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I've had hs for probably around 15 years. I just recently learned what it was called in March of this year. Mainly because I was too embarrassed to go seek medical help, in the beginning I did try to get help but had terrible experiences,at 17 being a shy girl and not really knowing an adult that I can trust, I tried to see doctors on my own and only to be misdiagnosed and then just too embarrassed to go back again and I just lived with it, with all the pain and discomfort. Finally August of last year I decided that I didn't want this pain anymore and just kept going to see a regular doctor, he made me feel like a human being in pain not like just a disgusting unclean person. He referred me to a dermatologist that took one look and bam hidradenitis suppurativa it only took her a minute to look ... She left the room came back and gave me steroid shots behind my neck, under my armpits, my groin, buttocks & under my breasts.. So I was supposed to first go see her in oct/15 n had to reschedule for dec/15 then again had to reschedule for March/16 -finally made that one-was supposed to go back June/16.... But had to reschedule again until August... Having so much difficulty financially as I have to travel about 6 hours and spend a night... She had me on 2 different antibiotics but had to stop taking one because my stomach can't handle it... I'm 33 & I feel like an 80 ur old I can barely move, I'm diabetic, anemic, and so depressed not to mention the pain I'm in 24/7. I HATE that I have to depend on my hubby for every little thing even helping me to get up and go use the bathroom is a big deal!! I'm sick of not being able to do simple household chores and to be looked at as lazy... I'm tired of my family wondering why I don't get out of bed. They just don't understand the pain. I just wish it was gone. I pray and pray and I just wonder what I have done so wrong in my life to deserve this?!? I feel like such a burden. I'm so sad that I can't take my kids to family outings I used to love the outdoors and now I don't even want to show my face in public because I need help just to walk! I just wanted to let it out. I have absolutely no one to talk to about this because no one knows anything about it. Sorry for such a long post.
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