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  3. Polymyalgia Rheumatica and GCA

i feel like im burning up

Posted , 12 users are following.

tuningup
tuningup

I am so hot but not in a good way...lol..all day long ive had hot flashes and now im just plain hot...im not sick..i took a pain pill to cope with fever and i wipe myself down with cool cloths that feel very cold but they r just baby wipes at room temperature...im on third day increase pred  .was on 20 to 17.5 to 20..is this the prm or pred making me feel this way..ill tell you ive been through a lot in my life but this has me totally discouraged..im only 2 months into this prm how will i take years of this...im also short of breath just sitting  but thats been going on for months...do i just deal with this or call dr...i cant remember what it is to feel good but when i wake up i feel half way decent except for stiffness but as the day goes by i feel worse..is this the pred...ty for listening to my whining...sharon

 

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  • cindy63197
    cindy63197 tuningup

    Posted

    Did you take your temperature?  I early on got a fever from the PMR.  Also on doses such as 12 or 15mg, the Pred definately causes hot flashes, especially when you are lowering the dose.  It's like going through menopause all over again.  

    I remember getting out of breath a little when trying to do too much, but not when just sitting.

    When you first get PMR it is so devestating, and when the doctor calmly tells you that you will have it at least for a year, you are shocked.  However, that being said, each month you should gradually be getting better, though maybe not to your former level of strength.  

    I've been on Prednisone for about a year, gradually reducing, and am now on 3mg.  I feel almost normal, though I am not as strong as I was before PMR, and if I try to do too much I can suddenly hit the wall with exhaustion.  I am telling you this because at first it can seem so hopeless, but it really should be at least gradually getting better.

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