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I am allergic to anticoagulants

Posted , 6 users are following.

Hailea
Hailea

Hi everyone

Sorry I have not been about much the last few days.

I went to hospital last Monday ( Bank Holiday ) My legs had swollen like tree trunks and had a little bruising and pain in my calf muscles at the back of my lower legs both sides but worse on operated side. I could no longer cope with the pain so went to A & E. The treated me with anticoagulants and sent me home. Over night the swelling went down but as soon as I got out of bed and started walking about as the day went on my legs got swollen and tight again with more bruising. My legs were so sore and tight I thought the skin was going to split. I haven't been able to walk very far only round the lounge for the last few days because of severe joint pain in knees both sides and right hip ( unoperated side ).

I have also been getting pains in other joints and most of my muscles. Turns out I was allergic to the anticoagulant A & E used on me from what my GP has told me. I have not knocked myself or done anything to injure myself but my body is covered in black bruising as if I had been used as a punching bag.

I have had very little sleerp too because my legs were so sore and nothing I could do to get comfortable.

I feel much better today but I am just going to take it easy till I can talk to my consultant next week. I have never in my life had pain like it and I thought it better to stay off the forum most of the time because I was so miserable mand felt I was going backwards not getting better as I was promised.

My right knee still has black brusing all around it and the back of the knee is still very swollen but I can now move without much pain although it is still there but bearable. I now know why even though I was dead against having the injectionsI know hoave a even better reason not to have them than just being scared of needles. Fingers crossed when I have my right hip done in about 14 weeks time they might just listen to me more now too. smile

0 likes, 14 replies

14 Replies

  • annedi
    annedi Hailea

    Posted

    Gosh that's bad luck Hailea. Hope you get better now. I'm on dispersible aspirin for my anticoagulant.
    • Hailea
      Hailea annedi

      Posted

      Hi Anne

      Thank you

      Yes so am I on the asperin. But A & E were erring on the side of caution thinking I had DVT. It wasn't thank goodness. But  at least I found out now not to have it now and not at a later date

    • annedi
      annedi Hailea

      Posted

      I had to go to AE thinking I had a  DVT and was there hours saw 2 docs and a nurse and in the end had a simple blood test to find I didn't have one - I'm sure it could be quicker and simpler - I wish you could go back to the hospital you had the hip op for the blood test.
    • Hailea
      Hailea annedi

      Posted

      I was at the same hgospital I had my OP in Anne. Just bank holiday and no consultant to go and see. I have a real bad needle phobia and if anyone even tried a blood test or a canular they are warned to not bother. I have had a good few doplar scans so it is easy to have a check without the needles.

       

  • Sredni393
    Sredni393 Hailea

    Posted

    You poor poor girl.  I was sent home and stopped the anti coagulants immediately.  Sometimes one should go with their intuitive instinct. How utterly utterly hopeless, telling you you'd get better. What was so difficult to work out with all that bruising.  Do you see just how fallible they are..... And with jabs it's out if your control.  It's not buyer beware, it's patient beware. You are remarkably mellow about it. Hope it doesn't hinder your recovery even more... Disgusting.... A horror story if ever there was one.  Hope you kept a diary esp of the conversations and the fobbing off.... Past the worst though, so keep positive...
    • Hailea
      Hailea Sredni393

      Posted

      I am only mellow because I am just waiting to let loose on my consultant when I see him. Honest he knows I do n ot hold back if I am not happy and he knows it. I am no push over. But it wasn't anything to do with my consultant or his team it was A& E so can't really blame him but he is going to have to do something about me getting mobile again because it is way too painful.
  • Guest
    Guest Hailea

    Posted

    Oh Hailea I am so sorry, but you know we here on the forum are here for good and bad . You should vent on us share it helps.  A troouble shared and all that. Glad though you are feeling a bit better. xx
    • Hailea
      Hailea Guest

      Posted

      Hi Gilcat how are you ?

      It's ok I am quite a private person so tend to keep it locked up till I see someone who can deal with my issues and then wam they get both barrels.lol

  • MoDem01
    MoDem01 Hailea

    Posted

    Hi Hailea.  So sorry to hear you are having so much trouble.  Hope your next op goes better and you'll soon be up and running.  When you are down you should get in touch with the forum as we can help you get through your troubles.  I will be thinking of you and wish you all the best for next week. Lots of hugs xx
  • renee01952
    renee01952 Hailea

    Posted

    good morning hailea .. how are you doing ?  good Lord, you must be so upset (understatement???) -  what are you taking now?  as said: you can always vent here ... take care of your self today - warm hug
    • Hailea
      Hailea renee01952

      Posted

      Hi renee

      I'm ok sort of. Good phases and bad phase through out the day. Was ok when I woke up. got out of bed and now it feels like my legs ae on fire again but thankully not much swelling. not sure if I can wait till my appointment next Monday. I know my consultant as a clinic tomorrow so might jus take a chance and turn up at that without  appointmet. See how it goes

  • dot60135
    dot60135 Hailea

    Posted

    Hi Hailea,

    I am sorry to hear that you are going through so much and sincerely hope it all gets sorted out soon, have they identified what constituent/s of the anti-coagulant is responsible for your allergy?

    My LTHR was carried out as an emergency following an accident so when I was admitted I told the doctors that due to my "porcine" allergy certain anti-coags could not be used (porcine products cause anaphylaxis in me). All of the staff were not aware that porcine was a constituent and it caused a delay whilst they obtained the one drug that was safe for me (they also checked the prosthesis and cement constituents).

    Yesterday I received a prescription for Alendronic Acid and Adcal-D3 through the post, one of the constituents in Alendronic Acid is made from either bovine or porcine products but which has been used is not stated on the batches. As AA has a very long half life (10.9yrs)  (time it takes to be excreted from the body) a 70mg dose could be potentially life threatening and my epipen would not be effective.

    So what I am trying to say is that not all doctors know the pharmacology of all drugs and your allergy needs fully identified so that you can both make madical staff aware and check for yourself the safety of what you are taking.

    Very best wishes, Dot.

    • Hailea
      Hailea dot60135

      Posted

      Hi Dot

      Yes I know I have got to get to the bottom of this. I have another hip to be done in about 12 weeks ( My right one ) I wasn't supposed to have been given the medication any way because it can cause asthma flare ups too but they wouldn't listen. So been having a few episodes with  my normally well controlled asthma too. One of the many reasons my consultant put me on Aspirin. You seem to have a big issue with your allergy. There isn't much I am allergic too but the few things I am are mainly medical I can't use hospital plasters I am allergic to the glue they use and have to provide my own for anything I have done that requires them.  Thank you for your very helpful post Dot x

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