I DO NOT have Bleph! Misdiagnosed 10 times!

Posted , 7 users are following.

Yesterday I was told I DO NOT have blepharitis. I was misdiagnosed with it by 4 eye specialists and 6 optometrist before I went and seen the best of the best to be told I absolutely do not have it. My Crohn's disease is in fact causing my eye to be inflamed. Hence being on the FODMAP diet is the best option and is working! In just a week I have seen significant changes and improvement. 

The specialist I seen yesterday also told me that all of the eye drops, steroids, lid wipes, hot compresses etc, have just flared the eye and eye lid up even more as they eye doesn't take well to misused products and it causes further issues and sometimes long term or unreversable issues. Please be careful with your "bleph". Make sure you get many opinions as I did and spend the money to see the biggest and best specialist you can. I have now wasted over $6,000 over the last 11 months on this thinking I had bleph when all it was, was simply the need to change my diet and my tablets that I take for my crohns! 

Please be careful!!!!!!  Just because it looks like bleph doesn't mean it is! 

Also be sure to see a Dermatoligist before accepting you have Bleph as this specilaist told me there are several skin conditions that happen around the eye, eye lids and lashes that are misdiagnosed for Bleph, when it is simply a cureable skin cond.

1 like, 18 replies

18 Replies

  • Posted

    hi David,

    i did see opth surgeon! I saw my regular eye doctor, my eye surgeon, dermatologist then allergist! I'm sure that's all our stories in trying to get answers. 

    Everyome added to diagnosis but I believe it's an allergic reaction to my multiple allergies. I now get 3 shots 2x a week to build up my immunity . the frequency of the shots will change as I gain immunity. 

    i learned so much on this board . In reality I credit this group for curing me!!

    Im really thankful to everyone who shared their experiences and cures.

  • Posted

    Hi Melissar11.

    I have posted a few times on the Blepharitis blog. Today, because I was not seeing an improvement in spite of diligent cleaning etc., I saw an ophthalmologist. The Blepharitis diagnosis had come from an optician. Like you, the ophthalmologist said that it is most likely that I do not have Blepharitis but probably conjunctivitis. I have a new treatment regime for that to begin now and am hoping for an improvement. 

    Clearly these eye conditions are difficult to diagnose, so perhaps others have had similar misdiagnoses.  The advice today was to stop the cleaning, unless eyes are sticky in the mornings. 


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