I am still convinced it is pancreas issue

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I am still losing weight, 66kg right now and going down. My doctors said to eat normally and that's that because none of them think it is pancreatitis. I had blood tests for pancreas, liver and inflammation show up 'perfect'. But I keep getting left upper abdomen and rib discomfort with low grade fever (38.1 C in mouth). It always comes about after food, and this night I woke up to some dull ache just above the navel as well.

Is pancreatitis pain always much more severe? Main is never bad just annoying. I worry the most about weight loss and low grade fever triggered by food. I am scheduled for endoscopy and none of the doctors think it is pancreas ... but I am not convinced. Sorry for spamming this forum so much.

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  • Posted

    What are your stools like? Any stomach issues?

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    • Posted

      My stools are not well-formed, sticky to the toilet, hard to flush and overall look unhealthy, greasy.

      My stomach has issues since two years ago - they found ulcers in it and duodenum. H pylori positive as well. I remember antibiotic treatment helped but have since then returned to abnormal consistency.

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  • Posted

    Pancreatitis pain is debilitating. The pain is so severe you end up in the hospital. It isn't just pain though, you would be constantly nauseous, vomiting undigested foods upon all hours of the day, itching like crazy, migraines, the list goes on and on. Having pancreas issues young is rare even given my age at 39. It took my doctors over a year to diagnose me but they found out I was born with two pancreatic ducts which get clogged and cause attack after attack. Now I have to have my pancreas removed August 1st. The pancreas is the hardest organ to diagnose due to its location so even if it's your pancreas, you're in for a long journey. Furthermore, it could be something completely different and you're feeling it in certain areas and that's referred pain. How's your stool? Are they greasy or clay color? Usually if you cannot absorb fats then your stool will reflect it. If your bile isn't flowing correctly your stool will also reflect it. There's a fecal test they can do. Honestly the only test that showed my pancreas issue was the MRCP. The regular endoscopy didn't show anything but it can be used to rule out ulcers. Stay away from Dr. Google he's not your friend.

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    • Posted

      I believe you describe acute pancreatitis? I am leaning more towards chronic...

      My stool is not well-formed, frequently yellow/brown and does tend to stick to the toilet. Hard to flush. From what I was reading chronic pancreatitis does not show up on blood tests, barely registers on imaging tests and the pain can be mild discomfort.

      My doctors think it is gastritis, peptic ulcers and other benign things but I mostly am concerned about low-grade fever with food. I never had this happen, and it is accompanied with slight discomfort on the left upper abdomen. It is not severe pain but it causes me to feel unwell.

      It is rare but it happens. I already have problems with tolerating carbs - I have failed glucose tolerance test before but was not diagnosed as diabetic. It seems like all my health issues including past come back to pancreas. I will have a talk with gastro on tuesday what they think this is and keep you updated.

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    • Posted

      You dont just randomly pop up with chronic pancreatitis. Chronic P develops after several bouts of acute P. It is often tied to alcohol abuse. It can also be tied to gallstones (causing repeat AC attacks), or autoimmune issues. You may be having pancreatic issues (Id ask for an MRI or EGD W/ultrasound to check for pancreatic tumors/deformaties), but chronic pancreatitis is highly unlikely to be your problem. You should also get your gallbladder checked out.

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    • Posted

      I was never diagnosed with acute so I don't know what that pain feels like. However, I do have chronic pancreatitis and the doctors kept dismissing CP due to my age. Even with CP my liver enzymes elevate. The standard lipid panel doesn't show CP and never has due to the way I was born which is called Pancreas Divisum. PD is rare, it happens to 5-10% of the population and can cause CP. Which is how I got CP at such a young age. I had greasy stools with gallbladder problems and had my gallbladder removed. I don't have many organs left and have developed kidney issues from the pancreas. I also have a thyroid disease. I suffer constantly from my pancreas but when an attack comes on it's not mild pain, it's not an ache. I literally go to the hospital and have to get ketamine to calm the pain, it's the worst thing for me. I'm already on pain meds that don't touch pancreatic pain.

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    • Posted

      Both my AST/ALT will elevate and be near 200's but with each attack they have decreased and as CP gets worse your numbers decrease. Also normal limits change with age.

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    • Posted

      Thank you. I am not sure if I never had attacks of P. I had bouts of elevated temperature and pain but it was more on the right side and lower right side which mimicked appendicitis. I do not drink alcohol or smoke, no drugs. I do eat fat-containing foods quite a lot though. I noticed recently fats cause me some pain on the left just under the rib. Is it pancreas?

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    • Posted

      When I had gallbladder issues I didn't even know it. I felt sick almost reminded me of a horrible stomach flu but I had pain radiating up my shoulder blade to my ear. The pain in my ear was so bad I thought I had an ear infection. I went to the emergency after vomiting all day from my tummy ache and what I thought was an ear infection. I had a fever (didn't know it) the doctors pressed on my stomach and I literally screamed in pain. They did an ultrasound and then told me I needed emergency surgery. I told them they had the wrong patient lol. I had three gallstones and one was on my pancreas. They removed my gallbladder the next day. All the pain went away (including my ear and shoulder pain). I asked what that pain was and they said the gallstone on my pancreas caused radiating pain. They explained small stones can get stuck in the bile ducts and cause havoc but mine were the size of golf balls. When you have pancreatic issues your body cannot tolerate fats however it tends to crave carbs (pastas etc.) It's really the only thing I can eat. I get gluten free pasta but my specialist has me on a low fat (no more than 20 grams of fat) a day. There is a condition where the pancreas doesn't produce enough digestive enzymes but it's an easy fix and all you need to do is get a fecal test and depending on the results take digestive enzymes. Medical is out of your control no matter how much you want answers. I would journal your foods and symptoms which will give the doctors a better idea what you're dealing with. I know it's easier said than done but try not to stress, stress does nothing positive for you. Even with a diagnosis you still need to live your life. Try resting your pancreas by not eating for a couple days. Drink clear broth then slowly introduce bland foods. If that helps journal it.

