i am at my wit's end with all of this pain after my thyroidectomy last year
Posted , 41 users are following.
I had my throid removed 13 months ago because i had a nodule that was pressing on my windpipe. I was put on Levothyroxine. (prior to this i hardly ever got sick or had any ailments) All of a sudden I started getting severe headaches..to the point they thought it was temporal arteritis & sliced my head open to find out thats not what it was. the headaches are not nearly severe but prior to this i got a headache once a year if i was lucky. (I am now going to a rhemotolgist because of all of body pain> he tells me both my shoulders are frozen. i have pain in shoulders. knees, tailbone, knees sometimes, wrists feels like someone is constantly kicking me in my ribs & now my feet are horrible especially the left one. they thought it was a stress fracture but they said no. I have never been in so much pain in my life every day. I am a very strong person emotionally. This week alone I have cried myself to sleep three different times. And if all that isn't bad enough. I am only getting about 2.5 hours of sleep a night. not by choice. i can not stay asleep. i have been looking online for days for a forum like this just to be able to have others to talk to who can understand & appreciated how you feel...any one else have any similar story or any suggestions??
4 likes, 58 replies
MtViewCatherine sweetpea2936
Posted
To recover, I also did acupuncture, major cleansing, completely gluten-free diet, boron supplementation, and of course the Natural Dessicated Thyroid without any allergenic additives. Turneric or turmneric with bromelin will help with the inflamation and all over pain.
Hope that helps. No, you aren't crazy. Yes, this stuff causes major problems. I've never met anyone who could take the synthetic. They all say it doesn't work. The drug companies basically take a natural product and tweek it so they can get a patent and make it in the lab. So by definition (a tweeked hormone) it can't possibly work properly. One argument is that the synthetic is better regulated for the dosage concentration. Totally not true, since (at least her in the US), drug companies are allowed to have a 10% variation in the concentration, so you could get as much as a 20% difference in dosage (with the synthetic) between batches. So even the dosage argument isn't valid.
From my experience, I'd say get off the synthetic ASAP and onto a prescription natural dessicated Thyroid. If your doctor won't work with you, find one who will. At the time I was first dealing with my thyroid issue I was also going to a counselor, who advised me to shop doctors unitl I found one who could help me. That was great advise! Don't waste time on doctors who aren't helping. Your health is too important!
Good luck!
Catherine
margaret89120 sweetpea2936
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meryem15584 sweetpea2936
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I also had a total thyroidectomy in June (10 months ago) also due to Multi nodule goitre, I had many many nodes on my thyroid gland almost so many that doctors were surprised, and over a 10 year check up process initially from 4 nodes increasing to countless amounts where it was putting pressure on my windpipe, so I opt for a thyroidectomy.
And ever since my life has basically been HELL!
NOT TO MENTION THE ILL TREATMENT FROM MY GP!
My Energy levels are low. Mood is low. Body always aching. Unstable emotions, feel sad a blue. Hair slightly thinning. gaining weight and I've just recently found out my liver function tests have come back abnormal.
I mean I'm only 23 and I almost feel like I'm 63!
I feel like these symptoms have only started after my totally thyroidectomy.
I really hope you feel better and do you have any tips which make you feel better ?
sweetpea2936
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sue71351 sweetpea2936
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MtViewCatherine sue71351
Posted
dww25 sweetpea2936
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After that I made the decision to come off the whole lot because it was affecting my quality of life severely. It's now a month on from when I stopped taking this stuff but I'm now back to normal (p.s. I power walk. run about 18 miles a week and do a whole load of other outdoor activities). It's probably going to affect me down the road but my quality of life is great once again.
P.s. I wouldn't advise that you do what I've done though for obvious reasons.
Best wishes
DW
sweetpea2936
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dave19724 sweetpea2936
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A week ago I changed my thyroid medication from Armour thyroid (NDT) to Synthroid for two reasons, one because the Armour is not preventing fatigue, sleeping problems, pain, lack of concentration etc and the second my concern that it could cause heart problems (which is the last thing I need).
After reading comments about Synthroid and my experience with Armour, I get the feeling that alot of the so called specialist doctors do not have a clue on how to treat these problems. They seem to go through a few steps of treatment without fully understanding or thinking each patients individual syptoms.
I hope things start getting better for you, if you find any combination of drugs which help you, could you please post them here so that I can get my doctor to try them.
Thanks Dave
Toya_c38968 sweetpea2936
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rachy35 Toya_c38968
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calin18859 sweetpea2936
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Hi all,
My story is very similar and for years after the surgery I was in deep pain, insomnia, depression and mood swings. I managed to improve my well being by taking t3 hormones along side with t4 and splitting the dose in 3 (morning lunch and evening). One of the worst was the insomnia and it got better after i started to take hormones in the evening - i believe it was caused by hypothyroidism in the night as the hormones were consumed during the day.
