I am so glad I found this forum.

Posted , 5 users are following.

 I have been suffering from extreme vertigo for almost 2 months now.  I was diagnosed with Labyrinthitis. I was feeling better then my doctor ordered some blood tests and went I went I fainted. Now it is back even worse. I have been so dizzy and nauseated for days now. I have lost my job and have not been able to work in 2 months. Serc does not work anymore and I am so depressed. I sit in the dark room while my husband takes care of me. I am seeing a specialist in a month. I wish it was sooner this is horrible sad

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  • Posted

    Hi Lee.. I know it seems impossible right now but it does get better. I got my 3rd bout of labrynthitis/vestibular neuritis June 2016... I am better now but it took 8 months to get here. Mainly because I wasn't doing the right things. I laid in bed a lot, didn't work for over 3 months. Luckily I had the time to use for work. Ultimately I had to leave my job of 12 years and get another job with less stress and leas stimuli. So what helped me?? Vestibular therapy. It was a life saver. Initially you will probably feel worse as it stimulates dizziness. The purpose of to retrain the brain. It does work. I don't know all of your symptoms but for me I had dizziness, imbalance, rocking sensations and my vision was impacted. I was willing to try anything. I stopped the meds because they only mask the symptoms and dedicated myself to doing the rehab and forcing myself out of bed and moving around. You will find each day will get better. I'm still not 100% I'm around 85-90%. Still a work in progress but so much better. You can look up the exercises on YouTube and start them until you can get into a dr to send you to the rehab. Hope you feel better real soon. Stay positive.

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    • Posted

       Hi Tneesha,

       Thank you so much for the response.  Were you also nauseated? At first, I did not have nausea but now I am so dizzy and with nausea. I will definitely try the therapy. When I phoned to book an appointment the therapist said he could not help me because I do not have BPPV. I will phone another place and try there smile

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    • Posted

      Make sure that you are asking for vestibular rehabilitation therapy. Epley maneuver is used for BPPV and not VRT. It, VRT, is fairly standard therapy for a physical therapist.
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    • Posted

      Yes I was very nauseous. Not to be too graphic but I was vomiting daily. I couldn't even go on a dive without having to stop to vomit. I didn't have BPPV, I had vestibular neuritis. I first had labrynthitis 16 years ago and was left with damage to the nerve in the ear (that's the end result of what we have) each subsequesnt time it's then called vestibular neuritis. At least that's how it was explained to me by my specialist. My ENT sent me to vestibular rehab but I had to wait weeks to get in that's why I started searching YouTube. We all need support

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    • Posted

      Hi may I ask how much time in between was your 2 and 3rd time having it? I have been dealing with mine for 18 months and am about 75-80% and want to know if it were to happen again.

      Thanks

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    • Posted

      Hi Josh. Let me clarify because I did say it wrong. I had a total of 4 episodes. The 1st time was at 13/14 y/o. The next time was 11 years later (following a flu vaccine) the 3rd time was about 4 years after the the 2nd one.. and the know I was good for nearly 13-14 years before the 4th episode hit me. I will say that each episode left me with some permanent reminders 😢.. I have tinnitus since the 2nd episode that gets aggravated each time and my vision isn't what it use to be. Mainly when I'm driving.. but the good news is I can drive 😉 I also have some anxiety but it's getting better. I can say the 2nd and 3rd bouta were by far the worse as far as how I felt but this 4th one is the longest lasting. I'm coming up to my 1 year mark- June 10th and I'm still not 100%. I still have loud ringing in my ear, still have rocking sensation, especially when laying down, I still get dizzy and my depth prescription/ light sensitivity hasn't resolved yet. Not that I'm expecting it to completely because it was never 100% after the 1st episode. I have been left w/33% weakness in my left ear which I now understand is significant. But hey, I'm still here and enjoying life as much as possible. Sorry for the long explanation. Can you tell me what happened to you and why you say you're 75-80% better? What's lingering?

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    • Posted

       I am sorry to hear you went through all that. I am happy you are almost better.  That sounds what I have now. I did have Labyrinthitis but it was almost better. Ever since I fainted that day I have been feeling exactly like you described. I was not this dizzy or nausea before and now I have tinnitus which I did not have until recently.  I wonder if I do have vestibular neuritis now. I can't wait until I see the specialist and get a proper diagnosis.  This is depressing sad

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    • Posted

      Hi tneesha, I have vestibular neuritis which happened after a bad ear infection. I don't have hearing loss or tinnitus but I still have the rocking/swaying sensation and imbalance issues that I'm trying to resolve. on days when it's strong I do feel a little nauseous or when I over exert myself. But I've been able to go back to work which I'm hoping will help as well get me back tho 100%. And I say I'm at about 75-80% better now because I got myself to be more active by being being able to drive around, go shopping, watch a movie, work. But i still have to take it slow.

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    • Posted

      Josh I can totally relate. I am now at the point that I can do those same things you mentioned. I use to take this things for granted. I just started back at the gym 2 weeks ago. I shocked at how hard it is for me to workout now. I get easily fatigued and the treadmill coupled with rocking/swaying is a workout itself. Lol. But I'm determined. Some days are great and some are bad. What's difficult is trying to get your friends/loved ones to understand this condition and the journey back. It's almost impossible to explain. Please keep us posted about your progress. I'd love to hear about it.

      Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

      http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

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    • Posted

      Hi Tneesa,

      I went to rehab today and it turns out I had BPPV and labyrinthitis. She did the exercises for the BPPV and I have my balance back and I do not have that much nausea. but I still am dizzy from the .labrynthitis This will be a long journey but at least I get rid of the BPPV that was horrible. Thank you for the advice I am on the road to recovery smile

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    • Posted

      Hi!! I am so happy to hear that your rehab visit went well. It will get better and better. You're not alone and good luck with the journey. Please keep us posted 😊

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  • Posted

    Aww poor you I know it's absolutely awful isn't it ...I have Menieres disease so I can understand how your feeling...to lose your job over this isn't right it's an illness your employer should know this

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    • Posted

      Hi Jacqueline,

      I am so sorry to hear you have Meniere's. Can I ask your symptoms? I am worried that is what I might have too since I have not seen a specialist yet. Although, I don't get attacks of vertigo I am constantly dizzy with no relief.

       

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    • Posted

      I have the 4 symptoms so I'm told sickness loss of hearing tinnitus and dizziness. ..I don't hear very well anyway and at the moment I'm having dizzy spells every day ...my head seems to get heavy on one side and I lose control of myself ...if I wasn't sat or lying down I would fall it's a terrible illness ....I'm going to see a private doctor to see if he/she can help

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