I had decompression done March 2015
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After my surgery I did get more movement back on my left side but I'm still enduring a lot of pain numbness and pressure still down my entire left side.ive had an mri done 3 times since and it still shows and open syrinx my brain. My neurosurgeon has talked about putting in a shunt but I said no more. The only medication that allows me to function is gabapentin 600 and oxycodone 15mg.and ibprophen 800 3× a day. But now I'm starting to feel nausea with the oxy.i don't want anything but the pain and pressure is unbarable without them. I tried lyrica and couldn't deal with the pain so I stopped taking it and got back on my gabapentin. I'm tired of my life not being normal.i was a very vibrate 38 year old salon owner. I can't do half the things I use to because of the pain. And I was told I would be okay after 3 to 6 months.im very frustrated.
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helen11122 wanda72973
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wanda72973 helen11122
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melanieheather wanda72973
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b2wc97455 melanieheather
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melanieheather b2wc97455
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wanda72973 melanieheather
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b2wc97455 wanda72973
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i am so sorry to hear about your condition, do you live in the UK?, SURELY the decompression must given you lesser pressure (I mean less headache- even though you still have numbness, do you have any other condition beside having chiari?, did your NS explaining to you that the goal for decompression was only to reduce the pressure of the obstruction on the CFS flow?..I am unsure as every one is different it seems that each NS lso different, I seen 3 neurologists and 2 NS and they all practically said the same; 1. decompression will only help to reduce the headache if there is obstruction on the CFS - hence it is necessary to have a surgery. 2.Preventing to get worse. obviously depending on each individual a good surgeon will definately make sure they cut enough skull..etc..etc..remove enough..tonsil..etc..etc..patients also listen the advice given such as: unable to do like normal can do after the surgery such as: lifting heavy thing..jumping up and down...roller skater..roller...coaster..anything that..going back to work to soon....I will my surgery son, I heard quite lots of them from Walton Centre (Liverpool) Nottingham and Brimingham have ABOUT 98%sucess rate - it means that they are able to fully enjoy their quality of life back..perhaps you would like to be refered to any one of them if possible if you are in UK ask your GP? Please keep us update..as it is upset me to think another chiarian suffering..and we are so helpless..a part of try to think possitive..do not give up..just be assertive ask your health care professional to help you...its no good to be kept on medicine all the time with chiari because its our mechanical issue its not a disease..would your try to take grape seed extract, omega oil and magnesium oil spray..it will take about 30 days before it start working though..it reduce the pain...I ll pray for you Wanda..we all struggling..but keep positive..it will get better!!!!
wanda72973 b2wc97455
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