I can't take this anymore

Posted , 5 users are following.

I am exhausted and can't sleep in the last 3 nights I've probably had around 6 hrs sleep this is making my fibro pain escalate..

I have taken pregabalin and morphine for the pain but still I can't get comfy to manage 2 sleep for moving every 5mins as I am so sore the duvet feels like bricks sittin on my body I have been In a flare for over a week now and each time it gets me down more and more I know when it's starting as my bowels go haywire then the constant pain and exhaustion then the insomnia starts

sorry for the moan I just feel like no one understands this horrible condition apart from people on here

0 likes, 6 replies

6 Replies

  • Posted

    Chris this feeling will pass, I know where your coming from, I had one of those weed last week, and although I'm still in pain, my mood has lifted, because although we have been dealt a rather bad hand, we have to make the best of it, I know it's easier said than done, but you will pass this dark period I promise x
  • Posted

    Aww Chris that's awful, it's worse when you can't sleep! I'm just coming out of a 2 week episode of feeling as though I was dying. I also take morphine, which isn't good, makes me dizzy. I used to take pregab but it made me gain weight, so I stopped. Have you tried amitrypiline? It's fantastic. I'm on 100 mg. I take it at 6 pm and by 9.30 I'm asleep. Don't get me wrong, it's not a miracle and I do find it hard to sleep some nights but it does relax you see you GP. HOPE YOURE FEELING BETTER REAL SOON LOVE XX
  • Posted

    Hi chris11339 we can all sympathise with you as weve all been their. Like with out the quilt on you and just try to relax get as comfortable as you possibly can. I know its difficult when your in so much pain and discomfort. try not to stress about how your feeling as that only makes the pain worse. how your feeling will pass try drinking warm milk ovaltine horlicks not caffine as caffine doesnt help sleep wise. dont appologise for having a moan weve all been their. Hope the flare up soon goes for you. take care
  • Posted

    I so hope your coming out of the worst of it Chris...  Feel 'Free' to moan and grissle with us, at us, at the moon, on here, any time of day or night..  No one will take offence at you for doing so...  As we all do so understand every bit of what your feeling, even thinking!...  So no one will, or shouldn't or won't take offence etc...

    As Kaz mentioned, it is true, to not focus on the pain, and the main issues. Although, yes it's very hard not to focus on them, as your living 'in the moment' with them...  Mentally, don't beat yourself up whilst your in a flare...  Focus on 'rising above it all, as best you can mentally'.. relax your brain as much as you can whilst your going through the Flare/s...  Lose all guilt and anxiety about having Fibro.  This is what it is..  Accepting the condition, is the first key step to modifying everything, even if it's a daily or weekly trial of varying modifications..here and there to suit YOU to help prevent Flares..or trying to manage and prevent the severity of them.  

    Pain can cause us to become solitary beings, so just be careful.  Explain to others of how you sometimes need that space/time out etc to best manage yourself.  Without having a burden build up of stress, anxiety above any low moods/depression.  Our depression stages, for most of us are only Low Moods due to Pain etc.   It's a lot different than Clinical depression, that a whole different ball game, and not the same thing.

    I've had to vary my bed covers over the years to...   as I definitely cannot take the wieght. NOR what becomes of severe heat and sweats.   

    I use a good set of cotton sheets, and one very light 2 n 1 duvae cover in this Summer weather, and will only use if I have to a woollen blanket in Winter along with an Electric Blanket to use when needed to balance the cold.  

    Again as Kaz says, a Good Hot Toddy, Horlicks etc can help aid relaxation.  If I'm really just plain thirsty I have a good drink of Blueberry Concentrate in hot or cold water, the actual Real stuff, organic fruit Blueberry juice..YUM!   Nice on a cold night or day to. Full of Vit C to.

    I'm sure there are other drink types to. 

    I have to be careful of Constipation, as I would and still do, sweat so much that it's pulling out a good few millilitres I guess over time. So I have to make sure I have plenty fluids on board.  I have had great success since using my Ninja to make awesome Fruit and raw veg drinks.  Helping to keep the Fibre and bulk from building up and me getting into trouble...  Yaye!!   

    Sleep issues re hours of sleep OR the NONE Sleep is something that we mostly ALL suffer with.  It is a predominate Fibro Feature!...  Remember some folk don't have all symptoms, some progress to acquire more or all symptoms, some are Lambasted pretty much in a huge dump and continue with hardly any reprieves.

    I've been awake pretty much all night tonight!  dozed with the laptop on my thighs in bed, propt up with pillows.  Nodded off about 3 times yaye... haha.  But I will have 2 or 3 hours kip down later this morning.  It's just how it rock and rolls for me now.  I've accepted that part of it now.  Along with not being able to complete a lot of chores I would normally get done. hohummm.   Well, I'm not out to impress anyone or folk, they have to accept my having to make allowances and having to step back from housework 'all that I would normally do every day/every week'...   You know the usual typical thorough routine about the place inside and out..  Well I cannot do this anymore to that degree or speed.  So some things are on a fortnightly or monthly basis now!.. Yup ...  but that's life for me...

    confused  Hugs... take care, go easy on yourself...x

  • Posted

    Everything Deb said is right, we are all here for the same reasons and probably the only place we can be honest and have a good moan. I too have had 2 hours sleep but I know I'll catch up, I've got errands to do but they will get done when I feel a bit better. What cheers me up is a strawberry milkshake and a few tunes from Michael buble! X take care Chris you will get there!
  • Posted

    thanks for all the supportive messages I will try a few of the things mentioned

    I have had fibro for 20yr+ only diagnosed 2014 after the birth of my first grandchild and not being able to hold him I got upset and that's when I was seen with a rummy and fibro was easily diagnosed .

    heading to bed now as working tmrw (something I won't let this fibro steal from me) I have lowered my hrs but won't give up I just relax the day after even though Ime extremely sore even more so when in a flare but my boss is great and puts me on light duties during this time

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