I can't get diagnosed. Extreme fatigue, left rib pain, muscle twitching and more
Posted , 8 users are following.
My first symptoms started in 2014, after losing a pregnancy at 10 weeks. It started with the pain and burning in my left breast (ultrasound excluded bc), and three months later a dull in my left rib with diarrhea (sorry TMI), after everything I would eat. Did CT (abdominal), lots of tests (celiac, full CBC, hormones-all clear). My symptoms persisted and although I became pregnant in March 2015 (had a successful pregnancy-during which symptoms were minimal), as soon as I delivered, the symptoms were back and worst this time. Severe depression, brain fog, pain under left rib, losing concentration, feeling hot (no fever), feeling severely exhausted, sudden chills... I thought it was hormones and possibly post partum depression but all the labs excluded this diagnosis. Had to move to Europe as hospital bills were piling, lost numerous jobs. In hope to find some thorough diagnosis I retested blood again, hormones, etc. after a bout of a FLU in January this year my blood revealed elevated ESR, fibrinogen, high Ige (limit 87, mine 540), whole body is itching, muscles twitching, burning in left side of chest with pain under left rib cage, sternum, left breast, nipple, all joints cracking with just movement. I feel like I am dying, I can't think straight, I am losing concentration and lacking words. I can't even function properly. I have Hashimoto thyroiditis for over 20 years. (I am 35 yrs old, 190 lbs, 5'9). I would just like to be myself again. chest x ray and Lung CT scan done in September 2016. I don't know where to go, sometimes I feel like this will never end. Depression is severe, and I have to inner drive, happiness. Prior to this I was a very happy, energetic and loving person. I appreciate any feedback and thank you for reading.
0 likes, 30 replies
jim64727 ivana8116242
Posted
Google:
Nutcracker Syndrome and Chronic Fatigue
Or Nutcracker Syndrome (Left Renal Vein Compression) and every symptom that you have. You're likely to find a lot of info that most doctors don't know. A friend of mine has this condition and another similar one that I have called May-Thurner Syndrome (Left Iliac Vein Compression). A Vascular Surgeon might be a good doctor to go see.
ivana8116242 jim64727
Posted
Thank you. Going to look into this. Does a urine sample look for this condition? I did abd Ct and MRI nothing showed...
jim64727 ivana8116242
Posted
These Vascular Vein Compression Syndromes of the Abdomen are not easily seen on scans unless specifically looking for them. From my experience most doctors don't. Almost all tests come back normal with these conditions. Color Doppler Sonography or Renal Venography are the good standards for diagnosing Nutcracker Syndrome. May-Thurner Syndrome can be diagnosed using Color Doppler Sonography or Pelvic Venography. Both of these conditions should be checked for as they can occur together due to the shape of the spine pressing into these veins. Women have a more pronounced lordosis so they are usually diagnosed 4-1 over men for these conditions.
Here's some Symptoms that these condition can cause that most doctors are unaware of so they often go undiagnosed:
May-Thurner Syndrome-
Extreme Fatigue
Anxiety
Depression
Exercise Intolerance
Brain Fog
Memory Problems
Difficulty Breathing
Back, Leg, Thigh And Groin Pain
Nutcracker Syndrome-
Chronic Fatigue Syndrome
Orthostatic Intolerance
Headache
Lightheadedness
Dizziness
Abdominal Pain
Unrefreshing Sleep
Muscle Pain
Joint Pain
Sore Throat
Low Grade Fever
Depression
Symptoms of Fibromyalgia
IBS
I've had Mild Chronic Fatigue Syndrome for the past 25 years. After having a stent placed for May-Thurner Syndrome about 10 months ago, almost overnight the brain fog dissapeared, fatigue started to fade, within days every ache and pain in my body was gone. Nutcracker Syndrome has been known to cause CFS and every symptom of CFS for over 10 years yet still almost no doctors know this. That's why it's a good idea to find a Vascular Surgeon that is very knowledgeable in these conditions. It's possible that if you do have either or both, that a simple stenting procedure could help out greatly with your problems. Message me if you have any other questions. Good luck!
ivana8116242 jim64727
Posted
I have made an appointment for color Doppler sonogram. I am actually very interested to find out if this actually may be one or both in my case. I am going to keep everyone updated in a week.thank you all so much. So blessed with all the support and time. God bless you all!
jim64727 ivana8116242
Posted
I hope you can finally get some answers. Here's a couple great articles to read if you have time before your appointment. They are by Dr. Thomas Scholbach, one of the worlds most knowledgeable doctors on these conditions. Keep us updated!
http://wp12612379.server-he.de/wp-content/uploads/2015/12/Vascular-compression-syndromes.pdf
https://www.researchgate.net/publication/6637363_From_the_nutcracker-phenomenon_of_the_left_renal_vein_to_the_midline_congestion_syndrome_as_a_cause_of_migraine_headache_back_and_abdominal_pain_and_functional_disorders_of_pelvic_organs
betty98863 ivana8116242
Posted
Yes please do let us know what happens with the test.
Hope things are not too bad with you, I had a visit with my doctor yesterday, and she done a ood test, get the results tomorrow!!!!!!!
take care
ivana8116242 betty98863
Posted
Will do. Let us know if you find anything out.
Kindest regards,
Ivana
kendall04216 ivana8116242
Posted
Can you please update us @ivana8116242
I am having the exact same symptoms as you with no diagnosis going on a year and a half now.