I am plagued with ectopic heartbeats and have lapsed int...

Posted , 67 users are following.

I am plagued with ectopic heartbeats and have lapsed into AF upon many occasions. I am only early 40s and these irregular beats have ruined my life. I have a rare illness antiphospholipid syndrome, which as a blood clotting disorder is clearly partly responsible.

My biggest problem is that the runs of ectopics always have one thing in common when they manifest themselves - there is always severe gastrointestinal activity just prior to the attack and it precipitates the ectopics so much, I get runs of 5 ectopics for every one beat, which makes me feel faint and sick.

I take Bisoprolol in a very low dose 1.25mg, as I develop bradycardia with higher doses.It helps to keep the heart rate under control but does not really supress the ectopic beats.

I am convinced that the ectopics are brought on by sphincter incompetence and gullet spasm, and severe flatulence(if I "bring up" loads of wind, the ectopics ease greatly or vanish for the day) Nobody even my GP can definitely confirm a correlation between the severe GI disturbances and the ectopics.I would welcome a paper on this subject which I could read or to know if others share this same set of symptoms.I feel if I can prove the link, I will be taken more seriously and maybe even be halfway to finding a solution.

I lost my job three years ago and have never worked since, largely due to MS type symptoms I suffer with my illness but the added ectopics and AF attacks make everything far worse.I would quite literally try anything non invasive to alter my life to something reasonable again !! I have kept a diary and have proved that my ectopics are provoked by GI problems but I can't find anything on the web that confirms this .Reassurance would be so helpful !

[i:74d91e7be8]This message was automatically imported from the original Patient Experience[/i:74d91e7be8]

4 likes, 103 replies

103 Replies

Prev
  • Posted

    Hi All... I'm 45 male and new to this. I had kidney Stone operation in January 2016. As I have had bypass surgery 8 years ago... I was checked with treadmill test and 24 hr holter monitor. That time I has 3 PACs. Started feeling skipped beats few months later... had a 24 hr holter again and was diagnosed in July 2016 with 6 PACS and 12 PVCs in 24 hour. Today is 11th September 2016 and I have felt and recorded 28 ectopic beats in 12 hours. I'm worried that they will continue to increase. Anyone know what to do?

  • Posted

    I have had ectopic bests for 35 years! They are always connected with gastrointestinal disturbance of some kind. I have had severe AF too but had a cardiac ablation for this a couple of years ago. They do interfere so horribly with my life. I, like you wish someone would do some research into the gadyro connection with the ectopic beats. I have put myself onto a FODMAPS diet in order to keep the irritable bowel under control as much SD possible. Wish someone could help us!
  • Posted

    I'm having same problem. Had upset left stomach problems for about 7 years. Now nothing shows on any test/scan. I've started getting eptopic heartbeats which are scariest things ever! I'm waiting for a 24 hour monitor but I was wondering if it could be linked to my stomach issues as I'm a normal weight 34 year old that has never smoked never drank coffee. I do drink alcohol but cut down lots over last 3 years do just unsure why this is happening to me!

  • Posted

    Hello!  You are right on with the GI connection and I wish a prominent EP would experience the connection and just figure out a cure for all of us.  Yes, I have read on this forum so often that there is a GI link!  I take an Alka Seltzer with bad runs or SVT and it really helps. Always carry one with me. Funny you mention MS symptoms as after my last ablation for ectopics (which did not cure me of them), I experienced left sided cramping. I think I drove myself into an anxiety stroke and still experience these symtoms from time to time.  My best advice to you is to get a job, any job to keep your mind off the ectopics and just learn to TRY to ignore them as hard as that sounds. Mine have gotten better but I still have them every day and night and stress really fuels them.  This forum helped me the most as I felst no one else had this horrible malady. We are all here to help each other and hopefully some one will find a cure.  keep posting.
  • Posted

    Hi there yes I also have a lot of feeling that I need to burp be4 and episode of eptopic beats start am so scared all the time had 4 24 hr heart tracing monitor of the years all normal showed up infrequent eptopics and was told by my doctor who is wonderful that my anxiety drives my eptopics as I suffer from severe anxiety and scared all the time she's refferd me to see a syciatrist to see if this can help. me I am. One propranolol but I don't think the help I have cut out all caffeine I Dnt smoke or drink I am over weight and ate to much sugar which I know can also trigger the as there is caffeine in chocolate .I am trying everything I find strong cheese not that eat much cheese eating too late at nite also laying down can be the worst time then just get them randomly x

  • Posted

    Hi there

    I totally agree with you, and sympathise with you. It is most definatly trigged by gas in the stomach. I tried explaining this to my doc and the cardiologist but they had no answer, instead looked at me like i was a wierdo. I also find after burping that the ectopics ease or disapear. But they do definatly occur when i feel a build up of gas.

    i get the ectopics many times daily which can last upto 10 min at a time. Worst feeling in th world, the fluttering like a fish flapping around in your chest which occasionally stops me breathing as they are happening.

    Been to many doctors and they all say nothing to worry about and everyone gets them. I can garuntee that not everyone gets them like we all do in this forum. It is pretty worrying not knowing when thy will go away or if it will be ok. does anyone get the yawns straight after? after my episodesi go into yawnning mode and yawn for about 5 min, feel like going to sleep how tired it makes me afterwards.

    I dont know anymore i just have to trust the doctors that it is nothing to worry about. Ive had them now for 15 years. Gennerrally getting worse andmore frequent in age (42 now). non smoker, dont drink coffee. but do binge on alcohol time to time. doesnt help as the ectopics go wild the next day on a hangover every time i try to move it triggers them.

    I too welcome the paper to prove ectopics are trigged by stomach gasses and dicipate after burping.

    • Posted

      That's really interesting because when my reflux is very bad and so are the ectopics, I daren't move. Any idea why? I definitely think the vagus nerve is the problem but how do we treat that? I find it so uncomfortable and makes me very anxious 😩 

    • Posted

      It’s so horrible I’m new to then 13days I absolutely no let up every minute of the day several times in the minute. Feel constantly drained with it and feel generally awful!! Is this normal to feel this way?x
  • Posted

    I also have many ectopic beats which seem to be largely exacerbated by stomach and esophageal activity. I have suffered with this intermittent problem for 4 years. 

    Sometimes both GI symptoms and stress (elevated adrenaline, cortisol etc.) need to be present for a bad episode to occur. 

    Because stress is ubiquitous, I think it's important to place importance on the GI issues being a direct cause of palpitations. Due to vagus nerve location it is abundantly obvious how this factor contributes to irregular heartbeat. 

    • Posted

      In awe of the comments relating to stomach issues. I for about 13 days have had continuous ectopic beats never had in my life. I have been to GP and be then out of hours for a heart trace and it’s been picked up at ventricular ectopic. Now I have a question do you suffer a horrible feeling when these are happening? I have had no let up and I feel tired on edge and generally crappy! I wish it would leave beta blockers also aren’t helping!xx
  • Posted

    Oh my yes!!!!! I actually describe this phenomenon as the chicken or the egg!  I wake up, racing heart, fire spreading across my chest, arms, and face...then know i need to get to the bathroom for diarrhea. This is completely opposite to what our body’s flight or fight response is. In fight or flight, our GI system should halt, to allow us the energy towards escaping threat. I mean, animals dont stop to take a poop when their life is on the line!  I firmly agree with you! And i have begun thinking that alcohol before or close to bedtime and also chocolate, have been suspicious towards causing this for me. 

    I agree that a research paper needs to be considered. Glad you posted. This has been frustrating for me to understand the correlation 

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.