I had my annual copd review this week
Posted , 8 users are following.
I am a bit confused by the results. According to the nurse via spirometry my FEV1 has increased from 66% to 78% in just over a year and I can't see any reason why. I actually feel worse with more sob.
The nurse ignored my 3 chest infections in 4 month, my 'severe' symptoms such as not being able to keep up with my peers walking on the flat and also having to stop for breath after walking on the flat. When she did my sats they were only 91% and they are often as low as that.
She said all these are because I am still smoking. Could this be the case? I don't want any smoking advice please as I know I must give up but do you think I should investigate these symptons further?
She said I looked a good colour and wasn't out of breath talking to her so she wasn't worried.
I think this is rubbish and she is fobbing me off. What do you all think please?
Thanks Bev x
0 likes, 69 replies
Nanny1086 hypercat
Posted
hypercat Nanny1086
Posted
I know I need to stop smoking but easier said than done. The more people tell me too the more pressure I put myself under and last time I had a quit date I had a sort of meltdown the night before so I need to take the pressure off myself. This is why I asked for no smoking advice please. I know it all but can't do the stress while people are continually telling me to give up. I know you mean well but please don't.
Bev x
jude65855 hypercat
Posted
I add that I am an ex smoker, I stopped before I was diagnosed with COPD and before I had a heart attack, after more than 45 years.
You already know what you need to do
The
hypercat jude65855
Posted
If you are going to make judgements like that most people wouldn't qualify like the obese, those who don't exercise, those who eat bad diets and etc, etc,
This wasn't my question which was are my symptoms I listed on my post a result of smoking or not?
jude65855 hypercat
Posted
I was merely trying to give you the possible reason for the nurse's attitude towards you.
Maybe they are because of smoking, maybe they're not - there's only one way to find out but it may be too late, as it has proved to be in my case, being diagnosed 4 years after I stopped.
hypercat jude65855
Posted
Bev x
jude65855 hypercat
Posted
Just do it one day at a time or one 1/2 an hour at a time, access all the support and products which are available now and remind yourself you want to live as long as possible for yourself and your loved ones.
Good luck! There's a book which has helped a lot of people called "The only way to quit smoking" or something similar, not sure beause I've loaned it to a family member who's just quit, partly after observing how much emphysema is restricting my enjoyment of life.
Vee2 hypercat
Posted
The answer to your question is yes they most likely are. With each cigarette you smoke will cause further lung damage, as the lungs weaken through this damage you are more prone to lung infections, these in turn will cause further lung damage, and so it goes on. Smoking with lung damage is going to cause sob.
Vee2
Posted
Good luck with medics, smoking, health and life.
hypercat Vee2
Posted
What I can't understand is why my FEV1 rose by 12% when I am still smoking. Do you understand that please? That is what I want to ask my doctor about as I am not sure the spirometry was carried out correctly - it doesn't make sense! Bev x
Vee2 hypercat
Posted
Spirometry tests showing FEV1% are not fixed. They can give an entirely different reading from one test to the next, I believe many things can affect the change either way. Lung infection and no lung infection, a cold and no cold, narrowed airways caused by weather or irritants, asthma etc etc or high quality air days. Although in my own experiences I can feel like my airways are narrowed but can get a relatively good FEV reading. There seems to be no accounting for some things. Although I do wonder if air pressure is at a level that is good for the lungs our ability to expell air is greatly improved.
hypercat
Posted
Thank you.
gpgp hypercat
Posted
Do you know what the spirometry results were in terms of litres? FEV1 is number of litres of air pushed out in the first second of the breath out and the FVC is the total amount you push put after a maximum breath in. You can then work out the ratio which also helps the assessment.
ann03972 hypercat
Posted
lung doesn't fuction atall he suffers badly with breathlessness.
he isn't able to walk far. He was always complaint to GP who just shrugged and said it was all because he smoked. It took something else to happen to get X-ray and find out what was wrong with him.
i think when you are a smoker they blame everything on that.
he like yourself find he just can't give up.
i think as smokers you get second class treatment and no sympathy.
sorry can't be more helpful as someone who has never smoked.
ann
hypercat gpgp
Posted
I don't know the FVC and to be honest I don't know the first thing about working out ratios etc.
I think my main concern is that because I have been and am a smoker that I have been diagnosed with copd because it is a common smokers illness and nothing else has been considered. I have heard a number of people saying this has happened to them and it turns out there were other issues instead or as well as if you see what I mean. In other words just because I am a smoker doesn't mean something else isn't going on as well. My doctors refuse to consider anything else and I don't know the right questions to ask or even if I have the right seeing as I am still smoking and would feel guilty asking for more tests. Not sure what to do.
Bev x
ann03972 hypercat
Posted
had not had these he would not have found out his right lung damage.
just because he smoked !!! Ann
hypercat ann03972
Posted
Being a smoker makes me feel second class and instead of having a go at me sympathy and assurance I am not weak and have the will power to quit would be much more helpful in my battle. But it's easier to bash a smoker instead. When a couple of friends had a go at me I asked them if they would help me give up instead and give me support etc. and this stopped them in their tracks. They didn't want to do this they just wanted to have a go at me.
I am very sorry about your son - does he want a quit buddy? He does really need to give up too. Thanks for your reply.
Bev x
ann03972 hypercat
Posted
really difficult, he knows he has lung damage luckily he was at the hospital
for something else they examined his chest, sent him for X-ray showed shadow on his lung sent him for X-ray and he was then referred to consultant where he was given bronchoscopy where they found damage
he has a few inhalers etc and now has six monthly checks.
i have been trying to persuade him to get E ciggie, but his girlfriend also smokes. I just hope he will try as he's only forty five and coughs constantly.
if it had been just his GP he wouldn't have been referred as anything he sees him with is always oh well you smoke.
i feel for you maybe you could try the e ciggies and let me know. Good luck
ann
jude65855 ann03972
Posted
Have the e-cigarettes been cleared of potential health risks? I saw a UK doco recently which said they haven't been researched enough and are just another ploy by the tobacco companies to keep people hooked on their product. Still, presumably still better than "real" fags as are nicotine gum and lozeges, sprays, etc.....
jude65855 hypercat
Posted
It's part of addiction to be in denial about the harm one is doing to oneself: I know because I've been there, I know all the excuses and procrastinations and self-delusion and I will continue to point this out to people who are still hooked, not judgmentally but as matters of fact.
A quit buddy is a great idea and I'd like to remind others that many smokers managed to give it up before there were such things as nicotine replacement therapy, hypnotherapy, support groups, e fags etc etc etc as there are now.
hypercat jude65855
Posted
You can shout and yell at me all you like but it doesn't help me - what does help is hearing other people's battles with ciggies and people who are genuinly concerned for me.
We are all different and I don't react to bullying or scare tactics - if I did I would have been one of those who packed it in. All this does is make me more stressed and less able to think positively about myself and that isn't helping me is it? You think you are offering support but in reality you are not.
Please don't reply to me any more unless you can be supportive in a way I can relate to.
jude65855 hypercat
Posted
think you must be confusing me with someone else.
I am totally supportive of anyone who genuinely wants to give up smoking but I'm not into supporting other people's addictions by not passing on what I know from my own experience and others close to me.