I am going crazy. unexplained suffering for 4 yrs now

Have you been to a neurologist? I would look up occipital neuralgia. That's what I have. You could also look up silent migraine. Try going to Face Book and look up occipital neuralgia in groups and join one. See if that is your issue.

for me 15 years of bilateral vestibular loss. middle ear dead. mobility difficult even with a walker. my motto, one day at a time.............. cheers

p.s. have your middle ear checked...........

Several years ago I was under tremendous pressure taking care of 4 kids, trying to please a very disgruntled husband and earning a living sewing belts and accessories for department stores. It was tremendously overwhelming. I caught a virus and was awfully sick for weeks. my whole life was turned upside down. after the virus my brain was in a fog off and on. plus my energy level fell way down. I had sharp pains in my body and head and my thinking was worse. I went to a neurologist after going to many doctors without a diagnosis. I was at my wits end. The neurologist said I had chronic fatigue syndrome. Right then my whole life changed changed for the worse. I suffered with that nightmare illness forever that was 30 years ago. The reason I'm sharing with you is because I don't want you to go through the hell I went through. An the stress I was under is what pushed me over to the illness. I had to change my whole life from over performing to under performing. I had to take antidepressants which helped my brain fog and panic attacks. You can have a brain that is chemically unbalanced due to stress and over achieving and not feel depressed. It takes An antidepressant to get your chemicals in your brain to get back to normal. Also over thinking about everything and physical troubles doesn't help. I sought the Lord's Grace and peace and began to get better. Please think about your life- what's important- I use to spend my life trying to do it all

I had to stop. just giving you a little insight into what I went through so perhaps you can realize there are things in your life that are horribly stressful. Thank God it isn't serious enough to kill you. It made me wish I was dead a thousand times and I really believed in God too. I had to change because I had no other choice. Perhaps you can calm down and check your life out. You may not even be like I was. I just saw myself the way I was before I got really sick in your cry for help.

hi. I had all of your symptoms and more by the time I was diagnosed with an auto immune disorder. Not diagnosed til my 40s. There Re many random seemingly unconnected symptoms. Your low vit d and b12 make me feel there could be an ai issue there. V common amongst fellow sufferers but then low vit d is common anyway. I am not sure what to tell you except I am happy to message you my story...shortened version and how I got diagnosed. But basically I was diagnosed by an immunologist after failing to get anywhere with rheumatology...gastroenterology or a neuro. I knew there was an underlying problem for me but it was a very difficult road to diagnosis. With blood tests please have them check ai markers like esr crp and ana. These can give some clues though frustratingly not always out of whack even for me when there is intense disease activity.

Zeena I am so sorry of your symptoms.

I have had exactly the same, every day for 3 1/2 years.

April 2017 I had surgery, a Radical Trans Mastoid Labyrinthectomy. I now have unilateral deaf and my symptoms are worse.

The worse part about this hell is nobody can see it. I just wont everyone I know to have it for 10 minutes so they understand.

The only thing I can say after the horse had bolted, is I remember having a course of antibiotics for H-Pilori and now know that any antibiotic ending in the word 'Mycin' can be potentially Ottotoxic. Just something to think about historically.

So sorry I cant be of any more help.

Jason

There is no test for Occipital Neurolgia. Your doctor would give you a nerve block shot and it will either help or do nothing. If you have ON then you would have pain that can run from the base of your neck up and over the top of your head. You neck muscles on the left and or right side will also be tight and sore. It's worth investigating if you have those symptoms.

will do thanks