Other things that help is physiotherapy, exercise (stretching and core muscle exercises), light healthy diet (veggies fruits, less sugar and fried stuff) and being around positive people .
For me it is more like a journey to improve my life quality day by day. I do not expect to get back to my old self as that just adds pressure on me but would be nice if i can get there.
Good luck and i am hoping that my experience can be of help to you.
tonie83461 sweetpea2936
Posted
you have described my symptoms aches and pains right to a T. I'm yrs old had a complete thyroidectomy 18 mths ago and been experiencing this since then. Actually I had some of this before but not to the extent and severity as now. Had Graves disese along with Hyperthyroidism with goiter and nodules. They did the radioactive iodine killed the thyroid but not the nodules. The nodules took over and I still had hyper as well as hypo symptoms. It was a nightmare. I am taking mcg of levothyroxine every day as well as calcium, D3 and Termeric. I am almost always in pain especially my feet, especially the left one. hips, legs, knees, wrists and hands just about my whole body. I am active swim 3 times a week ride a stationary bike 4 to 6 times a week for 10 miles each time. Used to walk 2 to 4 miles a day. I can no longer do this as my feet hurt so much it's unbearable. Been pretty depressed, been to a doctore and he wants me to go to therapy for my back?....I'm tired most of the time don't sleep well and never feel rested when I wake up. I attributed all of this to aging and arthritus. I'm told I don't have arthritus except maby in my lower back area. Have been active all my life. Have gained over 30lbs since surgery no matter how little I eat. have not eaten gluten in 6 yrs. do not eat processed foods or anything that isn't organic. I'm miserable and irratable as hell sometimes feeling that life is not liveable anymore. I'm not feeling sorry for myself but am tired of being in pain all the time. Have no idea what to do about it and feel that the docs aren't on board.
MtViewCatherine tonie83461
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Hi Tonie, I sent you a PM. Hope it's helpful.
tonie83461 MtViewCatherine
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thank you so much Catherine. I've been so desperate to get back to my old energy levels and pain free. Have actually been reluctant to discuss this with my Doctors or anyone for fear of being told it was "all in my head", Had that experience once before and I almost bled to death when one of the Docs ( the 6th) took one look at me and ordered a a blood count. They immediately rushed my into emergency and gave me 7 pints of blood and then they stopped to let my body make the rest. Still bled and had to have an emergency hysterectomy. One of the doctors said it was allergies even though the test said no. So I'm a bit gun shy so to speak. I try not to take any perscription drugs and usually refuse them. So I guess I'm a difficult patient I will look into your suggestions starting today. Thanks again
MtViewCatherine tonie83461
Posted
The docs are mostly morons, taught what to think, not how to think. I was turned away when I went to the doc for appendicitis, broken foot, pretty much anything I've tried to get treatment for, the protocol is diagnose nothing, do a bunch of expensive and invasive tests, still diagnose nothing, send me to gyno, more tests, freak out about cysts on ovaries, diagnose nothing. Oh, by the way, my appendix burst and I had ten years of paritonitis, which caused the escalation of the thyroid disease, oh and of course, those ovarian cysts that kept alternating side? Oh yeah, that's what ovaries are supposed to do when they make eggs.
i recently stayed with my mom in hospital and rehab. I was on a knee scooter with a broken foot, In a month they didn't get a single day right of either her meals or her meds. Constantly gave her unnecessary meds, got the doses way too high, wouldn't stop without docs permission, tons of drugs for poo and pee... Completely ridiculous!
So,
katie22660 tonie83461
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jilena_0435 tonie83461
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Hi, I'm diagnosed now with a similar situation and I am considering doing things alternativly first by focusing on sorting out the autoimmune antibodies and improving my immune system. What do you think?
The radio iodine and the surgery just seems to not be the answer based on the patients testimonies
How are you doing now?
MtViewCatherine jilena_0435
Posted
Hi Jilena, I've gone the holistic/ natural route and am doing better than with the meds.
My recipe is amino acids, glutenfree paleo diet, acupuncture, supplements, cleansing.
I was so bad after the meds that it's been impossible to get back to a regular exercise routine, as everything is very painful. I know that once I can increase my exercise and build up my strength, I'll be a lot more like myself.
peta69906 MtViewCatherine
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May i please ask how its helping.
my story is, i had a partial thyroidectomy 18 mths ago, never put on thyroxine as apparently my levels are ok.
Since then I've had chest pains but nothing showing on ecg, angiograms etc.
i get really bad aches all over literally every 3 weeks, almost like a flu all over ache and just need to lay down.
maybe what you mentioned above might help.