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I give up

Posted , 4 users are following.

Flowerlady
Flowerlady

Hi all,

Just returned from my visit to the doctor's in the hope of some results from the trip to see Rheumatologist.

And guess what, he had not heard a thing from him. I am so dissapointed as I am in so much pain. I have had Fibro for years, and the Rheumy says I may have ME!! too.

The doctor said it could be a couple of weeks yet, I were not at all happy as I had to walk half a mile to the surgery and now the pain is so bad...

I am slowly giving up on doctor'sfrown

 

1 like, 12 replies

12 Replies

  • Bubbles61
    Bubbles61 Flowerlady

    Posted

    I feel for you and its so wrong that so many doctors just dont seem to care about m e sufferers,iv had it for 14 years and my doctors are still so uncareing unsympathtic unintersted & have never given me any help or advice, i have to go from day to day & find my own ways to help with what i can and cant do, lots of people say change doctors but thats not always so easy to do,& theres no guarantees that another doctors will treat you any better..

    Be as pushing and persistant as you can be,as thats thee only way we can keep getting heard...

    Good luck and hope things go well for you..

    • Flowerlady
      Flowerlady Bubbles61

      Posted

      Hi Bubbles

      Thank you for your kind words, I just can't understand doctors these days. We are all suffering this debillitating illness and should be helped not frowned upon.

      I will be changing my doctors soon, I hope as we have sold our house and I am moving to a compleatly different area, still in Shropshire though. And maybe, just maybe there will be a doctor who cares..confused

    • Bubbles61
      Bubbles61 Flowerlady

      Posted

      If you can and have time try and do some research before your move into any m e groups in the area your moving to that can maybe help with advice etc into a good doctors surgery,good luck with the move and finding a decent doctor..
  • helen70967
    helen70967 Flowerlady

    Posted

    I am sorry to hear that your not getting the answers and treatment you need. Last year I left the surgery I had attended for my whole life for the same reason.

    It can be a little hit and miss for medical practitioners. Doing research, as suggested by Bubbles61, is a good start point. Equally if you are happy the way the surgery you move to deals with everything else then perhaps try seeing a different doctor within that surgery. For example I am happy to see any doctor at my current practise for regular complaints (e.g. a rash or sprain or what have you) but will only see 2 doctors regarding my specific medical conditions.

    I do not blame the doctors for this though. The BMA have designated CFS, Fibromyalgia and M.E. as psychological disorders until 2010. So many of the practitioners around today were taught that this is the case and are having to re-train. In the experience of myself and many of my friends they are not being retrained but learning through other practitioners in the area and their patients. Looking at what works for them.

    As Bubbles61 said; persistance is the greatest tool in your arsenal. I know it takes a lot of energy, that you don't often have, but it is worth it in the long run so you can at least get the help that can be offered.

    Sorry I went on a little there.

    Good luck.

    xxx

  • alison44235
    alison44235 Flowerlady

    Posted

    I find docters are not good on the M.E. side of things. I think they think and everybody else who hasn't got it that it is all in the mind which it isn't it is a physical illness. hope this makes sense I am very tired.
    • Flowerlady
      Flowerlady alison44235

      Posted

      Hello Alison, we all certainly know that its not all in the mind. If it was then why do we suffer such pain
    • alison44235
      alison44235 Flowerlady

      Posted

      What I meant was that lots of poeple think it is all in the mind. I know it isn't.
    • helen70967
      helen70967 alison44235

      Posted

      Hi Alison.

      Firstly I would like to appologise if I came across as rude or abrupt. I was trying to agree with you.

      It really gets my back up when I hear that people are still being told or its implied that it's all in the mind; especially when you think that WHO have been saying it is a physical condition with mental health symptoms since 2000 (DSM-IV) and even the BMA have acknowledged this since 2010.

      Hope you are as well as you can be

      Helen cheesygrin

  • OliverTatlow
    OliverTatlow Flowerlady

    Posted

    Sorry to hear about that but unfortunately sounds all too familiar. I've been diagnosed with ME for 4 years and you do really have to push doctors to get them to do anything otherwise you just get fobbed off. Problem is it's always most difficult to be assertive and stand up for yourself at times when you're feeling so drained and poorly. I find it useful to always take someone with me to the doctors to help fight my corner otherwise you may just end up getting bullied and patronised.

    I wish you the best of luck and hope you can get yourself sorted.

    • Flowerlady
      Flowerlady OliverTatlow

      Posted

      Hi Oliver

      Thank you for your kind words. I would love it if someone would come to the docs with me but unfortunatly I don't have anyone that  close. I always go with things in my mind to say, and when I am called in I just go to pieces and start sweating and shaking. Then everything is forgotten.I have known my doctor for over 20years. 

      Regards Anne

    • helen70967
      helen70967 Flowerlady

      Posted

      Hi anne.

      I have the same problem when I visit the doctors. I either end up panicing that its not worth mentioning and I'll be wasting his time or I simply forget what I went for in the first place.

      To get round this I write a list of what I want to discuss and decide which ones need addressing this time and which can wait for a bit. I don't know if this helps you at all.

      Helen

      xxx

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