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I am 70 and was diagnosed with Bronchiectasis 3 months a...

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Guest
Guest

I am 70 and was diagnosed with Bronchiectasis 3 months ago. I had been suffering bouts of ill health for 18 months prior to this diagnosis, i had been given blood teasts, copious breathing tests and was given a 9 month wait for a CT scan. I paid nearly £500 pounds to have a private scan, only to be told by my consultant during my next NHS appointemt, that the results had not been received. I am no nearer to finding out how to help myself than I was 18 months ago. I am finding the illness very ifficult to manage, mentally as well as physically as I am forever feeling tired. My immune system is extremely weak, and as a result I am not able to keep infections at bay. I am given regular doses of antbiotics, but these are only short term solutions. No body seems to be able to inform me as to the prognosis of such a disease.

[i:11afb44e5e]This message was automatically imported from the original Patient Experience[/i:11afb44e5e]

1 like, 4 replies

4 Replies

  • Guest
    Guest

    Posted

    try

    www.bronchiectasis.info

    for a great support group and lots of advice from all over the world

    [i:0824855b2c]This message was automatically imported from the original Patient Experience[/i:0824855b2c]

  • marcella34579
    marcella34579 Guest

    Posted

    Hi you have my empathy and sympathy. I'm 74 and up until September 2016 was I thought fit and healthy but following a procedure for a heart problem had a CT scan.  It was then discovered I had lower lobe Bronchiectasis. I was seen by a chest specialist but was not given a treatment plan. My next appointment with the consultant is in July. In the meantime all I was given was a steroid inhaler to be taken twice a day.  I have gone from walking three to four miles a day to having to sit down at the least bit of exertion.  I have not had any support from a respiratory nurse or a referral to a pulmonary rehabilitation group. I know there is no cure for this disease but there are ways of managing the condition alas! nobody seems to want to help. Just remember you are not alone although it might seem like it. I don't know where you live but there is an NHS pulmonary support group near you and you can insist that your GP refers you.  Good Luck and try and keep positive. 

  • tony_15641
    tony_15641 Guest

    Posted

    Hi i myself was like u antibotics for 2 yrs till i ad ct scan breathing test went to see consultant in feb was telled i ave bronchietsis was given tab 3 times day to help sputum thinner to get up ave since ad 2 lots of antibotics i ave the same symptons as u its not nice thing i myself is 66 yrs old i have gud days bad days where as leave u drained not got enegy ope this is bit of help for u tony
  • Vee2
    Vee2 Guest

    Posted

    For any one reading this, just to let you know the person posted the original post 12 years ago.

    Any one in UK may want to contact the British Lung Foundation, https://www.blf.org.uk/

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