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I had a serious reaction to VB12 injections

Posted , 3 users are following.

cordelia18473
cordelia18473

In 1999 I was diagnosed with VB12 deficiency, was having injections for the first year. Then i was feeling a burning sensation in my back, always had the injection in right thigh. I told my consultant and the injection was put in my left thigh. Three days later I was doubled up in pain and could not walk. I was like this for 3 months, Then I was able to walk short distances but was all scooped over and had to use a wheelchair. I stopped the injections This lasted for another 7 months. In 2002 I had a schillings test done but I was getting over food poisoning but I still had to have the test. So another VB12 injection in my right arm and a capsule to swollow. within a few days my right hand was so painful and my hand started to claw. Went back to the consultant and she said she could not understand it. But because the test never worked, I had to have another test in March 2003, same procedure, but injection put in left arm. This time the pain started in my hand and tremendious burning also within a few months my toes started to hurt pain and burning. 

I refused to have any more injections. I could not work or even do much for myself. I was still under the consultant and in 2008 my whole body was starting to react to not having the VB12 and I was told. " If you do not have VB12 you will eventually die my white cells was over taking my red cells. My husband was so shocked he spent 3 month on internet to find a VB12 I could take. Yes bless him he found a sub ligual called.methylcobalamin. At first i took one every day for a month. Had a blood test done and found my levels were too high, so now I take one every 3 days and my blood count is good. The only thing is I am still paralised and have a clawed hand and sensitive to the touch and still very painful. But after 13 years it's part of my life and my left hand still burns and my toes are painful still, also I still cannot work. But my husband found my cure not the doctors. But sadly he died in 2010 from lung cancer.

Has anybody els had a reaction to VB12 injections.

0 likes, 3 replies

3 Replies

  • marion29181
    marion29181 cordelia18473

    Posted

    Gosh Cordelia, I've never heard of anything like this before, you poor thing. I've had extra tingling after the injections, which I hope is a sign it's helping to heal the nerves. There is another lady on here that I've been replying to, who is very allergic to lots of things. She is extremely worried about having the injections, and I've always thought they were harmless. I take methyl cobalamin as a supplement, between injections. How do you take your's as a pill, spray, or sublingual lozenge? Marion
    • cordelia18473
      cordelia18473 marion29181

      Posted

      I take a tablet under the tounge. I have to buy them on internet. I saw a specialist from London and she was going to investigate it as she said it could help people with early stages of MS.
    • marion29181
      marion29181 cordelia18473

      Posted

      It seems that low B12 can be linked to many illnesses and diseases. When you realise how necessary it is to the formation of normal blood cells, it's not that hard to believe. If your lungs, brain, nerves, are being under-supplied oxygen, how are they ever going to function properly? A mental health nurse posted a while ago, she had been diagnosed as low B12 and had started treatment. When she read a bit about it, and spoke to her work colleagues explaining what she knew, they began to routinely test new patients coming in for treatment. They have begun to discover that several have low B12. Knowledge is power, we need to spread the word, and make sure more people understand what it can do to be low in B12. There is a meeting at the Houses of Parliament on 3rd February, for the Pernicious Anaemia Society to explain it to as many MP's as possible. Let's hope they listen! Marion
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