok now. The hot flushes have diminished to almost nothing, just feel a bit hot now and again. I started Vagifem nearly two months ago and that has worked a treat, now just using it once or twice a week. Saw my GP yesterday and she has given me a repeat prescription for it now, got to see her again in six months time. I am very pleased with the results of that, feel normal again down there. Sex is better than ever. I thought it would be much worse when I came off the HRT but hasn't happened.
Best wishes to you all, I hope you resolve your problems, as I have done.
Elsie.
christine01730 Guest
Posted
sue47758 Guest
Posted
Take heart! I read in a forum similar to this that a lady had very gradually reduced her hrt over a number of months so I made up my mind to do it. Went gradually to the lowest dose then every other day until I felt I could let go altogether. I backed this up with Menopace and plenty of water and a sensible diet (nothing too stringent I might add!) and 12 months on I'm doing ok although it did take time and patience. Still have the odd night sweat and I do suffer with joint pain more since I stopped but I'm managing that with the help of my GP. So glad I stopped the on/off trying to do without my HRT and then going back on it. It wasn't easy but it also wasn't as bad as I thought it would be, I'm putting this on the forum to give others hope. Best of luck xx
Sue
patsy14312 sue47758
Posted
So happy to find this forum! I've been on the hrt journey a little over 10 years. Had a complete hysterectomy when I was 47 and came out of surgery with the estradiol patch. Transitioned pretty quickly to cream for about a yr then switched to a 2 mg pill. It took a moderate amount of time for my body to adjust but I eventually leveled out. I experienced hot flashes to some extent during my search for the most comfortable method of delivery. The patches seemed fairly effective but I became weary of the itchiness and skin irritation that accompanied. My gynecologist suggested using the cream. I was hesitant as it seemed the dosage would be too arbitrary and I didn't want to use more than necessary. Doctor opined that I couldn't use "too much" and told me to start out with a dot or two and adjust as my body dictated. I played around with the cream for a while. Loved some aspects of it but eventually just felt I wasn't being consistent enough with dosage to remain on an even keel so I opted for the pill route. I possibly wasn't using enough of the cream to calm all symptoms as I rarely exhausted my monthly supply. Once on the 2mg pill my life seemed to be back on an even keel for the most part and I continued somewhat contentedly on that route for a time. My PCP had "suggested" a few times that I might need to be looking for alternative treatment during the time I was still seeing my gynecologist. While I was receptive to his concern, I was also confident in the fact that my life would become hideous without hrt unless he had a good suggestion for an alternative, which he didn't. He suggested cold turkey. My gynecologist had a fit 😯 (Sort of) and told me to go ahead and quit if I wanted to get old, wrinkly skin and osteoporosis sooner than later! So...for a time I have been wrestling with fear of taking hrt and a fear of not taking hrt. Then my gynecologist decided to move away. Without his reassurances that it was ok to keep taking it, I decided to listen to the sage advice of my PCP and try to get off hrt. I tried cold turkey for about a week. No way!! Could not handle it. I don't want to die with hrt induced cancer or suffer heart valve damage but I was thinking "somebody just kill me now" if this is going to be my life. My desire to get off persisted though, so I began a little over a year ago weaning myself off. I began by skipping 1 day a week. That seemed to work ok without undue distress. Eventually I ramped up the "skipping" alternate days but got a bit too zealous and started having pretty serious symptoms again. Trial and error and consulting with my new PCP I've most recently settled into a routine of alternating days between 1 mg and 1/2 mg. I'm just preparing to start my next step/ down but just had one of those "light bulb came on" moments that has me searching the Internet at 1:00 in the morning. My step down plan seemed to be working out with very little of my "normal" symptoms (hot flashes, weird sensations in my head and just generally feeling crappy). Here's the part of my long, long story that prompted me to respond to your particular post. I've had mild to moderate hip pain off and on throughout this whole journey, but I've never really connected it with hrt. In the last 6 months the hip (and now lower leg) pain has worsened to the point of getting x-rays and physical therapy, neither of which has provided any answers or relief. Next up is an MRI, but tonight the ??came on when I read your comment about the pain in your legs. I'm interested to hear if others have experienced this and what remedies they might have tried besides otc or prescription pain meds. I'm tempted to resume my hrt to see if the pain goes away but I hate to have to restart the weaning off process if my ?? is just a weary brain making a wrong connection.
patricia10176 patsy14312
Posted
Hi Patsy, just read your report and I must clarify something. I was reading other reports where the ladies were having pains in their joints so I went to the doctors thinking they were connected with HRT, but no, It was diagnosed as osteoarthris. I still have it and now I am back in England I have just had another ex-Ray and getting blood test tomorrow morning. I don't think it is connected to HRT. I have been off HRT for six months now,I have been taking a multi vitamin and b12 to help. At the moment I am taking Tramadol/Paracetamol for the pain mostly in my hands and wrists, this is excellent and I feel great only I have lost my labedo and everyone says they are really strong. So that is what made me go to the doctors here in England.
I would like to go back on HRT because you only live once and I am only 67 I may live another 20 years yet. I am going to suggest reducing the HRT that I was on, or using a spray Estrogel in the morning and Progesterone tablet at night, a relative uses this. I know it may not suit me but I feel I need to go back on as It makes me feel human and not old, old and decrepit. Patsy it is your decision but my decision is to try and get back on it using a different one or different method of taking it and hopefully I will not hemerage again after six months.