Posted , 3 users are following.
I'm having a lot of difficulty with this condition my eyes are so blurry I now have to wear glasses just to see the t.v. clearly. I feel guilty when I have to miss work due to the pain and spasms. Does it ever get better ?
1 like, 5 replies
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jillian41791 rachel01351
Posted
Google fibromyalgia for list of symptoms. List which you experience and degree and your relevant medical history and relevant family history from both sides, that you know of...Inform them how it is affecting your life and work. Take all info to Dr,. Quiz him about his knowledge about fibro. Panadol osteo I was first instructed to take for my pain from AS joint pain. 6am/ noon/6pm (6hrs apart minimum for me as that's what I required from start since keeping pain diary for my dr for 2-3mnths) Spasms. I had them really bad and constantly then I started taking magnesium with food once a day as instructed. That wasn't enough so quizzed about it at chemist as spasms still happening so twice now. That worked! 1 @Breakfast and 1with dinner. ...Do what they say, be patient , keep them informed with changes and don't expect overnight miracles. Research/practice holistic methods also like hydro, meditation, positive thinking, yoga, massage, charkra balance, reflexology, sauna, reading, painting, mindfulness... The list is limited by our imagination....
rachel01351 jillian41791
Posted
HSLEW83 rachel01351
Posted
Hi. I don't know if it gets any better as such, but you tend to manage things better. Normally your outlook on the illness changes overtime. Half of that is in accepting that you are ill and aren't ontinually fighting that idea. Feeling guilty is normal, you feel you're letting people down, but in theend those thoughts are counter productive. In accepting what you can't change you do eventually start to see things differently.
As others have said, google Fibromyalgia and look at how others manage this illness because medications are very hit and miss really. i don't believe there's much evidence to support any one medication, it's often a case of what works for you and that may be in alternative therapies not just the usual pharmaceutical ones.
I think the early stages of having this illness are the hardest if only because it's so frustrating when everything comes back as normal, there are usually no abnormal bloods/xrays or scans with Fibro, which makes it all the more difficult to accept. I really hope things settle for you, but if not try and learn what works well for you and try and be kind to yourself and listen to what your body's telling you. Good luck.
rachel01351 HSLEW83
Posted
jillian41791 HSLEW83
Posted
You are so right and usually I find when people are saying how well I look, inside is not the case-we try so hard at times to be positive and use diversional thought therapies and focus towards best management, especially when we're with other people and sometimes I just crash later in the day...the fatigue gets me.I'm more understanding of the topic now and gradually accepting it but I'm determined and believe that retraining the brain will help reduce the number and intensity of the flares by working out the triggers that set them off!