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I been diagnosed with fibro & my muscle definition just gets worst. Is this normal?

Posted , 6 users are following.

valerie826
valerie826

I been diagnosed w/ fibro & my muscle tone/ definition is declining. Is this normal? Help !!!

0 likes, 27 replies

27 Replies

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  • Maggers
    Maggers valerie826

    Posted

    Yes, can definitely relate to this. I used to be able to toss 20kg bags of sheep feed around as easy as anything not now.  I feel I right weakling.

    Now seeing someone to help me with diet and gentle exercise to include some gentle weights to try and stop the decline and give me back some of what I have lost.  Early days for me but I feel if I do nothing I can't expect it to get any better.

    • valerie826
      valerie826 Maggers

      Posted

      Thanks Maggers, so I not going crazy !!! Anyway, had a neck & shoulder in December 2006 & from there issues started popping up. My skin also has changed, its as thou I have goosebumps on my arm & top of my quads, plus get chills but don't last long. I exercise as best I can ( it makes my stiffness & body feel better), but I get so exhausted...Are all things things connected. I did read a trauma injury may bring it on.
  • leona18728
    leona18728 valerie826

    Posted

    Hi Valerie, I believe this is true, I've always been very active and fit but since a very large flare up last year my muscle tone has declined rapidly leaving weak arms and legs, my skin texture has changed also, I've tried to do more in my daily routine but find it hard as I still work full time, but next week I've planed to do water aerobics next week with a friend who also needs encouraging,

    I'm a big believer use it or loose it,

    It's not easy but every little exercise will help.

    Gentle hugs Leona

    • valerie826
      valerie826 leona18728

      Posted

      Hi Leona18728:

      Thanks for your reply & that I AM NOT CRAZY !! Yes...me too, I am trying to keep an exercise routine, but sometimes its just so darrn hard. My drs All tell me exercise will keep the pain down, but my muscles arent looking good yet I work them. UGH its so frustrating !!!

      Thanks so much for responsing.

      Smiles & Giggles

  • TeresaJS
    TeresaJS valerie826

    Posted

    Hi Valerie. How old are you if I may ask? If fibro slow you down then It's most probably the result of not exercising? sedentary lifestyle?
    • valerie826
      valerie826 TeresaJS

      Posted

      Hi Teresa:

      I am 55, but been extremely hiper & active all my life. This fibro & UDCT has gotten me Bummed...All my drs have stressed to keep up my exercises & walking, but somedays ate much harder cause of our weather changes...That Really Effects me!! How is it for you, I mean activity challenges/ weather, etc??

      Thanks so much for your reply.

      Smiles & Giggles,

      Valerie826

    • TeresaJS
      TeresaJS valerie826

      Posted

      Hi Valerie.

      I'm sure that what you describe has more to do with the connective tissue disorder. Are you taking anything for that? Collagen/gelatin?

      I found an online vd "How to Hydrate Your Connective Tissues - Yoga Talk Show" that' a podcast interview with Connective Tissue Yoga therapist  Sue Hitzmann that created a method called the "Melt Method" (can't post the link here but you can find it easily). 

      As far as I'm concerned, i suffer most with weather extremes. I'm in Portugal and it's hard on any extremes.

      Take care. X

       

    • valerie826
      valerie826 TeresaJS

      Posted

      Hi TeresaJS:

      Thanks so much for your reply & that Awesome information. I am going to check it out. And no don't take any collagen nor do I know how much or what kind to look for...Help?? Any suggestions would be extremely appreciated.

      Thanks bunches,

      Valerie826

    • TeresaJS
      TeresaJS valerie826

      Posted

      Hi Valerie.

      I'm assuming that connective tissue dysfunction implies collagen deficiency. It's logical but I’m not sure about that. It would need some research or simply asking the doctor.

      I’m assuming you’re not vegan. If you are this doesn’t apply.

      Collagen is present in animal gelatines. Both four legged animals (the standard one we use for cooking or supplementing)  or fish derived which is usually made from fish skin. I like the latter very much: it’s good for skin, bones, all over. Any of them can be found over the counter in health shops as a supplement. Just try it a see how you feel.

      Take good care of yourself.

      XXX

    • valerie826
      valerie826 TeresaJS

      Posted

      Hi TeresaJS;

      Thanks do much, No not a vegan, but not a big meat eater, never have been. But any suggestions for the cooking oil or supplement...What one do you use?

      Thanks again for your response & information.

      Enjoy your weekend,

      Valerie826

    • TeresaJS
      TeresaJS valerie826

      Posted

      Hi Valerie. 

      Thank God they all come in capsules! 

      I'm not in the UK at the moment but the following (better, I would say, if combined: 2 fish collagen + 1-2 type II chicken collagen) I believe would do.

      It might give you nice glowy "face lift" - you let us know if that's the case!

      Ultra Hydrolyzed Fish Collagen Type 1 (skin firmness)Glucosamine & Collagen Type II (joints, etc)

      I can't post the links here but you'll find them for sure. 

      Take care sweetie. X Teresa.

    • TeresaJS
      TeresaJS

      Posted

      This didn't came out very clear. So, two supplements:

       Ultra Hydrolyzed Fish Collagen Type 1 (skin firmness)

      Glucosamine & Collagen Type II (joints, etc)

    • valerie826
      valerie826 TeresaJS

      Posted

      Hi TeresaJS;

      Thanks bunches.... I appreciate the information & going to check on the supplements. I am hoping our local natural food store will have ...I am excited, I so needed a spiritual lift from my body & its drama.

      Anyway, I will keep you posted ...Oh, I wonder if I will feel some results in a few weeks...That would be so Awesome !!! WhooA.

      Thank you, Thank you...Enjoy your weekend,

      Valerie826

    • TeresaJS
      TeresaJS valerie826

      Posted

      Hi Valerie. 

      I came accross the info. that Vitamin C is essential for collagen synthesis. So, it might be a good idea to supplement it too...It's actually good for several things. X. Teresa.

    • valerie826
      valerie826 TeresaJS

      Posted

      Hi Teresa:

      I definitely check it out !! I have taking black cumin seed oil w/ honey, since it so bitter. A teaspoon a day & it has helped, but I have been taking to long...I am looking All natural solution, but sometimes my pain meds are just needed.

      Thank you so much...you Great !

      Smiles & Giggles,

      Valerie

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