I am too young for CS! Surely?

Posted , 6 users are following.

Hi all

Have been reading over your posts for the last few days. Thanks for all the info!

I am 34 and have had CS and scoliosis for a couple of years. What concerns me is the degenerative nature of the disease and what I am to expect from the coming years.

Bouts of pain and pins and needles/numbness/loss of hand use are coming more frequently of late. Am going in for a nerve test and MRI scan soon (are these nerve tests as bad as I have been told?!)

The future of CS scares me a bit- its agony as it is so wondered what everyones experiences are of the degenerative nature of it?

I am also pretty sick of being loaded up with painkillers every time I go to a doc. Refused to take the Gabapentin on the grounds that its an addictive painkiller. Ibuprofen hates me and co codamol just make me walk around in a fluffy cloud without actually killing much pain. No good when I am trying to work.

Thanks for listening - look forward to your advice!

L

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9 Replies

  • Posted

    welcome to my world, i have both cs and scoliosis, i have had scoliosis all my life it is congenital. both my sons have it as well. i am due to have my second mri and the nerve tests as well this is the first time for me, so i would appreciate any information on these tests if any one can expand. i have been reading up on fibromyalgia, it seems to have a lot of the symptoms i am experiencing but as i have other illness' as well it will be interesting to see the outcome, i filled in a questionaire on the fibromyalgia website and i have just under 100% chance of having it so i dont know, which will it be ?????,,,,, chris xxx
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  • Posted

    Having only recently been diagnosed with CS I'm still looking for as much info about this as possible. However, I have had the nerve conduction tests and can tell you that they're not as bad as they sound! At most they're slightly uncomfortable and certainly nothing for you to worry about.

    Good luck :-)

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  • Posted

    thanks kit, for putting my mind at rest ,,,,, chris xx
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  • Posted

    I have just found this forum. I am 32, and for about 10 years have had neck stiffness and clicking, pain etc (I had a bad rta when I was 18, and they said that has made it worse). I was eventually sent for an x-ray and told I had cervical spondylosis, in a fairly off hand manner. I have never had any advice about what to do, just that as it is degenerative they don't want to medicate me at my age. Then a couple of years ago I had a really bad shoulder pain with no obvious cause. It hurt when I breathed, and ended up travelling around all the local hospitals (minor injuries did not want to know as I had not had an obvious injury, A and E had a huge wait and the doctors just told me to go to hospital when I said it hurt to breathe). Eventually I got in to see my GP, who said the pain was coming from my neck, filled me with drugs (which made my guts go into complete spasm) and sent me away. I never really thought about it till now. Yesterday I pulled the door handle off the car, but still having christmas shopping to do I walked and carried it all home. Later in the evening the pain in my shoulder was back, same as before, hurting when I breathe, difficulty sleeping and generally unhappy. My first thought was that it was a trapped nerve as it hurt more when I turned my head. Anyway today I have been looking at the internet and found that the most common cause of referred shoulder pain is CS. Is it normal to have so little information on diagnosis? I even forgot what it was they had told me I have until looking on the internet today!
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  • Posted

    hi.. I have had this for a year now.. mri showed loss of neck curvature and disc degeneration.. i n ow believe that it has got worse because my hands hurt . my shoulders hurt i get chest pains and my head it tilted to one side sometimes... all my muscles ache too.. which for me is the worst thing as i am only 29 and have 3 kids to watch out for... To answer you question the answer is yes.. no one wnts to know. apparently its normal to have cs and eventually everyone will get it. oh! and i was told its not a problem to have. yeah right!!! this si the best place get have advise and comfort because i know there are days when you feel like your going crazy. take care
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  • Posted

    hello everyone, it is one of the coldest days of the year and hence one of the most painful for us fellow cs sufferers. i was told when i was first diagnosed with this PROBLEM it was an old persons disease, well i was only 31 so obviously i freaked. i find it strange that most doctors dont seem to acknowledge our , to us devastating illness. i saw a new gp yesterday and he was shocked i could manage to be so upbeat considering all my problems and was impressed i could reduce my meds on my own, which i did because i was so sick of being like a zombie. it was heartwarming to meet a gp which took me seriously for once, only thing is he is only at our surgery for 6 weeks(newly qualified, on gp rotation). so keep on plugging away at your gp's and maybe we will overcome them with persistence...... have a very merry chritmas and i hope we are all welll enough to enjoy tomorrow ,,,, chris xxx
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  • Posted

    I had it at 34. It dosent matter what age group you belong to. It can happen anytime. Fortunately i am allright now.

    Many people here are with different experiences. Maybe they can help.

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  • Posted

    It is supposedly an old persons disease as it is usually caused by wear and tear over years. However many people suffer as a result of accidents and injuries and because they are prone to it. Arthritis inherited from parents is the main cause.

    Painkillers are part of the treatment of the symptoms. As many have found the pain killers of choice are NSD's (Ibuprofen), unfortunateley this stuff has a bad effect on your stomach and bowel. Other stronger drugs leave you feeling spaced and many are addictive.

    Physiotherapy and painkilling injections to the neck joints can go some way to relieving pain but the only treatment is surgery and that can be hit and miss. Surgery also may not bring back lost function or feeling.

    My own experience is the usual rounds of drugs, physio and injections interspersed with the unvoiced disbelief. My consultant has now offered me an operation to relieve the pressure on my spinal cord. Frightened witless at this prospect but I'm getting frustrated at not being able to carry things (including my daughter), hold on to things for long, being unable to put my socks and shoes on or walk very far. I'll be taking up his offer as soon as I can.

    Paul

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  • Posted

    hi , my experience is that i have had this since i was 31 so for the past 18yrs.i have gone through the gamut, of physio, injections, and meds and i have such a lot of meds i am now on oxycontin. not a good strength of meds to be on and still not much pain relief. i am waiting the results of conductivity tests and hoping to have an mri soon. for the past 18yrs i have suffered with thoracic rigidity, tightness, and pain which i thought was referred pain from my neck which i find now is something totally new, so hence the mri's two of them.,,,,, chrisxx
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