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    • Posted

      Your symptoms re gallstones Is what i have experienced many times however, ive not gone to the hospital especially the pain in your shoulder blade ! i just curled up in a ball didn't eat and waited till it passed sat with a bowl ! when i was fit enough i visited my doc who put it down to food poisoning ! i hate hospitals even though i work in them !

      i am on the enzyme medication Creon

      i have not had a episode since new year 🤞 the life exp scared me a little ,however i am just carrying on as i was before i knew .. but cut out sausage and meat , as gammon steak was the cause of my last God was i ill i still rode it out untill i could get to doc , i like the idea of resting my pancreas , tell me more ,

      ive started to make porridge with almond milk however, i read the carton this morning it is high in sat fat Also i use coffee mate !

      whilst im writing this i have a pain in the left side just under my rib cage i thought a stitch ! my stomach appears bloated !

      i feel i am permanantley wearing a tight belt ,

      Im not in agony but uncomfortable which i seem to be use to ...

      only seen specialist once ! waiting to see him n refer to dietician .

      god only knows if this blockage is gona be dealt with it appears not !

      thank you ... I'm not stressing just get on with it x

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    • Posted

      I ate three small packs of sunflower seeds yesterday, probably around 200g of raw seeds. Today they all came out the other end. I seem to not digest fats at all, and after ingestion of that my left side grumbled and complained. Along the way, 38.1 C degree oral temperature was present. It came down on its own along with the left side discomfort ....

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    • Posted

      Wow I cannot believe the doctor didn’t explain anything to you. When you feel an attack starting that’s when you want to rest your pancreas. Resting the pancreas can prevent further pain from flaring. Generally all you need to do is don’t eat anything solid for 2-3 days. Drink whatever flavor broth you want and plenty of water or clear juice (apple or white grape etc.). After a couple days, start with soft cereal like oatmeal. If your stomach doesn’t hurt then eat a snack and so forth but if you get pain then you have to go back to broth because your pancreas isn’t ready for foods yet. As for digestion it’s easier for us with CP to digest six small meals rather than three big meals. It’s also recommended to substitute applesauce for apples and frozen veggies rather then raw. Foods are triggers and everyone is unique in what he/she can tolerate. Oranges are a natural anti-inflammatory and my pancreas can handle it but I cannot drink orange juice, it’ll make me sick. Heat packs for your abdomen and back really help and regular Tylenol helps with inflammation. Mint tea helps for the constant nausea. You’ll tend to live with a new normal everyday symptoms. You might start craving bread/pasta and that’s normal. Stay clear of red meat and you should be okay. Unfortunately I will have my pancreas removed and be dependent upon digestive enzymes and insulin but you can live a long time without a pancreas nowadays. I hope the above helps you.

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    • Posted

      You can experience left side pain even if it's the gallbladder. Gallbladder is normally on the right but all the bile ducts are connected that's where the referred pain plays in. There's a sack of nerves behind the pancreas that's all connected. If it were the appendix that's more lower right side not upper. That is also more of an excruciating pain when it's about to rupture. I don't have my appendix anymore. I don't get fevers with pancreatitis never have. I do get fevers with kidney stones/infections that I never had before but I had developed malabsorbtion. That pain sends you to the hospital as well. I won't go to the hospital unless I'm about to keel over. I've had too many surgeries for my age and I hate being admitted. I try and control the pain at home. If I cannot control it after three days then I have to travel two hours to seek care. There's no local hospital that is equipped to treat the pancreas in my area.

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  • Posted

    i was diagnosed IBS for over 10 year ,

    i was really poorly after cooked breakfast violently vomiting , this went on for few days with temperature and runs,,, doc always said food poisoning or ibs

    last time i was really bad vomiting massive lumps i thought i was gona choke went to doc did bloods my liver enzymes high had a liver scan ! chronic pancreatitis .

    Im not loosing weight quite the opposite as back in December i was diagnosed with underactive thyroid ,don't know if connected , i just know that I'm in complete agony as well as being sick n runs . i have a blockage in my digestive system by a loose gallstone my pancreas app calcified ,, ! ive not a clue whats happening really just sin specialist once !

    hope that you find some answers Alcohol aggravates it

    i haven't drank for 15 years Yet the specialist seems to think the cause is Alcohol my doc and i don't agree !

    yvn

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    • Posted

      they was high and the live scan was sorted very quickly to reveal chronic pancreatitis left in the dark really !

      doc printed some stuff of for me that's it i seen specialist once sent me for a cat scan confirmed chronic Pancreatitis he wrote to Me to confirm this , no app to explain I was p****d off N scared then decided just get on with it x

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