I don't want a Label! I want a Diagnosis

Yes you deffo got it Hunny I was same as that still am, I was going gym everyday so I thout it was that, but I had it for about 3 years didn't even relize Untill I couldn't besr it any longer mine was fetched on by family trauma daughter went live with dad broke my heart xxx

Defo sounds like fibromyalgia to me! I'm no expert but have had symptoms which have gradually got worse from being 19 (I'm now 36). The way you describe your muscles is EXACTLY how mine feel-if I walk up a flight of stairs (when I can) or have been doing any sort of activity for a few mins my muscles start to burn-like lactic acid build up if ud been to the gym.

But where in 'normal' people it quickly wears off, mine lasts for hours, some times longer and is excruciatingly painful.

It makes me sweat and eventually feel nauseous.

Keep on at your doctor-I know it's hard going-my diagnosis took about 13 years,but eventually you'll get there-you sound like a determined person.

Good luck on looking up the fibromyalgia ,I hope you get a diagnosis soon, best wishes xx

Hi there. I haven't looked through all the replies, but you might want to investigate 'systemic mycotic (fungal) infection' maybe candida or similar. My experience of GPs reveals that they don't test for this condition or understand it either, which is a bit strange, being as there are only three types of infection (viral,bacterial and fungal) and to ignore one seems a bit careless. Anyway, Please excuse my bitterness. You might have better luck with a non GP doctor.  I had to go the self help route and had great success through educated experimentation with some powerfull antifungal drugs, which was terribly unpleasant and quite dangerous, which seemed to clear my body of the infection that was causing many problems and indescribable and torturous pain in my muscles. I wouldn't advise doing what I did though, find a doctor who will carry out the tests in order to get a complete diagnosis.

In the mean time, try cutting out any foods that execerbate the possible issue, like sugar, bread and any fermented products. This might give you some clues. I found 'wild oregano oil'  and coconut oil helpfull when applied to the skin. Though not together and starting with small amounts to guage the effect. 

Hope this helps.

from earlier post. Be super cautious if you do try coconut oil  or Wild oregano oil. The affect when applying to the skin can be more far more powerfull than consuming the oils. Maybe best to speak to someone first. 

Thank you all so much for your time and effort, all of your comments, suggestions and tips are greatly appreciated xx 

Just an update -  I have received my Referral letter today, appointment date is 13th December.

Hi there,

i can totally relate to your post & how frustrating it can be. Im 44 & recently got diagnosed with osteoarthritis & fibromyalgia  after 10 years of symptoms. I also have PTSD.All my symptoms started 18 months after having my kidney removed & traumatic few years. I've been completely housebound now for the last few weeks due to the excruciating muscle spasms & muscle weakness along with constant aching & stabbing pains in shoulders neck,  upper arms, fingers, lower back, hips, knees . I'm seriously starting to think about getting a wheelchair now, because everytime I try to take a short walk it seems to make me worse. I lose my balance really easily lately too. With a electrics wheelchair I couldc at least get to the local shop for supplies without having to on relying on friends all the time. Is anyone else finding  walking a problem & use a wheelchair?? I would do anything to get my independence back, I really would!!  I'm on 30mg amytriptiline at night and have not  found they have made any difference to my pain & the pain still wakes me a few times a night & then can't sleep past 7am everyday. Then I'm falling asleep again all during the day.  Is anybody else having the same problems???