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I had my first abcess on my coxix when I was 15 yrs old. I had a disrict nurse come in on a daily basis to pack it with gause. Since then I have had more than ten operation to remove these abcesses. At one time I thought I had breast cancer, because I had abcesses under both arms and they were black. I had them both removed and was off work for 5 months, because again they were left open and were packed with gause by the district nurse. I am 35 now and still having the abcesses under both arms, but have them on going in my groin for over ten years. They have been cut out and lanced in the same place but still keep reoccuring. I am glad to find out I'm not the only person in the world suffering from this. The pain is undiscribable at times and I wouldn't wish this condition on anyone. I am currently off work with one in my groin and in my chest. I haven't been diagnosed with Hidradenitis Suppurativa but it sound like the condition I have. The only thing I can do is wash with antibactirial soaps, and use the fudicin cream given by my GP. I would like to hear from anyone else that suffers from this, I know what your going through and it's not pleasant.
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I READ YOUR COMMENT AND BELIEVE YOU HAVE HS. MY FIRST LESION OCCURRED WHEN I WAS 19 AND THAT WAS ALMOST 18 YEARS AGO. I HAD DOCTORS SLICE AND DRAIN THE LESIONS IN THE EARLY YEARS BECAUSE THEY DIDN'T UNDERSTAND THE CONDITION, EVEN TODAY SOME HAVE NEVER HEARD OF HIDRADENTITIS. IT WAS ALMOST 6 YEARS BEFORE I EVEN GOT A DIAGNOSIS AND A FURTHER THREE BEFORE ANYONE DID ANYTHING TO HELP ME. IN THE PAST 5 YEARS I HAVE HAD FOUR MAJOR OPS TO HELP RELIEVE THE SYMPTOMS BUT I'M ALWAYS AWARE THAT EVEN SURGERY ISN'T A PERMANENT CURE.
ONE THING THAT HAS HELPED ME, LIKE YOU IS FINDING OUT I'M NOT ALONE AND HOPEFULLY TOGETHER WE WILL ONE DAY FIND A CURE. IF YOU WANT TO EMAIL ME PLEASE DO.
ALL THE BEST AND GOOD WISHES CHRISTINE
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I feel were you are coming form i have also suffered for three years and it is horribe I felt it was me that i was being unhigenic but it wasn't i now have scars under my arm and now and again they come back, i try and not let it depresse me i use dettox which is good but i still have days were it is ver painful it would be nice if we kept in toich as i don't really know anyone that has this problem .
Take care and i hope to speak to you soon all the best j:lol:
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