I am so bloody confused!!

This is very very interesting Samantha! It could very well be both urine and immune system related. I’m going to remove urine over the next few weeks by having my foreskin retracted and I’m going to see if it affects things but only after 2 days it’s already looking promising.

I’m glad you’re sorting yourself out ! 

I believe constant contact with urine can lead to a breakdown in the skin, causing a weakness in our immune system that allows the LS/ BXO to rear its ugly head. I was suffering from stress incontinence when running, jumping, lifting things, sneezing, and when I had the flu in Jan/ Feb and was coughing alot, I def squirted on myself alot. In March I began having pain and itch, after sex it was worse, by April it was getting really irritating and in May I saw Dr for first time. They thought it was Herpes with blisters, redness pain, etc. but all tests were negative and June biopsy showed LS. I think the urine squirts ( sometimes changed panties 3-4 x a day) destroyed the integrity of my skin and allowed the LS to manifest itself. 

Hey Karen, the more I hear the more I’m becoming convinced that both urine and a weak immune system equals LS. If it was just urine everybody would have it but when you combine that with a autoimmune disorder which only a few people have it gives birth to LS. One of my my friends who also suffers from LS removed urine out of the equation and he has managed to put LS into remission.

How can you "remove urine out of the equation?"  Just curious.

For us men, it's a case of retracting the foreskin all the time so that no urine makes contact with the glans. The foreskin is the perfect enclosure which takes the tinniest bit of pee and covers it all over the glans, so by retracting the skin you're avoiding all of this. Of course a lot men get a circumcision as well but that's very extreme in my opinion.

For women it's probably tricker to avoid urine unless you pee through a funnel or something?! As alot of women mention on here, they spray down with borax afterwards which takes the acidity out of the urine thus taking away a huge irritant.

Good luck, I think it makes a difference for me when I use the borax spray after 70% of my toilet breaks - work ones not possible. Let us know how you get on in a few weeks as it takes time to calm down. The brown 2” line of mine hasn’t gone away, but hasn’t deteriorated in the last few years so I think it helps.

Urine should not be much of an issue for anyone if they were using an appropriate genital hygiene regime. While I acknowledge, at least from the male perspective, as you age the ability to be certain that on each toilet visit ensuring that you are 100% emptied-out of urine, and can therefore wash with water, or use toilet tissue to remove urine residue safe, or confident in the knowledge that no further urine will leak out - is increasingly difficult to achieve.

It is a simple fact of nature, we are not fitted with some sort of tap where we close-off any possibility of further urine leakage after ANY toilet visit. This is why I have recommended on many occasions that gaining control over Pelvic Floor muscles (PB muscles in men) by exercising them regularly is a good practice to put in place.

Here again, it is pure fact that you will get very few Westernised Medicine Practitioners that will insist that their patients learn how to correctly do Kegel exercises / PB Muscle groups so that they have better control over urine flow! What is it with Westernised Medicine that they do not encourage prevention of issues, and tell patients how to prevent hygiene issues related to leakage of urine!!!

Essentially, Tweetemepete, your LS will always be present in your skin of your penis - unless you have NOT actually had LS in the first place. - Again for other readers, the presence or absence of any form of Balanitis can ONLY be confirmed by a medical Biopsy. - What it sounds like you may be achieving is starting down the road of it ever causing a flare-up or other visual presence. By strengthening your immune system and maintaining the correct foods, and eliminating the wrong foods from what you eat EVERYDAY - as well as finding the right balance mineral and vitamin supplements - LS is not something you may never have to contend with again. Other than, keeping your immune system correctly balanced for the rest of your life, of course.

And really, a medical system that really cares about the human condition should be giving people the knowledge of how our immune system can be kept in the correct balance in the first place !!! Surely clearly informing people should be what is available to everyone, then, people can make their own individual choice as to what - if any, dietary regime they wish to follow.

Perhaps you could keep us posted with how you are getting on in several more months time. What would be really good is that if you find that in 8 or 10 months time that your LS has not shown itself again that you create your own post detailing the essential steps of how you overcame your LS ......