I am so glad I found this forum.

 Hi Tneesha,

 Thank you so much for the response.  Were you also nauseated? At first, I did not have nausea but now I am so dizzy and with nausea. I will definitely try the therapy. When I phoned to book an appointment the therapist said he could not help me because I do not have BPPV. I will phone another place and try there

Make sure that you are asking for vestibular rehabilitation therapy. Epley maneuver is used for BPPV and not VRT. It, VRT, is fairly standard therapy for a physical therapist.

Yes I was very nauseous. Not to be too graphic but I was vomiting daily. I couldn't even go on a dive without having to stop to vomit. I didn't have BPPV, I had vestibular neuritis. I first had labrynthitis 16 years ago and was left with damage to the nerve in the ear (that's the end result of what we have) each subsequesnt time it's then called vestibular neuritis. At least that's how it was explained to me by my specialist. My ENT sent me to vestibular rehab but I had to wait weeks to get in that's why I started searching YouTube. We all need support

Thank you! I will try that

Hi may I ask how much time in between was your 2 and 3rd time having it? I have been dealing with mine for 18 months and am about 75-80% and want to know if it were to happen again.

Thanks

Hi Josh. Let me clarify because I did say it wrong. I had a total of 4 episodes. The 1st time was at 13/14 y/o. The next time was 11 years later (following a flu vaccine) the 3rd time was about 4 years after the the 2nd one.. and the know I was good for nearly 13-14 years before the 4th episode hit me. I will say that each episode left me with some permanent reminders 😢.. I have tinnitus since the 2nd episode that gets aggravated each time and my vision isn't what it use to be. Mainly when I'm driving.. but the good news is I can drive 😉 I also have some anxiety but it's getting better. I can say the 2nd and 3rd bouta were by far the worse as far as how I felt but this 4th one is the longest lasting. I'm coming up to my 1 year mark- June 10th and I'm still not 100%. I still have loud ringing in my ear, still have rocking sensation, especially when laying down, I still get dizzy and my depth prescription/ light sensitivity hasn't resolved yet. Not that I'm expecting it to completely because it was never 100% after the 1st episode. I have been left w/33% weakness in my left ear which I now understand is significant. But hey, I'm still here and enjoying life as much as possible. Sorry for the long explanation. Can you tell me what happened to you and why you say you're 75-80% better? What's lingering?

 I am sorry to hear you went through all that. I am happy you are almost better.  That sounds what I have now. I did have Labyrinthitis but it was almost better. Ever since I fainted that day I have been feeling exactly like you described. I was not this dizzy or nausea before and now I have tinnitus which I did not have until recently.  I wonder if I do have vestibular neuritis now. I can't wait until I see the specialist and get a proper diagnosis.  This is depressing

Hi tneesha, I have vestibular neuritis which happened after a bad ear infection. I don't have hearing loss or tinnitus but I still have the rocking/swaying sensation and imbalance issues that I'm trying to resolve. on days when it's strong I do feel a little nauseous or when I over exert myself. But I've been able to go back to work which I'm hoping will help as well get me back tho 100%. And I say I'm at about 75-80% better now because I got myself to be more active by being being able to drive around, go shopping, watch a movie, work. But i still have to take it slow.

Josh I can totally relate. I am now at the point that I can do those same things you mentioned. I use to take this things for granted. I just started back at the gym 2 weeks ago. I shocked at how hard it is for me to workout now. I get easily fatigued and the treadmill coupled with rocking/swaying is a workout itself. Lol. But I'm determined. Some days are great and some are bad. What's difficult is trying to get your friends/loved ones to understand this condition and the journey back. It's almost impossible to explain. Please keep us posted about your progress. I'd love to hear about it.

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Hi Tneesa,

I went to rehab today and it turns out I had BPPV and labyrinthitis. She did the exercises for the BPPV and I have my balance back and I do not have that much nausea. but I still am dizzy from the .labrynthitis This will be a long journey but at least I get rid of the BPPV that was horrible. Thank you for the advice I am on the road to recovery

Hi!! I am so happy to hear that your rehab visit went well. It will get better and better. You're not alone and good luck with the journey. Please keep us posted 😊

Hi Jacqueline,

I am so sorry to hear you have Meniere's. Can I ask your symptoms? I am worried that is what I might have too since I have not seen a specialist yet. Although, I don't get attacks of vertigo I am constantly dizzy with no relief.

 

I have the 4 symptoms so I'm told sickness loss of hearing tinnitus and dizziness. ..I don't hear very well anyway and at the moment I'm having dizzy spells every day ...my head seems to get heavy on one side and I lose control of myself ...if I wasn't sat or lying down I would fall it's a terrible illness ....I'm going to see a private doctor to see if he/she can help

 I am sorry you are going through that.  I hope you can find a Doctor that can help you manage your symptoms. I wish you the best.