I am now a proud owner of LS
Posted , 9 users are following.
After massive pain for several months my GP sent me to a dermatologist and now I have been diagnosed with LS.
Extremely painful. Within weeks it has spread to the crease of my legs.
I am on colebostal but have been instructed to only use when I have a flare up. Well it has been since August of last year and I feel the flare up has not gone away.
I have been reading this forum so I bought EMU oil and have just started that.
I have virtiligo on my legs and when I saw the white patches growing on my genitals I just assumed it was my virtiligo spreading.
I realize this will never go away.
My questions is this: The ointment and Vaseline stains all of my panties and bedding.
I try to go pantiless as much as possible because it is mostly on the crease of my legs and my anus.
Any recommendations please help.
I would also like to add: No one has ever heard of this condition. They thought at the beginning I had vaginal sceriosis.
I now have 4 autoimmune diseases and I am only 50.
Virtiligo
Sceriosos
Linchen Sclerosis.
Is this all part of the same family? I am trying to find a correlation.
Any advice or tips I would be eternally grateful.
0 likes, 9 replies
sandra00110558 Alex1968
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sandra00110558 Alex1968
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ann67814 Alex1968
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Have you watched Professor Goldsteins lecture? The link is on the Patient site. Good luck.
Alex1968 ann67814
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Can you explain this to me please?
Wee_Dugie Alex1968
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*In terms of your use of Clobetasol - as I use this regularly too for my LS, you must ensure you thoroughly apply it to gain any benefit from it. I mainly use it on a daily basis on the area that is most infected, only. I spend 2-3 minutes applying it, then a further 2 - 5 minutes massaging it in. As your flare up does note seem to be subsiding, I would also start to go through what you eat regularly, are there processed foods, sugars that you can eliminate, for example? One recommendation I have seen often on here is to go gluten free.
I can highly recommend you regularly follow the discussions on here as there any many tips of what you can do to alleviate LS itself, and dietary considerations to prevent flaring and spreading of the condition.
Good Luck - W.D.
Alex1968 Wee_Dugie
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It is greatly appreciated.
Guppy007 Alex1968
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Hi Alex, I think once you get one autoimmune disorder it can open the doors to others..I have Ulcerative Colitis, Lichen Sclerosus, Oral Lichen Planus, Spondyloarthritis,and I was recently diagnosed with Lupus.
With regard to your continuing symptoms, my suggestion would be to try going gluten free, a couple of months should give you an idea if it is working for you, if you are feeling some relief, because for some women this is like BINGO!! All the while you must cut out excessive sugar as everyone pretty must agrees that sugar is the worst thing for LS flare ups. If you see no relief from going gluten free you should then try cutting out all dairy products.
hanny32508 Alex1968
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This whole package makes for good maintenance of all. The LS stays nicely under control.
Alex1968 hanny32508
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