1. Community
  2. Ears, nose, throat and mouth
  3. Vertigo and Dizziness

I can't do this any more

Posted , 12 users are following.

patty818
patty818

I have had enough of this. I have constant rocking and swayin in my head, I'm so tired of it. It's all I think about. It comes out of no where with this headache and some nausea. I don't start vet til the end of the month. I can't even sit without feeling it. I don't know anyone else who has this or has. I don't know what's causing it, that worries me, how can this just start for know reason? Does anyone have this 24/7? I'm so tired of this. It's been 8 months and I can do anything now except work oz I have to. I don't know what to do now

2 likes, 28 replies

28 Replies

Next
  • kelly03138
    kelly03138 patty818

    Posted

    Hi patty818, i have gone through this for a year or so constant swaying feelinh constaly feel like im rocking on a boat or just moving in general my head always feels heavy and my muscles are always tense. It gets alot worse when im tired and when im sick. I go through it all day every 24/7 do uou have any other symptoms ?
    • patty818
      patty818 kelly03138

      Posted

      Hi Kelly

      Thank you for your reply, i'm sorry your going thru this terrible thing.  I just can't understand how one day we are fine and the next can hardly get thru the day.  My symptoms are, anxiety, head and neck aches, nausea, random muscle aches, fatigue at the end of th day, sometime face pain with the headahces, fear that comes out of know where, vision is off at times, tension thru the body, tired legs, sudden vertigo attacks.  

      I think the anxiety is making it worse, but i worry about it constantly, now i'm worried about the VRT, coz people say it makes the dizziness worse.  

      I hope you feel better soon.

  • jonAustralia
    jonAustralia patty818

    Posted

    Patty, I am so sorry to hear that you have no respite from this and I do know of others suffering similarly. All I can say is that there are real medicines that can at least alleviate the symtoms, but as nobody seems to know what the root cause is, how can we ever rid ourselves of this malady. Eight months is a long time to suffer and I am wondering what kind of exercise you are able to do? Certainly reducing SALT and alcohol is a certain, so try checking all of your foods for salt content and avoid them at all costs. Otherwise if you tell your Doctor that you have VN or any other vertigo based ailment, surely She/He can give you some relief as you certainly deserve it. Do you have a partner who can support you in these low moments? Warm regards Patty, we are all thinking of you; it's what we do, Jonathon
    • patty818
      patty818 jonAustralia

      Posted

      Jon

      THank you for the kind support.  I don't start VRT until the 22 of this month and don't see the ENT until the end of april.  I think my anxiety is making this worse, but i can't seem to get control of the fear.  I am so afraid of the dizziness and not knowing if the VRT is going to help or make it worse.  I have reduced salt and i don't drink.  The only thing I do is worry and wait til soemthing worse happens.  But i do appreciate your kindness.

      Thank you

      Patty

  • koustana
    koustana patty818

    Posted

    Dear, I know very well how you feel. I'm being like that for more than a year. All kind of doctors and physically I'm ok ,that what they saying and everything is in my mind. Having panic attacks all the time and it's like I'm going to faint any second. When I go in the store or bright open spaces in feel like I'm floating. The light bother me so much and make me out of focus then I freaking out. I think I have samo kind of problem with the balance and the light sensitiveness. I used to have a lot of migraine with aura and sometimes I have a silent migraine (no headache ) . The worst times are before and first days of my period. I cached myself that when I shave my under arms and the twist of my head I see a little light stars when I walk or move a lot and I can go on and on ... also I have sinus tachycardia witch means that my puls is very high. I stopped all kind of caffeine, but I'm a smoker I'm trying to quit, but is so hard for me .

    I was on a beta blockers but they make me just fat didn't help me so much I try all kind of natural resources and meditations ,everything that you can think of and nothing seems to help. I'm so,so sick of that to not feeling myself, to feel constant fear of if something happens to me ... it's just awful and everyday when I woke up I wish that it's gone ,but is not and make more depressed and I don't know how much longer I can live like that .

    I wish you all the best ,don't give up and find the source of your problem and try to cope with it in the best way . Good luck!

    • kelly03138
      kelly03138 koustana

      Posted

      You just explained everything i have been going through everyday
    • koustana
      koustana kelly03138

      Posted

      Every single day ! I have good days,but I didn't have a day without a moment . It's just so unfair to not know why is this is happening just one day boom and here we go on a journey that terrified us ,journey that I wish I never had to go through and I wish to stop with all of my heart and soul!
    • patty818
      patty818 koustana

      Posted

      Hi, thank you for your reply, I'm sorry your going thru this is well.  I'm like you I wake up hoping its gone and its not so I get scared again and frustrated.   You said you have silent magraines, may I ask what that feels like and how do you know its a migraine with no pain, this is confusing for me.  Do you have dizziness all day everyday, mine is worst it seems when i'm sitting and when i'm in the shower.  Maybe its the fear of falling in the shower, I don't know.  I don't  know much anymore, except I don't feel normal and I'm tired of being sick.

      Thank you for listening and your help.

