I feel like I'm on a rollercoaster

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In 2012 after having my 2nd child I was diagnosed with hypothyroid. I was so thankful to finally get some results after months of dr telling me nothing is wrong with me. It was a walk in Dr. who did lab work and diagnosed me. I was having symptoms like severe muscle weakness (at times I felt like I was going to collapse walking up 5 stairs, or drop my baby), fatigue, hair loss, irritable, confused, unable to concentrate. Just terrible and definately not like me at all. I would get blood work done every 6 weeks and every few months get a call to change the dose of my Synthroid. Sometimes results too low sometimes to high. In April 2014 I became pregnant with my 3rd child. Specialist doubled my synthroid while pregnant to .125 mg. I never felt better, the whole pregnancy I felt great. Energy, no hair loss, able to concentrate. 

Now, my 3rd is 7 months old and I'm back to feeling helpless. I'm so irritable, hair is falling out, my body hurts so bad and my brain is so fogged. Bloodwork every 4 weeks. I am on .1 mg synthroid at the moment. My family dr says there is nothing I can do to get my thyroid back on track just says eventually it is going to 'burn itself out'.I dread going back to work fulltime in 5 months while raising 3 kids, I don't think I physcally and mentally have it in me. I feel like ripping my thyroid out myself.

Any suggestions are greatly appreciated. I just want to feel normal again.

 

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7 Replies

  • Posted

    Hi Vicki,

    Did these symptoms start after starting synthroid? I had the exact symptoms but only after I started synthroid. About 3-4 months after I started actually.

    Stephanie

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    • Posted

      I've been on synthroid for 3 years now, I don't think the symptoms are linked to the synthroid though. I just don't know anymore. Seems symptoms worsened a few months after each child was born.

      I hope you start to feel better Stephanie. 

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  • Posted

    From what you say I would say that your thyroxine would need increasing again. If your symptoms are back and you are on a lower dose than when pregnant your bloods need to be done again. The thyroid burning out completely is irrelevant as it has already malfunctioned or something is causing it to do this (pituitary gland ect,), hence the need in the past for the meds. If your current dr is unsympathetic maybe find one that looks after you and is more thorough. I have an excellent old school Nhs doctor who is very flexible and always willing to be thorough in bloods without negative comments. I too was diagnosed after my second child, not had a third yet and congrats to you for having your third. It's important for you and your family that you feel better. I'm now on 150mg and it has been a roller coaster even now and I still have my good and bad days but feel a lot better than when I was first diagnosed. Good luck :-)
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    • Posted

      Thank you for your advice. I am going to insist on seeing a specialist again. Time to get a little tougher with the Dr. as it is me suffering. And thank you for the congrats, I love being a mom. I don't like how moody I've been though, it's just not me. My poor husband and kids. LOL

      Thanks again!

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    • Posted

      Hey no worries and good for you for getting tough. I know the Nhs Drs only get a ten minute slot so time is limited and some can be quite inexperienced so it helps to be persistent. I know what you mean about being moody. I sometime feel so miserable without any reason. I hate it for my children as they see me as not being happy, which is heartbreaking. I do wonder though if the medication itself is insufficient as i have read a lot about Armour  which a lot of people in the u.s seem to do very well on and I don't think it's available here. Also it's only t4 which is replaced and not t3, which is what used to happen. It's a bit of a maze! Take care and let us know how you get on :-) 
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  • Posted

    Hello Vicki:

    I am an RN and live in the USA.  I suffer with Hashimoto's Thyroid disease.  y common to have the thyroid change during or after pregnancy.  Our bodies as  women have changes all the time. 

    I suggest you call your MD and explain how much better you felt while on the higher dose and ask for it to continue at the 125 mcg dose.  Doctors do not feel your symptoms and you must explain how much better you were on the higher dose.  Your thyroid while pregnant was under more stress but you should not suffer now.  Just ask your doctor for the higher dose.   It could be that the doctor wants to see how your thyroid settles after the pregnancy.  In some women, it gets better and makes enough hormone,  but in most it does not. 

    The symptoms you are having are of Hypothyroid and you just need more of the hormone as time goes on.  Many of us have had to up the dose over the years of having thyroid disease. 

    Hypothyroid symptoms are:

    Weight gain despite diet, muscle aches and pains, hair falls out, nails break, dry skin, tiredness/sleeping a lot, mental confusion, constipation, irregular or no periods.  These are the most common ones, there are more.

    Also get a mineral panel done (blood work), iron, potassium, calcium, B complex of vitamins, magnesium.  Many women are low in these and please take a good multi-vitamin as it helps to have the proper minerals in good order and it helps your thyroid med work well.

    I hope this helps, Shelly

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