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I found out afew years ago i was B12 deficient and start...

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Guest
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I found out afew years ago i was B12 deficient and started having injections once a day which i have to say i had never felt better. After a week i went to having them once a week then once a month and now i have them once every three months. I would say for 9 weeks out of the 12 i am on top form and feel fantastic, which after reading all the coments i feel very lucky, then for the other 3 weeks its all down hill. My work, social life and exercise sufers so much and i feel so depressed which just isn't usual at all. I feel if i could just get the injection after ever 10 weeks insted i wouldn't have to go through any of this but the doctor just won't budge on the 3 month thing. I feel for everyone who has this as i am sure some people just think we are moaning and don't realise how had it is but i am also very awear that we could all have a million things worse wrong with us so am thankful that for 9-10 weeks out of 12 i feel fantastic x x x x

[i:717a095332]This message was automatically imported from the original Patient Experience[/i:717a095332]

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  • Guest
    Guest

    Posted

    I too have my injections every 12 weeks, they take about 2 weeks to kick in and then I feel not too bad for the next 4 weeks, then I go downhill again. The last 3-4 weeks are awful. I struggle to get to work and back, can't think straigt, legs ache, etc., My doctor won't budge either from the 12 week injection. People who suffer with this arn't recognised at all as being ill. We are just told to get on with it

    [i:86e9151d89]This message was automatically imported from the original Patient Experience[/i:86e9151d89]

  • Guest
    Guest

    Posted

    Hi, I was diagnosed 8 years ago and have the injections every 12 weeks. My mother the same. I am 52 and also have thyroid problems and recently was diagnosed with mild Rhumatoid Arthritus. I've been browsing the webb today to see if I can find any info on varying the 12 week interval. I am so pleased I stumbled across this. I agree one week to pick up then about 7 or 8 good weeks followed by three or four all downhill. I have on accasions managed to have my injection early, usually when my GP is on leave. I am at week 9 now and desparate again. Think I'm going to make an appointment for tomorrow and ask again. GPs don't like us doing our own research so I probably won't mention finding this site. What a relief though to find fellow suffers with the same experiences. Thank you for sharing them with us.

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  • Guest
    Guest

    Posted

    i was diagnosed with pa just over a year ago & yes it was the biggest relieve of my life. for years i had been going down hill depression unexplained illness pains & every virus & flu bug hit me for twice as long & twice as hard i went from being a very energetic single mum of 3 with a full time job into an exausted mess in 5 years the last 2 being the worst i thought that my life was over & this is what it was like to hit 40 i don't think a day went past when i didn't cry & i mean really cry. i think the only reason my doc investcated me further was because of my weight loss it was pretty dramatic the awful thing was that my blood results had shown 5 years before i probaly had pa but they didn't test me. after initial treatment of the loading doses & then 12 weekly jabs i found as alot of others do that the \"feeling good\" only lasted for a short time so after alot of discussion shall we say & working out a pattern of how i feel i have managed to get my jabs every 6 weeks & have not long agao had my 3rd jab this year - so far it has worked i feel bloody great almost normal so push & push for what you need everyone is different& remember in the usa & some other counties monthly b12 jabs are routine good luck :D
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