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I am a 51 yr old woman. I went to a new neurologist because I was having blurry vision, dizziness and bad headaches/migraines daily. Back up in the years prior, I was diagnosed as a teen, passing out as a football cheerleader, with thoracic outlet syndrome. My mother and I decided it wasn’t severe enough to have removed. My right arm has been numb my entire life. So I end up having 4 children in 6 yrs and becoming a stay at home mom for 17 yrs, had neck issues always.... I go back to work, I start having more issues and in 06 I had thoracic outlet surgery, BIG MISTAKE! So I learn to live with horrible nerve damage in my right side of my neck, shoulder, arm pit, just a joke. Then I start having more neck pain, lots of stiff necks, in the middle of this my friend from my younger yrs, her daughter was diagnosed and operated on with chiari, she swore to me I had this issue, I asked my drs they said no. I ended up having c7 herniate completely, had surgery. Then 2 yrs later I’m being told I need c5/6 operated on, they gave me a window of 6 mos. so I planned it out that I could maximize my income, I sold cars, straight commission., and I had a grandchild due that feb, so I scheduled my c 5/6 surgery for oct 2011. Well in May of 2011 my back starts killing me, long story short, I end up falling with no warnings at all, sciatic nerve fully involved, I need surgery, I pushed it off as long as I could but, I then needed to do both surgeries because my short term dis. was only 1 time in 18 mos. So, I schedule my back surgery for oct 2011, my neurosurgeon said if you follow all my rules, I will do your neck in Nov, so of course I get it done as well. Well the neck surgery went ok and the back didn’t, then I was told I had a paralyzed vocal cord. My ent wouldn’t operate on it until 6 mos was up because insurance companies say most heal on their own, well guess what? mine didn’t so in may of 2012 I had an implant put in it. I’m disabled now, I live in chronic pain, I am numb from my head to my toes 24/7. I choke all the time, my voice is manly, I hate everyday, I have been battling Hashismotos, hypothyroidism, for 4 yrs, fired 4 endos, I finally found a dr that has a brain about the thyroid, I have no thyroid function, meds irritate my nerve damage, I can’t take meds for the nerve damage either, they agitate it as well. I then go to this new neurologist, that ordered my brain mri, to pick up my results, and It says that my pituitary gland is flatted in the sella with fluid filled halfway in it, ( my thyroid dr insisted I retrieve my mri results) especially since my pituitary gland wasn’t functioning either..... then the conclusion of my brain mri said that I have a 4-5 cerebellar tonsillar herniation constistant with a mild chiari type 1 malformation??? Seriously after a box full of MRIs and CT’s and X-rays over the past 12 plus years, and no one has ever mentioned this before,?? I asked again since I had some family members (children) were diagnosed in the passed few yrs. and operated on for this issue, they said no again. So I guess what I’m scared to death about is can I really have this disease since I have so many of the signs and every day I get another. BUT how is something like this missed ?? Really? and I’m praying I don’t have it. I already am disabled, my life has changed so much in the past 12 yrs, and I truly swore if I ever needed another surgery, I would have to be sedated at home to have to be operated on again. This new, soon to be fired neurologist, never even brought up either issue on my report of the brain mri, he didn’t feel the need, but he also didn’t know that I had picked up the report already. So luckily I have this thyroid dr. that cares enough about me. Maybe she can find me a neurosurgeon that has a specialty in chiari to tell me yes or no. I truly don’t know that my current neurologist, that did my last 2 surgeries, that I have asked 2 times if I could have it and he said no 2 times....how do I supposedly have it now?? I am so confused. I know that I have radiculapathy in my entire body per a genius neurologist that did both my upper and lower body EMG’s approx 4 years ago and of course he went back to his home country. So... After choking again on my dinner, while I’m trying to explain this situation, and I just keep telling myself that I don’t have this issue, the CHIARI, but yet while writing this with my blurry vision I keep thinking what is going on with me. ? Help..... I’m driving myself crazy....thank you... I’m scared.
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