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I am very fatigued and depressed

Posted , 2 users are following.

mskim
mskim

I went to the doctor and was diagnosed as being depressed,hence a symptom. I said this feels like anemia but different, can you check my iron? No need but to put you at ease we will. Test came back 300. They are waiting two months to do another test, in the mean time I am worried sick. Are they waiting to see if it goes up or down? My father is from Norway and my moms originally from Ireland. All of my kids have some sort of depression and fatigue symptoms but they are young? I am confused and worried and ashamed because my family and friends see me as lazy. Anyone else feel this way?thanks k

1 like, 3 replies

3 Replies

  • sheryl37154
    sheryl37154 mskim

    Posted

    Lucky you for being tested so early.  What was your transferrin saturation %.  That is an important marker too.  If both are higher than the norm, your dr should order a genetic test to confirm one way or another.

    There is no reason to be worried sick.  Your level is still reasonably low.  I am assuming you are a woman.  Technically your children should not be having HH symptoms - it would appear to be something else.  Food intolerances, or a reflection of how you are feeling?

    I have a mix of Danish and Scottish heritage and I have a very aggressive HH but was left to suffer the severe symptoms for 9 years before diagnosis.  I was so happy to get a diagnosis of something that is treatable and venesections are much better to have than chemo.

    In the meantime, educate yourself about Haemochromatosis so that you understand the differences and will know that the treatment you are getting is appropriate.  Contact the haemochromatosis association in your country and ask for literature to be sent to you.  Don't just depend on blogs like this.

     

    • mskim
      mskim sheryl37154

      Posted

      Sheryl,

      Thank you, I will check more into it. I look at the world as a community, I will look for a support group elsewhere and hope I can find one. It is good advice to get educated.I wish you health. I guess I was looking for what you said but also others who could say I know what you are feeling and you are not alone,support.

      Thanks Kim

    • sheryl37154
      sheryl37154 mskim

      Posted

      I think you need congratulating that you got your dr to test you so early.  A lot of us took years of iron load damage before a dr decided to do the appropriate test.  We had to just push ourselves to keep going - work, family, etc. for years and not give in.

      Knowledge is power for you, and with education about haemochromatosis you will discover that it is not a death sentence if you are diagnosed as early as you might be.  There are other factors in an Iron Studies test that show markers for haemochromatosis.  Only having a high ferritin level does not make it haemochromatosis.  If you don't have the other factors, it is hyperferritinemea which has other causes, and they should be investigated.

      Always ask for copies of your blood tests so that you can check them later and be able to self evaluate.  That is the only way you can check if your dr has overlooked the other factors.  Those of us whose drs took too long to test us would have been so happy to get as far as you so soon.  So, time to celebrate your achievement so far.

       

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