      Patty

  • jonAustralia
    jonAustralia patty818

    Posted

    Hmmm, this is not good people, but we must not give up hope as we deserve better. I am lucky, I just lose balance if I move my head to check the time on my watch or any similar movements; the occasional lurch whilst walking but I maintain a daily regime of around 8 kilometres (5 miles) regardless. The feeling of bright lights I no longer suffer from but always had some light sunglasses ready when I did suffer from it and just pulled them on as I went into the stores, very Hollywood style but better than the panic. I still, every now and then, get that wavy impression in the corner of my eyes, I just stop what I'm doing and if possible close my eyes for ten minutes, it goes away. I am lucky and I know it but having gone through the worst month in my life nearly three years ago with all of your symptoms, I feel blessed just to have these lesser complaints; please just hang in there. Smoking? Well obviously this causes respiratory and bloodflow issues, and I recommend you just go 'çold turkey' impossible almost, but doable and you will need support from a close friend or partner, just do it and you will feel better very quickly, well perhaps not quickly but eventually :-)... I also have neck issues, probably from a rear end collision 25 years ago and pain if I touch behind either ear in the neck region which also makes the symptoms feel worse, so only check once :-). I am positively certain that all of our symptoms derived from an original form of virus. What might have seemed like a bad cold or flu, ear ache, blocked sinus may have been a virus rearing up (we all have virusai living in our systems laying dormant until we get run down enough for them to attach) so look to your medical history but really, so what? It can't help you other than to make you mindful of not getting too run down again. I did and this brought on my latest VN which I have had since July last year, oh the joys? So my dear friends, we are all in this together and a real shame that we are so spread out, but I check regularly as I believe that one day, someone will have the courage and drive to find a cure for us all, until then, I'm thinking of you. Jonathon, Townsville, Far North Queensland
  • Bestie711
    Bestie711 patty818

    Posted

    Patty, so sorry to hear about this, but you are not alone. I used to think I was the only one for many years, because doctors could not tell me why I was feeling some of these sensations. I used to have (still do sometimes, but it's either not that problematic or I've got used to it!) the bobbing and swaying and whizzing through the air sensations. I used to feel like I was floating away. I used to feel like I was dropping in a hole. 

    As someone who has had this condition, whatever the hell it's called, for years, I can tell you that it does get better. It might not go away, but it does get better at some point. Don't ask me how or when, it kinda happens on its own. This "thing" seems to have a mind of its own. 

    I did feel better after I went on medication (Imiprimine together with Xanax). If you're not on any medication, perhaps you could speak to your doctor. Here's the thing though; my medication was prescribed by a psychiatrist/hypnotherapist, not anyone connected with any vestibular, ocular or neurology specialists. I hope this helps and that you find some relief. All of us here know pretty much how you feel and what you're going through. Best of luck and hopefully, you start feeling better soon.

    • patty818
      patty818 Bestie711

      Posted

      HI Bestie711

      Thank you for you reply and info.  You said you went on meds and they helped, did you have anxiety with it?  Is that what it helped with most or was it the dizziness itself?  Did you have any VRT with yours?  What if any other symptoms did you have or still have?  I am glad you are feeling better, I can't wait for that day.  I have doubts tho if it will come.  I'm constantly scared of this thing.  

      Thank you for listening.

      Patty

    • Bestie711
      Bestie711 patty818

      Posted

      Yes, Patty, I did have anxiety. I had panic attacks and I was always feeling like I was drunk, lightheaded, swaying, bobbing...god...the weirdest feelings and sensations. I never had VRT. I was never diagnosed with any problem except anxiety. I still have weird sensations but they are not as intense. However (and I hate to scare you, but this is just my own experience and we may not have the same thing), I felt better once before for several years and then it all came back. My advice to you is this; hang on and enjoy whatever good things happen and also enjoy the little things in life.

      Emis Moderator comment: I have removed product/company names as we do not allow repeated posting of these in the forums. If users wish to exchange these details please use the Private Message service.

      http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

  • gillian76726
    gillian76726 patty818

    Posted

    Yesi aLso,have it 24/7. It gets worse as the day goes in and i've worked out that that is because my brain, eyes, hearing is on overload as all of those senses that send info that send info back to the bRain to keep us balanced are woking harder than  'normal' people. And yes if you get a headache, which can be brought on by your tension due to all this going on will make it feel worse. What i do s get a cold oack (Those blue gel,ones you put in the freezer)! Wrap,it in a scarf and tie it around my neck, it seems to help, not sure why, think,it shrinks blood vessels or somehing.  some ENTs drs will twll,you you have MAV, Migraine Associated Vertigo, but after a year of messing about with drugs etc for,that it made no difference and i knew that i did NOT have that. I fact some of the drigs made my vertigo,symptoms worse! My headaches are brought on by tension.  Imagine your body that has been used to,keeping you balanced via your eyes and ears and vestibular system automatically,and now it is having to,do it manually.  try to,keep your moving about, bobbing around to a minimum. Keep,off screens as much as possible (Hard i know if you work in that environment). Whenever You can rest.  
    • patty818
      patty818 gillian76726

      Posted

      HI Gillian

      Thank you for the reply.  It does make sense the body is constantly trying to manage this and its exhausting.  The anxiety is awful that comes with, it seems to never really go away, its in the background all the time and keeps my fears up.  Did you have VRT?  I'm guessing you are still dealing with it, how long have you had it?  What does it feel like to you?  I try to keep busy but sometimes it hard, I think my frustration with this is bad, I am constantly angry about it and it comes out everywhere.  But dealing with fear, worry and dizziness daily is not easy.  

      Thank you for your help and info.

      Patty

    • gillian76726
      gillian76726 patty818

      Posted

      Ys imhad. Rt on three different occasions, at three different hospitals and it made no difference ot me.  I had all the Epley, and other types of manoeuvres also, no good either!  yes. Also Have/had lot,of anger and frustration,but i try my best not to if i can as it makes it,worse!  i also,learned at my Cognative Behaviour sessions to listen to,some good guided meditations fm on line. And must say they calm me down.  i'll,pm you the name of one guy i,like okay.  i' ve had it ,since October 2010.  pretty sure it virus induced  as I went to be normal and woke up not!!
Back to top
Next

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.