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I had my first outbreak of Pityriasis Rosea about 6 years ago. I was not unwell in any way but noticed a funny red spot on my arm which gradually spread to about an inch in diameter. It was very red and raised.
After a week or so I started to notice what I thought were flea bites on my upper body and went to the doctor. He thought I had been bitten and advised me to throw away my mattress. However, within a week the spots had turned into lesions just like the one on my arm, only a little smaller. The doctor then diagnosed scabies and gave me some cream which after a couple of weeks made me worse. By this time I was covered from neck to ankles and in great distress (although no pain or itching). This time the doctor diagnosed ringworm and gave me some other cream. The rash continued to spread and worsen. At its worst point you could not see my skin for spots, although I only got 2 spots on my face and none on hands or feet. Luckily as it was early spring I could cover up most of them with clothes and scarves. At this point I had been signed off work for 2 weeks ( I worked in an infant school) and was suffering extreme stress and embarassment. My doctor eventually refered me to a specialist, but at eight weeks in, I thought that whatever I had was permanent and slipped into depression. After about 10 weeks the spots lost their colour and the centres started to peel. I was most relieved to see the back of this skin problem even though my body peeled from head to foot and looked awful!!!
Anyway, after it went I had slight scarring for a couple of weeks and then even that went completely ( I really thought I would be scarred for life).
After another 3 months I eventually got an appointment with a specialist and I went to see him as I really wanted to know what it was I had had. He looked at my skin with ultra violet light and told me all about Pityriasis Rosea. He said it would not reoccur and I was really pleased.
Unfortunately this is incorrect. Two years later I gave birth to a daughter and the following day I suddenly had an outbreak of the familiar rash on my stomach. I tried to explain to the midwife what it was but the doctor diagnosed ringworm and isolated me! They put me in a seperate room and wouldn't let me touch my baby for 3 days until they started to fade! I was furious that no one listened to me and it seems that NOBODY in the medical profession that I had come into contact with, seems to know what it is!
Since then, I have had constant outbreaks (small and mild and usually localised). This has happened for the last 3 years and even though the thought of another serious outbreak scares me silly (it just looks so disgusting), as I know it is not serious I just hope it's not too bad. My doctor still won't acknowledge it and he says he thinks it is some form of excema (even though I have classic symtoms).
This week, I seem to have lots of little flea bites on my upper body and arms. Upon closer inspection I seem to have one bigger patch hidden under one breast. This patch is late in its life cycle (it is already peeling) so I assume it is another herald patch. I have counted 36 spots on my body and arm in various stages from small flea bite to 1-2cm lesion. Oh well, it looks like I am in for another major bout and this time they itch! Isn't life wonderful! At least I know that there's hope!
[i:1880cb3bd3]This message was automatically imported from the original Patient Experience[/i:1880cb3bd3]
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