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I can't help thinking the worst

Posted , 3 users are following.

Chrissie23
Chrissie23

Hello Ladies

I'm really happy to have to found this forum and hope someone can gve me some reassurance or  help with coping with this. I had a bout of really bad abdominal pain in Feb this year which was accompanied by severe constipation. That resolved after a few day but when I went to the loo a few hours later for a wee I got a really sharp pain straight down from my belly button. Again, after a day or two this improved but didn't completely clear up. Long story short after a few weeks I went to the doc who thought it was a UTI. I took a course of antibiotics but when the pain persisted I went back. She was brilliant and examined me- couldn't feel anything out of the ordinary but thought to be safe I should have a scan. I had this last Tuesday and last Friday found out I have a complex cyst on my left overy. I also had a CA125 blood test (other tests the doc did when I went see her the second time were all negative) This test showed raised levels and so now I'm booked in to see a consultant next Friday. I'm in the prime danger group for a malignacy as I'm 5 years past the menopause at 61. The thing I don't understand is that between seeing the doc the second time and now virtually all my symptoms have completely gone. I do have a bit of discomfort where I now know the cyst is but that's all. I guess I don't have long to wait until I find out the worst, and I'm not really afraid of an operation if it needs to be done. I guess its all come so fast and I'm finding it really hard to deal with, and although I'm trying to keep positive I do dread it being cancer. Sorry to have rambled- searching the net this late at night  is never good- there are so many sites telling me things I don't want to hear! Thanks

0 likes, 4 replies

4 Replies

  • Carlee.
    Carlee. Chrissie23

    Posted

    Hi, I felt exactly the same as you when I was first diagnosed. I'd had a few symptoms initially but put them all down to other things (I'm currently anaemic so blamed that for the dizziness and tiredness, I have pcos so blamed that for the heavy periods etc). It came as a massive shock to be told that not only do I have a cyst but also it's very large (35cm, which I can see and feel but stupidly never occurred to me this was abnormal!, although I am very overweight so it's not as obvious). Then I was told my CA125 was raised and I would be rushed through for referral and CT. Scan etc. 

    my consultant has been brilliant but I think it's an overload of information and a lot to take in so naturally we pick up on the worst bits and build it in our minds. As the times gone on a little (it's been a few weeks since diagnosis) I'm starting to relax a little. I'm trying to stay calm and focus on it one step at a time. My surgery is 7th July.

    do you know what your next step is?

  • Kellers
    Kellers Chrissie23

    Posted

    Chrissie, tell me about it.  Thnking the worst is what I do.  Long story short I have a 5 cm mass on my left ovary.  Just got notice I am having an MRI on Monday first thing to see if that will them them  more than the ultra sound did.  Dr Google can be empowering or terrifying - but I have diagnosed myself with every cancer under the sun so far. Since they found this thing and therefore since I knew I had it, every symptom has got worse and a few more have joined the party too!  I am trying to be rational but like you can't help fearing the worst.  I would advise staying off any other sites (apart from this one of course) and see what the consultant says.  From reading things on here, until they do pathology on the cyst they won't really know what it is and so try not to worry until you do know what you are dealing with. Easier said than done but please keep us up to date on everything.  Lots of love. x 
  • june77782
    june77782 Chrissie23

    Posted

    Hi ladies .

    I'm currently in hospital had op Monday discharged tomorrow . Was diagnosed with

    Complex cyst am 50

    Had hysterectomy 9 years ago. Worried myself sick .

    Was down for

    Two ovaries removed and cyst then other bits if

    Malignancy present. Turned out to be

    Adnexal

    Mass fortunately benign which

    Was in the tube

    With lots of

    Fluid and

    Had twisted around

    This gave appearance of Coles

    Cyst on scan.

    So both ovaries gone

    Also took some omentum.

    Also

    Had lots of

    Scar tissue stuck

    To bladder and

    Bowel.

    So they really

    Don't know

    What is is

    For definite until

    They

    In there. I had put myself through such mental torment. Please try not to worry it makes the waiting so much longer. Good luck to you all

  • Chrissie23
    Chrissie23

    Posted

    Hi

    just an update to see if anyone out there has been in a similar situation. I was seen at the hospital today and have found out I have two cysts on my left ovary, one 10cm (yikes) The doctor examined me and let me feel it (yikes again with an added yuk) He thought it might be a dermoid cyst and said that sometimes we have these all our lives. I know someone said in another post they can even be twins which didn't grow? The scary thing is that he wouldn't rule out cancer and it also seems there is conflicting info about my CA125 levels. It seems I had a test a few weeks back when my doctor first sent me for a scan and that it was in the normal range. Now I was sent for one by another GP (my doc was on holiday) and she told me that was 330. The doc today said that didn't seem likely and could be a mistake. Anyway I'll need to have surgery, probably a hysterectomy, and he's ordered more tests on Monday. So that's another weekend of worrying followed by more worry waiting to see if the blood tests reveal anything. I feel like I'm wading ever deeper into some swamp with no-one ready to even throw me a lifeline and say 'don't worry'

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