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  3. Lichen Sclerosus

I got diagnosed 2 months ago and can’t get it under control

Posted , 4 users are following.

caroline1311
caroline1311

I am still using steroid cream every day , vaseline , moisturiser. I have cut out all sugar alcohol and refined carbs and dairy.

I am taking many supplements seeing an integrated Doctor , naturopath and a gyno my actual vagina has improved but my perineal has cuts and blisters see attached photo its pure agony does anyone have any suggestions ?? Thank you in advance xx

image

1 like, 12 replies

12 Replies

  • Ashley_Jo
    Ashley_Jo caroline1311

    Posted

    Hello, sorry to hear your news. Not sure if you are UK based? Your doctor can prescribe Epaderm ointment. Also advise using Dermol 200 shower gel, don't use perfumed soaps and shower gels. You should request that your doctor refers you to a specialist who will suggest a range of products. You may need minor surgery, if so dont be afraid - I had surgery 2.5 years ago and it made a huge difference. good luck, Ashley Jo

    • caroline1311
      caroline1311 Ashley_Jo

      Posted

      Hi Ashley Jo ,

      Thank you so much for your reply .

      I am in Australia , but will mention these to my Gynaecologist atm she has me on a steroid ointment , i have stopped using anything perfumed .

      I wasnt aware there was surgery i could have i will look into this .

      thank you so much xx

    • Ashley_Jo
      Ashley_Jo caroline1311

      Posted

      Hi Caroline, do persevere - i battled with LS for 9 years before discovering a great consultant. Surgery can help. Also suggest you ask about dilators to keep everything 'working'.Best wishes, Ashley Jo

    • Ashley_Jo
      Ashley_Jo

      Posted

      ps the steroid cream is important too x

    • Ashley_Jo
      Ashley_Jo caroline1311

      Posted

      Hi Caroline, persevere and you will find ways of dealing with it. Good luck! Ashley Jo xx

    • Vero84
      Vero84 Ashley_Jo

      Posted

      Hi Ashley, I read you had surgery. Did u have it to separate labial fusion? I am having that in 2 weeks to uncover my clitoris and I am very afraid. any info would be very much appreciated on recovery, pain, etc.

  • brenda23819
    brenda23819 caroline1311

    Posted

    i know what you mean when i start getting sores i use borax and baking soda and sat in warm water for 15 minutes 2 times a week and this really seems to help

  • brenda23819
    brenda23819 caroline1311

    Posted

    have you tried soaking in warm water with a half tsp of borax and a half tsp of soda for 15 mintues it will really help with the itching. i use this method all the time . beside ls i now have lichen planus on my skin and its alot worst than having ls

    • caroline1311
      caroline1311 brenda23819

      Posted

      Hi Brenda ,

      yes thanks i am doing that now , still battling with this horrible disease .

      so sorry to hear you now have another one to deal with , thinking of you x

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