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I had a really bad flare up of UC in Feb no tablets work...

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Guest
Guest

I had a really bad flare up of UC in Feb no tablets worked. I was addmitted to hospital and had IV steroids for a week. This got things under control. Since then I have been on 20mg pred daily when I try to reduce things flare up again. Im having lots of side effects. My moods are all over the place I have gained a stone in weight and Im developing a hump at the top of my back which is slowly getting bigger and my face is all puffy. I have been told that these things should go when I come off the pred. Has anyone else had these side effects?

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0 likes, 4 replies

4 Replies

  • Guest
    Guest

    Posted

    I do not have much experience with long term usage of prednisolone but had to take a treatment last year while in hospital for two weeks due to a cervical hernia.

    Are you following a saltless diet? I was warned about the possible side effects of the drug and stuck religiously to the diet. As a result I only experienced the mood swings but that was OK as most of the time I was quite cheerful. My weight actually went down (no salt!) not up.

    I hope you will find a way to reduce the side effects smile

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  • Guest
    Guest

    Posted

    hi, ive been suffering rhuematoid arthritis for seven years now. Unfortunately i have been on prednisolone for this long. Tried drugs such as methetrexate, diclofenic, etc etc, but these i was allergic to. only found out i was allergic to them when i reduced my steroid intake. Quite frightening that steroids can hide so much going on in your body. At the moment im taking no medication at all after having rejected numerous drugs. I have a bloated face and stomach and have put a stone on in weight. I would seriously try and reduce steroids and get a sympathetic doctor. I see my doctor weekly and he does not like me taking steroids. So im off them now, precisely one week, does anybody know how long it takes for your face swelling to go down? Would be interested to know. please email me on ****.

    cheers

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  • Guest
    Guest

    Posted

    Hi,

    I have been on Prednisolone since I had a flare up of UC in September. I was addmitted to hospital for two weeks but refused steroids by IV. I am now down to 5mg a day and I belive I should be off them by end of this month. My UC has been up and down and my bloods have never been right since.

    I have put around a stone on in weight but my face has never bloated but my belly has big time. My moods have also been bad but people around me have been very supportive. My Dr wants me off them now to see if the new medication I have been taking is working and as from another reply above steroids do hide a lot of things.

    I have been told my weight will go down when i stop them but I will have to follow a diet for a little while. I did find that each time I reduced the steroids the effects got smaller so hopefully when you are able to reduce yours things should pick up.

    Good Luck

    :o

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  • Guest
    Guest

    Posted

    Hello

    I also have UC. I was put on Prednisolone when I was 10. I gained a lot of weight and everytime they tried to reduce my medication I had a flare up.

    I was then put Mercaptopurine which, touch wood, has kept my condition under control. Doesn't make you put on. But the only thing is it's an un-licensed drug so I have to go to the hospital every four weeks to get a prescription.

    Emma

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